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kosm · 05-08-2010, 10:18 AM

Glad that you got all of that done and over with. Sorry it was so painful. I definitley think the method has a lot to do with it. If it was the Tao Brush, you would have seen a brush that looks similiar to a really big mascara brush, but white. The Pipelle, I believe, uses a suction method of taking cells. The Tao brush is simply a scraping that takes all of about 10 seconds. But for me, that tube that guides the brush in is what caused me the most pain for the whole thing. Feels good to get these things over with.
Not having that "Favor neoplastic " qualifier is a good thing. I had a friend who had AGUS like you, had the biopsies and it was truly nothing at all. Then again, it could be something so you do need to get checked, which you have, and soon you will have more information. To reassure you, my ECC results came back with CIN 1, cannot rule out High grade lesion. The endometrial biopsy came back normal. I started taking Pro-biotics because I heard the same thing you did, that yeast can cause this result. So, I took the pro-biotics and my last ECC came back no CIN, just rare atypical cells. However, another pap showed favor neoplastic, which is bad. I also had an ultrasound done. Ttally painless, and if you have a massive tumor, it will show it.
If they cannot diagnose the cause of your glandular abnormalities, your next step may be a cone biopsy. I gotta have one of those in June. Not looking forward to it.

angel4747 · 05-17-2010, 05:43 PM

Hi ladies,

Last week I got my biopsy results, and given the previous AGUS pap test, I think it's the best result I could've hoped for!

I don't have a copy of the pathology report yet, but here's what the nurse told me:

Cervical biopsies: atypical squamous metaplasia
ECC: focal reactive atypia
Endometrial biopsy: negative!
Note: Benign cellular changes

From what I understand, the metaplasia noted in the cervical biopsies has nothing to do with dysplasia, and only represents an area of the cervix where the cells change over from squamous to glandular.

When I talked to the nurse, she said the doctor was planning to talk with the pathologist to ensure that these results match up with the AGUS pap result, given that there was nothing mentioned about glandular cells in the pathology report. It's been almost a week since they got the results and I haven't heard back yet, so I think this is probably a good sign. If I haven't heard back from the doctor by later this week, I'm planning to give her a call to find out what the game plan is. I'm assuming I'll still need to be followed closely by repeat pap tests, but we'll see.

After my previous conversation with the pathologist, I feel pretty confident that the benign atypical cells (both glandular and squamous) could have been caused by my 4-year bout with chronic yeast infections. The 2 "suspicious" cervical biopsies were taken from the transformation zone, so both glandular and squamous cells could be affected in this area. Also, if there were atypical cells found on the ECC, I assume those must have been glandular since I'm under the impression that the cervical canal is made up of glandular cells. (Don't quote me on this though!)

If you ladies have any concerns or comments about the above, I'd welcome your feedback! I definitely want to make sure I have all my bases covered.

Thanks again for your support during this extremely stressful time. I feel so relieved and fortunate that things are looking up!

Angel

momofjandx · 05-18-2010, 07:32 AM

I really cant comment about the ECC however, I found out yesturday I have to have one June 8th. My doctor said it is like having a the procedure colposcopy (sp??) which I have had at LEAST four times. My experience with that was fine. A little cramping and spotting after. It felt like cramps! I take ibuprofen 800mg before I go. So if the ECC is anything like getting pieces of your cervix snipped...you can do this!!! If I can anyone can (I am a big baby!). I will say a prayer for us both.

westlaker · 06-26-2010, 05:09 AM

Angel, I've read your posts with great interest as I has atypical glandular cells with a Pap in Jan. Following this, Ive had a colposcopy, d & c, LEEp, cone, and ultimately a hysterectomy on May 28. I am wondering about those glandular cells and although everyone, including my gyn-onc was convinced the hys would end my troubles, I have been diagnosed with a rare gynecological cancer known as adnoma malignum or minimally deviant adenocarcinoma. I hope all has gone well for you and if you get a chance, tell me of your hopeful progress. I was anxious about the glandular cells from ther beginning asnd I suppose, my fears have been confirmed.

donna w · 07-05-2010, 06:34 AM

Hi Ladies,
I have been reading your posts since my last pap in Feb showed AGUS favor neoplastic. I have had a colonsocopy, biopsies, an ultrasound, and a cold knife which were all normal. I don't go back to the gyn for 6 months to have another pap, ECC, and colonoscopy. Is there anyone else who has had AGUS and the cause was not found? I have read a lot and know that the cells may come from outside the reproductive tract. I also had a pap which showed AGUS six years ago.
Donna

kosm · 07-05-2010, 11:27 AM

I have the exact same thing...well, kind of...mine said atypical endocervical glandular cells, favor neoplastic. They cannot find the cause. My endometrial biopsy was normal. ECC showed CIN 1, which later regressed and said reactive. I had an MRI because of pain which showed I have Adenomyosis. Adenomyosis is endometriosis taht is inside the muscle of the uterus (myometrium). It causes excess gland cells to show up but still my doc doesn't think it caused the pap result. I am pretty scared as well. I have heard that in rare cases this can result from someone going on with other organs, such as the colon. I would request a pelvic/abdominal MRI with contrast. That should rule out any malignancies. Maybe a few blood tests (CA-125). Was the cone surgery real bad? What is there next step with you? I feel for ya! Will keep you in my prayers!

