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Old 12-12-2008, 02:12 AM   #1
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Anyone here Diagnosed with,,

advanced stage adenocarcinoma cervix having spread to to the bladder and colon? My dear niece had no symptoms up to 6 months ago after a miscarriage.The prognosis is now pallative care -but wer'e hoping and praying .Kt:

 
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Old 12-12-2008, 07:42 PM   #2
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Re: Anyone here Diagnosed with,,

KTSpirit I'm sending hugs and prayers to your niece and family! Has your family sought a second opinion? If not, I highly recommend they do so.

I was diagnosed with adenocarcinoma Ia1 in April, but it was only 1mm deep, not nearly invasive into other organs.

Please write back! Let your niece know people are praying for her!

 
Old 12-13-2008, 05:34 AM   #3
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Re: Anyone here Diagnosed with,,

Yes Pickle -she has 2 little boys (age 3 and 7) Has a wonderful husband and family.--She was willing to go on a clinical trial-but didn't qualify because Lymphodema has completly taken over her body since her 10 rounds of radiation and they can't even get magnified scan readings --today added an outbreak of shingles -so we all now are Praying for a Miracle or a release from her dreadful pain and suffering. I talk to her family every day and my family and I are on standby to fly there . Pickles what's our message in all this ? Awareness /education /early pro-active prevention monitoring? It took years before suggested mammogram screening -now HPV screening of all 30y/olds-can we add Aic screening too or demand it from our Dr's. We as Women Must-- sorry I have to vent 'why was her cancer caught soo late in progression'. Thanks for all your support and caring thought's. Tess

 
Old 12-13-2008, 09:24 PM   #4
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Re: Anyone here Diagnosed with,,

I am so sad to hear how she is struggling! It really makes me sad. You all are in my prayers!

Quote:
Originally Posted by Ktspirit4 View Post
Pickles what's our message in all this ? Awareness /education /early pro-active prevention monitoring? It took years before suggested mammogram screening -now HPV screening of all 30y/olds-can we add Aic screening too or demand it from our Dr's.
No one has ever asked me this, but I think about it a LOT!

I personally think research on HPV is still fairly new. The virus was found in cervical cancer in the 1970s. The HPV/dna test was approved by the FDA only 4 or 5 years ago. The vaccine was approved only 2 years ago. I think, now that the HPV/dna test is being used more frequently on women over 30, I think there will be a dramatic increase in women knowing they have HPV.

The good news about the test is it detects active infections. So if a woman has an active virus, the doctor can do more research to identify if and where the virus is causing damage.

Afterall, it is because of the HPV/dna test that my doctor had even a hint that anything was wrong. As you know, with adenocarcinoma women usually have good paps for years (or decades). I *never* had a bad pap, even up to my last swab before my hysterectomy and including my post-hyst swab. I've always had good ones. I am in a tiny percent of the population who develops cancer (something like 0.01% or 1/10,000) since I always had my paps and they were always good.

The scary thing about adenocarcinoma, is that it seems like there are younger and younger women who are being diagnosed with AIS or invasive AdCa. This distresses me.

I tell everyone I can about making sure they stay current on their paps. I tell people that paps don't detect ALL cervical change. The pap is just a screening device. If a woman (esp over 30) has a bad pap, I always encourage her to have an HPV/dna test. If a woman (over 30) goes for a colpo, I strongly encourage her to ask for an ECC (endocervical curettage). It is the only non-surgical way to sample the tissue in the cervical canal. As we know, that is where adenocarcinoma sets up shop.

I think it is imperative that a woman be well informed on what her pathology/biopsy results say. Don't trust the doctor to tell you every thing. Research, but from reliable sources. Ask questions. Go to the doctor with written lists of questions. I personally think doctor's take a patient more seriously if he/she has a list of questions/concerns. I think it shows that the patient is knowledgeable.

I think the best I can do is to inform family, friends, and coworkers (or even strangers on the street if they ask about my teal and white ribbon that I wear).

What do you think?

((((hugs))))) to you!

Totally off topic, I had the most difficult time trying to post this! I kept getting an error message and was only allowed to use "quore reply" but then couldn't actually post. I guess the entire site had a problem.

 
Old 12-13-2008, 11:25 PM   #5
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Re: Anyone here Diagnosed with,,

All too well I agree with all youv'e written (DD) my niece had neg pap results and a baby 3 yrs ago-then a miscarriage last Xmas and from there bladder urinary retention-still not caught till 4 or 5 months later (see- w/national health you have to wait weeks for appt's.) Today (on the lighter side) We all here booked ticket to be w/her and family for Xmas in the UK. We leave here Xmas Eve night and are going to bring bundles of Cheer and Hugs . I'm taking 2 electronic hand held soccer games for the wee boys----the are really hooked on soccer and 'Tom the train What a wonderful celebration and recovery you have made Pickles and now your caring contribution to this health board. Tess

 
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