Re: Steps to Diagnosing Ovarian Cancer Your Experience?
Have you seen a gynecological oncologist as of yet ? In light of your CA-125 results, this would be a good idea. The surgeon can go in with a laparoscopy and do a cyst or ovary removal and have the tissue tested. Then if the results are benign, no further action would be warranted. However, it is a good idea to have an gyn oncologist as opposed to a normal gyne. These professionals are more trained in doing this type of surgery and will be more careful during removal. They are also very good at seeing what is good and what isn't during the actual surgery.
A friend of mine was having horrible symptoms and after doing all of the scans you have mentioned, they went in with a lap in order to biopsy and, in her case, to take out all of the fluid build up in her abdomen. Unfortunately for her, they diagnosed her with primary peritoneal cancer (which is just like ovarian cancer and treated the same). At that point, they scheduled her for a complete hysterectomy. After the hyst and chemo, she has been cancer free for almost a year (touch wood).
On the other hand, my sister in law had a large complex cyst and a raised CA-125 and in her case, the surgeon went in fully expecting to have to remove everything. They removed her ovary and the cyst and much to her surprise, it was completely benign.
I therefore understand completely why you would not want to go all the way unless you have to. Depending on your surgeon, he or she may or may not be comfortable doing the ovary removal through a laparoscopy or a laparotomy. You will need to discuss the procedure with the actual surgeon. However, I would seriously consider using a gyne oncologist, just to be on the safe side.
I hope this helps. I sincerely hope you get good news very soon.
All the best,