donna w · 07-05-2010, 03:06 PM

Thanks for your reply. My CA125 is slightly elevated. I have asked for an abdominal ultrasound but my gyn won't order one since my cone biopsy was normal. She said that the abdomen isn't her area and she wouldn't know what to do with the results anyway. I do have endometriosis but haven't been told if this could be the cause of the agus favor neoplastic.....so far I have no idea where the abnormal cells are originating from. The cone wasn't nearly as bad as I thought it would be. I thought the bleeding would be quite heavy but it wasn't. I had a brown discharge for about 4 weeks. I didn't need any pain medication. I have been having trouble with acid reflux for months now. I had a gastroscopy done and see my dr on Fri for results. I don't go for further testing until Nov which will be more than a year since my original diagnosis. Then she will do a repeat pap. ECC and colposcopy. I had a colonscopy a year ago since colon cancer runs in my family. Are you having a cone? ...what is next for you? Thanks again for responding to my post. It isn't easy to find someone else who has this diagnosis. I will keep you in my thoughts and prayers too.

kosm · 07-05-2010, 09:16 PM

I would take comfort in the fact that you had a normal Cone biopsy. They are very accurate!! I would have another endometrial biopsy and also an ultrasound to see if your endometrial stripe is normal. You could have hyperplasia. When I complained of pelvic pain, no one took me that seriously (and the pain was reallly bad), so finally I went to a gastroenterologist and he ordered the pelvic MRI for me. It was very helpful and I really think that would help you too. The MRI would show any tumor formation, or any other abnormalities as well. I would insist on one! My cone is supposed to be Wednesday, not looking forward to it. Not to mention my period is a week early and I am not sure I can have the procedure while on my period. Ugh!! I am so sick of this

donna w · 07-06-2010, 06:57 AM

Good luck with your cone. I hope you can get it overwith. I had a virus in my chest and the gyn postphoned mine for 3 weeks until I had a lung CT. I know how awful the waiting is. I am with you ....I am sick of this too. My Agus favor neoplastic pap was at the end of Feb. and I got the results the end of March. Life has been very uncertain since then. How long have you been dealing with this? Let me know how you make out. I'll be thinking of you.

kosm · 07-06-2010, 08:06 AM

Hi Donna,
I have been trying to keep sane by praying and leaving it with God, but it isn't easy. I Google too much info and end up getting myself worked up. I tried to Private Message you but it wouldn't work! Send me a private message if you want to talk. It is really hard to find someone else with this diagnosis. I got my results in January.

kosm · 07-06-2010, 08:38 AM

Another thing, I really think you should insist on an MRI. If she won't order one, another doctor will. It WILL give you answers and it is an easy procedure.

donna w · 07-06-2010, 05:24 PM

I have also tried to send you a private message and I can't get it to work either. My original pap with AGUS was in Oct. but it changed to neoplastic in Feb. In Canada there seems to be a wait and see what happens attitude. I went to see an oncologist/gyn and he said that I didn't need anymore testing done and to go back to my gyn in 3-4 months. However, she isn't seeing me for 6 months. If I still have the same results then she will look further. She told my dr. she doesn't think I have anything to worry about....easy for her to say. Good luck with your surgery tomorrow. I'll be thinking of you. Keep me posted.

kosm · 07-06-2010, 06:55 PM

Hi Donna,
I almost got a message to you but it said that you were not set up to receive private messages. Did you check your settings? I will look in the help area! Would like to talk to you! I got my AGUS in October and by January it turned to neoplastic

nahi · 02-26-2011, 10:44 AM

First of all my name is nahi. I unfortunately went through all these procedures without knowing, once you are at tht doctor's office he askks you if u feel any pain. I Had a colcoscopy done and biopsy also endovaginal ultrasound all of these procedures were painless. I did not care about the pain. What I do really care is waiting for the results. In these days I will be under a sedation for endometrium exam and vaginal biopsies. I had already have a cervical biopsy. Six pieces of tissue were taken from my cervix did not feel any pain. My doctor put some spray so as not to feel any pain and told me to relax the muscles close my eyes and think about something pleasant . Try to imagine yourself at the beach running without having to go under these procedures. I know it is hard but it helps think you will be done one day. I am working hard on thinking that nice things will happen

hugs

nahi · 03-13-2011, 07:14 AM

I am sorry for what you are going through. I have the same diagnosis. But I will tell you I had an endovaginal ultrasound it was not painful at all. Two biopsies taken from different places of the cervix like 6 samples no pain at all. I also had pap smears colposcopy and ECC no pain until now. My next step is another biopsy and possibly a cone biopsy. I hope not to have an hysteroctomy. Even if I am 45 and not plannning on kids.

best of luck to u and don't worry there is no other worse pain than waiting and waiting
that is the only pain I felt even though I have a great health insurance.

tmc44 · 04-11-2012, 09:51 AM

Angel -

My pap recently came back AGCUS. How are you doing now?

angel4747 · 04-11-2012, 10:06 AM

Quote:

Originally Posted by tmc44

Angel -

My pap recently came back AGCUS. How are you doing now?

Sorry to hear about the abnormal pap. Whether or not the follow-up tests turn out normal, it's still a very stressful experience.

I've had 2 normal paps since my testing, which I'm thrilled about. I'm now back to being checked once per year. I have my next pap test scheduled for June, so hopefully it will come back normal too. I sure do get a lot more nervous about the pap results now though!

tmc44 · 04-11-2012, 10:43 AM

Mine came back AGCUS so..... Colposcopy, Endometrial Biopsy, Endocervical Biopsy and Cervical Biopsy.

Endometrial came back normal, Endocervical came back normal but the Cervical came back mild dysplasia. We are at the watchful waiting stage and I am a nervous wreck. I freak out over every burn, ache, itch or cramp. I am a total psycho

Thank you SO much for responding...... Seems like that there is never any good news here!

I go back in July for a follow up pap. Wish me luck and PLEASE keep me in your prayers. I will do the same.

God Bless - Teresa

angel4747 · 04-11-2012, 11:21 AM

I can understand why you're a nervous wreck. I would be too!

I'll be sure to keep you in my thoughts and prayers. Please let us know how things go in July.

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