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Cancer: Cervical & Ovarian Message Board
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Old 09-02-2008, 04:43 PM   #1
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Feedback Needed - Possible Ovarian Cancer

Hi!

I am new to this site and it seems like there is some great feedback.

Just over one month ago a transvaginal ultrasound showed an enlarged ovary and a cyst where "neoplastic process could not be excluded". So, off to a specialist where a CA-125 was drawn and came back at 20 (I know under 35 is good, but there are false negatives & false positives with this test).

My next step was to be another ultrasound, however the dr also suspected I had both PCOS (Poly-Cystic Ovarian Syndrome) and Endometriosis. The dr. also felt that the cyst was a normal cyst we all get.

So because of the endo, he would do a laprosocopy to confirm. After all the info I received, I chose a hysterectomy by lap (LSH) to remove my uterus and possibly the left ovary. In addition, they would do a frozen biopsy of the lining of the uterus as well as the cyst. They uterus looked fine, however the ovary didn't. The cells showed not only endo cells, but also "atypical cells". So out the ovary came. It's been one week since surgery and I am still waiting for results.

The pathologist that has the slides of the cyst has also sent the slides to another pathologist for another opinion.

My questions are:
1. How long does it usually take for biopsy results to come back?
2. Are atypical cells always cancerous, or is it too hard to tell?

Any support you can provide would be awesome. This has been a VERY long month and while the dr's think an extra few days on the pathology results isn't too bad, it's torture for me considering I have been waiting for a month.

Thanks,
Selina

 
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Old 09-02-2008, 05:19 PM   #2
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Re: Feedback Needed - Possible Ovarian Cancer

Quote:
Originally Posted by StampinFun View Post
My questions are:
1. How long does it usually take for biopsy results to come back?
2. Are atypical cells always cancerous, or is it too hard to tell?
Hi Selina. The waiting can be torturous! I don't know if it takes extra time to read biopsies for various body parts, but mine came in within 1 week (5 work days) for colposcopy and ECC, cone biopsy, and my hyst. I've heard it can take up to a month to get pathology reports back. So I'd say you should be very close to hearing.

Personally, I called the doctor's office starting a day or two earlier than the time they told me. I was so anxious. I also told them, "I'm going to call you every day, ok?" and they said OK. I realize some doctors offices don't want those calls.

Atypical does not always equal cancer. Cancer is atypical cells, but sometimes atypical cells are just precancerous (or heading toward precancerous).

I was told that if a pathologist decides a sample contains cancer, they make that decision as 200% sure (not just 100%). For my last biopsy report, the pathologist looked at the sides twice and the doctor looked at them with the pathologist. They made the final "yes, that is cancer" decision together.

I know the waiting is difficult. Try to distract yourself and do something fun. I tend to dive into a good novel or watching movies to numb my brain.

You are in my thoughts and prayers.

 
Old 09-02-2008, 06:10 PM   #3
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Re: Feedback Needed - Possible Ovarian Cancer

Thanks, Pickle Eyes. The wait is the worst part. I could handle this a lot easier if I had a plan of action. I'm running of strength for this part and have to keep up a good face for the kids. My almost 10 year old has already started questioning and not sleeping well for all the concerns he has.

I am glad they want to do multiple checks on it, but it's getting be too long.

Thanks for the prayers, they are what is keeping me going, bringing me peace.
Selina

 
Old 09-03-2008, 05:05 AM   #4
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Re: Feedback Needed - Possible Ovarian Cancer

Hello Selina,

I so sorry to hear that you are going through such a rough time.

As Pickle Eyes said, abnormal cells are not necessarily cancerous cells. They may be on their way to becoming cancer which means that they would have caught it in time and your surgery would have been curative. This is the best time to have surgery and you may discover that you were extremely lucky and that things have been taken care of.

The pathology is usually done in about a week so perhaps you might consider giving them a call and letting them know that you are anxious for the results. A cancer diagnosis is usually done according to how differentiated the cells are. If they are just a little different they are simply abnormal and they have no idea how these would develop .. the more different they become the more they are likely to become cancerous as by then a transformative process has begun.

I have a feeling that if your uterus was normal and they could not see any other pathology in your abdomen when they went it for the lap then at worst they got any danger out in time.

A few more days will not make a difference so try to treat yourself a little while you wait. Start a small project at home to keep yourself occupied or go out and get that little something that you have been wanting (whatever it is). Anything for a mind change. Obsessing is so unhealthy and I have made this mistake a few too many times. It does absolutely nothing to resolve the situation and you end up spiraling into a terrible state of anxiety.

Take care of yourself and come back and let us know how you are doing.

Estria

 
Old 09-03-2008, 10:36 PM   #5
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Re: Feedback Needed - Possible Ovarian Cancer

Thanks, Estria!

I was able to finally get some pathology results today. It was good news, but also frustrating. The doctor asked his nurse to call me and tell me that it was not "invasive cancer"! That's the great news, I was thrilled with that part. But the frustrating part was the biopsy report says: "borderline and low malignancy potential". So, I know that is good news as well, but the doctor is out of the office on vacation until next week. I still have no plan of action and I think that's what is hard for me.

I was able to do some more research on-line this evening and it did help more, but it'll be so nice to talk to the dr next week so I can get that plan of action. It's only the "what's next" that would be helpful to me.

Estria - your advice is great, thanks for responding!
Selina

 
Old 09-04-2008, 06:24 AM   #6
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Re: Feedback Needed - Possible Ovarian Cancer

Hello Selina,

Yes this is indeed good news and I have a feeling that they managed to get everything out before anything could develop. This should be a great relief to you. I would still make an appointment with your doctor so that you can see him and discuss in person what the next step should be. I would imagine that regular ultrasounds might not be a bad idea, at least for a while in order to keep an eye on things.

Take care and stay healthy !

Estria

 
Old 09-04-2008, 06:24 PM   #7
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Re: Feedback Needed - Possible Ovarian Cancer

I'm glad you finally got your results and that it isn't invasive! WHEW! I agree with Estria, get an appointment to talk with the doctor. Face to face appointments always make me feel better. Take a list of your questions in. Leave room to write the answers. That can also help.

I can't remember, are you seeing a gyn/onc? If not, I highly recommend you go to one. Even if this isn't invasive, it is close enough (in my book) to say that seeing a gyn/onc is a wise idea.

(((hugs)))

 
Old 09-04-2008, 09:46 PM   #8
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Re: Feedback Needed - Possible Ovarian Cancer

Thanks, Estria & Pickle Eyes. You are both awesome!

I already my two week post-op appointment set for next week (hysterectomy & oopherectomy), we're good there. No, I am not seeing an gyn/onc, just a Women's Reproductive Health/Endocrinologist, who is also a surgeon. I'll see what I can do to get him to refer me to a gyn/oncologist.

I do have a list of questions - can you think of any that I should make sure I ask?

Yes, I do feel much better that it's not invasive, now the next step is the "what's next" and I would be totally comfortable with more frequent ultrasounds. I would feel so much better with that. Although I am not sure if they will just want to remove the other ovary or not (I'm 33, so I would kind of like to keep it, but the risk of cancer scares me into thinking maybe I need to have it out.).... So many things to ask.

So, if you can think of anything I need to ask, please let me know. I'm keeping a running list of things.

Thanks for your feedback - you really are angels!
Selina

 
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