Re: My PET Scan Results...can anyone advise?
Okay, first let me preface this response by saying that I am not a doctor or nurse, and what I am saying comes only from my experience having had a PET and how the test was explained to me, both by my doctors and by a dear friend of mind who is a radiologist and had discussed my situation with the oncologists she works with.
Cancer cells like glucose. A PET scan measures glucose uptake. "Normal" uptake is seen and expected, with "normal" levels varying throughout the body, i.e. the brain, lungs and various other organs -- including the ovaries -- will "light up" with glucose activity on the scan, and that is normal. What they are looking for is activity over and above a certain level (I believe the number is 5, but I could be off on that, and it also depends on the grading/classification system used by the facility -- not really sure if there's just one standard or classification). Anyway, anything over whatever that magic number is will be noted as "increased uptake." HOWEVER, that does not necessary mean tumor and/or cancer.
My PET scan came back with an on-the-fence reading on each ovary that was explained by the presence of ovarian cysts; my result was perfectly normal. The mildly elevated/borderline glucose uptake was just due to the cysts, and it was absolutely nothing to worry about. There is a whole formula they use to determine if the elevated uptake is worrisome or not, and most of the time it's the doc -- not the person reading the scan -- that makes that call.
I don't know what to say about the uptake on the lymph node though, as I know of no explanation for an elevated reading there -- but again, that didn't come up as an issue during my scan, so it may very well be just my lack of knowledge, and there could be a perfectly reasonable and benign explanation for that finding as well, but I just don't know enough to give a better answer.
If I were you I'd call the center that did the PET and/or your doc and tell them you insist on having someone call and explain your results to you. I was absolutely beside myself when I was awaiting my results. I had my scan Thursday night, and was told Friday morning that the results were ready and someone would call me. Well, by 7:00 p.m. and no phone call, I was hysterical. Turns out the resident who was supposed to call me didn't understand the elevated reading on the ovaries and didn't want to call and either scare me with bad news, or admit they didn't know what it meant....so they left me hanging. When I called my doc's office and explained how upset and nervous I was, they called the doc on call, who promptly located my results and called me back. I was very nice, and made it clear I was scared, and thankfully it worked and I got my results. Maybe give it a try.
Please let us know how you are doing and what the doc says about your results! I hope they have a reasonable, benign explanation for the readings, and I certainly wouldn't panic yet. Remember, this is the opinion of the person reading the scan, and there could be any number of reasons for those findings.
Big (((hugs))) your way.