Hello everyone......I got some news today....not sure what to think .
My Path slides were re read at MD Anderson and the Squamous Cell Carcinoma came back Grade 3 From 0 to 3 , 3 is the most abnormal and most likely to spread...Not sure what to think yet. my appt is on 4/3....really makes a difference who reads your slides I guess..... I am having a colposcopy and evaluation at the Gyne Onc clinic.....Send me good thoughts..
Any thoughts on this?
Vulvar Squamous Cell Carcinoma 1/09
Postive Margins 1/09
2nd biospy same results 2/09
Path slides re read Stage 3 3/09
Waiting for Appt at MD Anderson on 4/3
((((Oleander))))) I'm glad they have reviewed your slides! You will be in my thoughts and prayers as your appointment approaches.
When you said that about the slides it reminded me that when I contacted the gyn/onc's office the secretary said that they always have a pathologist who specializes in gyn/cancers to review the slides to verify (correct) other general-pathologist-report(s). I was glad to hear that both reports were read the same.
I don't have anything else to add right now, except you are in my prayers and I'm glad MD Is seeing you!
Last edited by Administrator; 04-28-2009 at 02:40 AM.
Hello Oleander. I had vulvar VIN3 (in situ) which after 2 laser treatments, cryotherapy and numerous therapeutic biopsies I finally ended up with a vulvectomy. Have since dealt with invasive squamous cell of the anus from HPV in 1991 with resection, radiation therapy and chemo. Now some 18 years later am dealing with SCC Grade 3 same as you only mine is in the rectum. It is much easier to do a vulvectomy (my surgeon was the equivalent of a plastic surgeon and you never would have known). This totally removes any affected skin with what should be clear surrounding margins. I was scheduled to have surgery with my old surgeon in NYC this Monday to do local excision (all docs where I live want to do an APR, abdominoperitoneal resection and give me a colostomy) but insurance denies surgery due to out of network. Now I start all over again to find doctor at Duke which is where insurance is referring me. I wish you the best and please post what your anticipated treatment will be. Ask the doc about vulvectomy option that's the only thing that finally stopped the recurrent lesions after 4 years.
Last edited by Drafly; 03-26-2009 at 11:04 AM.
Reason: add'l info
Thanks everyone......I am so happy to hear from you all.
DragonFly I appreciate you sharing about your experiences. I may have to call on you.
I will not know the treatment choices until next next Friday 4/3 when I go to MD Anderson. They are doing a Colposcopy on me and checking for invasion but not sure how they will be doing that. I will let you all know as soon as I know.
Jess, Luvbug, Pickleyes annd Dragonfly.........I appreciate you so much. I say I am fine but I am pretty freaked out truthfully........ thanks......Oleander
I have read countless stories about "Insitu". It always ends up something pretty severe requiring surgery or Chemo......Yet the Doctors act like insitu is nothing... I see this over and over.....Your story confirms it once again.
My first 2 biopsies came back Insitu, this 3rd one does not mention it? hmm? I will have to get a copy when I go over to MD. I tried to get a copy but they said the Doctor has to go over it with me before they give me a copy. She was able to give me some hints.....
I will opt for surgery before anything else from what I have read. Thanks.