Thanks so much for the reply Kosm! even being able to get all this out helps alot!
So far, the only thing they have done to try and figure the abdominal pain is a colonoscopy and ultrasound (not a pelvic US, thats what I will ask for next)
The GI dr said abdominal pain is usually gi related (that was all fine) organ related (US was fine for organs) or female problems, which led me to another pap and here we are. I do feel good about the fact that from pap to leep will all have been within about 3 weeks time! I was very lucky to get the pap results back on a friday, the appointment and colposcopy the following wed and the colp results friday of the same week. I am going to talk further about the pain with the Gyn tomorrow and see if we can do an ultrasound.
I have been sick for 15 months and have had to fight every step of the way to get testing done until now! My orginal Dr's diagnosis after an ER visit and hospital stay was that "I was in my 40's, divorced and a single parent and needed to consider antidepressants" (that ws before my ex died) I kept trying to tell him I wasnt depressed and that things were actually going well, I started a business that took off and life was good before going to the ER.
from there a different Dr found Hashimotos and anemia and chalked up my irregular periods to that and it seemed to be true, when my thyroid numbers were close to normal, peroids were normal, as thyroid numbers got too high..longer periods or absent ones.
Anyway, I know I am rambling..lol! Too much keeping everything inside so my 12 yr old doesnt worry.
Thank you for clearing up the "in situ" issue, while the internet holds a wealth of info, some of it can be confusing! I guess I just needed someone to say that this wasnt a death sentance
I will be updating as things progress!
Originally Posted by kosm
Sooo sorry to hear about all you are going through. That is a lot. I can tell you that Severe Dysplasia is NOT cancer. It does have a high likelihood to become cancer if it isn't treated. They used to group Severe Dysplasia and "in situ" as the same, but I believe they changed that in 2003. In situ isn't cancer either, but it is debatable and considered to be at least stage 0 cancer if it is classified as that at all. You have NOT been diagnosed with cancer. You DO need treatement and the LEEP may or may not remove it all. The LEEP is pretty effective but they need clean margins to tell you the Dysplasia gone. Even after that, you need to follow up with frequent paps and yes may need to go through it again. Then again, you may not. I can tell you that stress does not help at all. I know it is hard to not be stressed with all you have going on, but do your best to stay calm, get your sleep (very important!) and relax knowing you are getting this taken care of in 2 weeks and you will have more answers then. If you have pelvic pain, what sort of tests did they do to assess that? Pelvic pain can be many things. I get pelvic pain a lot, I was convinced I had ovarian cancer! It was actually just benign cysts that are a pain to deal with. You should at least ask for an ultrasound so they can take a look at things. they can measure your endometrial stripe to see if you have anything wrong with your uterus (hyperplasia, fibroids, ect). They can also take a look at your ovaries and identify any cysts that may be causing pain as well. An ultrasound would be a good starting point along with the LEEP if you are having pain. Some women have the LEEP or a Cone biopsy and never have to deal with dysplasia again, some have to keep battling it. You should also get tested for HPV as well, as this puts you at high risk for cervical cancer. For now, just know that you HAVE NOT been diagnosed with cancer and try to relax. Let us know what happens!