It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Cancer: Cervical & Ovarian Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 07-26-2011, 07:52 PM   #1
Newbie
(female)
 
Join Date: Jul 2011
Location: Boston, MA
Posts: 1
pdoodle HB User
have stage IV endometriosis and recently dx'd with AIS

Hi all,

I am 29 and started getting pap smears at the age of 18 and never had a problem. i had abnormal results from my pap last month (June) and had a colposcopy done almost two weeks ago (with a dermal punch/biopsy). My gyn told me that there was just one little suspicious spot and she didn't suspect it would be anything to worry about/my body would more than likely shed the virus in the next few months.

Well, cue my shock when I got a call from her office last week saying she was absolutely floored because my results came back as "Severe dysplasia and adenocarcinoma in situ."

i am near Boston and I am seeing a gyn/oncologist this Friday at Mass General Hospital to discuss the next steps.

My questions are as such:

I have had two laparoscopic procedures to treat endometriosis. The first was in 2009 and was diagnostic, confirming i did indeed have Stage IV Endo (fallopian tubes kinked, ovaries attached to sides of uterus/bowels, large adhesions, etc.) I had another lap this past February through Brigham and Women's Hospital by a reproductive surgeon (last time was my regular gyn). He confirmed the original diagnosis and was also to able to tell me that my fallopian tubes, while kinked, were clear, meaning I could theoretically conceive and carry a child.
---I have never had actual issues with ovulation or with my periods themselves (not heavy/unpredictable, etc). They have always been incredibly routine and "normal" save for my atrocious cramps.

----Because I have the endo "working against me," so to speak, does this mean my chances of being told I need a hysterectomy are higher than if I didn't? (I realize this question may not be able to be answered by anyone here). Does that also mean that because my ovaries are somewhat fused to my uterus, they'd be more likely to do a complete instead of simple hyster?

------Has anyone ever had a dx of AIS but was told it was actually endo?


------My gyn said that the oncologist will probably do a CKC and go from there. I thought that what she said was if it continues to be AIS, then they remove the area. But, if it is actually invasive adenocarcinoma, a hysterectomy is the next step. Is this correct or would AIS also warrant a hysterectomy?

I guess I'm just really overwhelmed, mostly because I think the endo adds another element to it and I just have a "bad feeling."

If anyone has had a similar experience your words are GREATLY appreciated.

thanks so much!!!

Last edited by pdoodle; 07-26-2011 at 08:00 PM.

 
Sponsors Lightbulb
   
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
diagnosed with stage 1 adenocarcinoma, looking for thoughts, encouragment, jokes :) pkreno Cancer: Cervical & Ovarian 50 06-24-2010 04:06 AM
did you have a simple Hyst w/no invasive disease? francegirl Cancer: Cervical & Ovarian 5 11-14-2009 11:46 AM
When should I have my chest port removed? swoosan36 Cancer: Cervical & Ovarian 4 08-28-2008 11:08 PM
Anyone have symptoms before dx? Upset123 Cancer: Cervical & Ovarian 7 12-09-2007 10:13 AM
I'm scared i have ovarian cancer lisab42 Cancer: Cervical & Ovarian 16 10-03-2007 12:47 PM

Tags
ais, endometriosis



Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 12:36 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!