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Cancer: Cervical & Ovarian Message Board
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Old 09-13-2012, 01:42 PM   #1
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Join Date: Sep 2012
Location: CT
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SistersSis HB User
Hello ladies--looking for helpful info for sis

Sister went to her annual a couple of weeks ago and a cyst was discovered, a US (vaginal) was done and a second was discovered. GYN wanted to wait a couple of weeks to see if they shrank and also ordered some blood work.

She had the follow up US today and it showed that they have not shrunk (and now GYN thinks instead of two they may actually be one large one.

Blood work, he said was elevated (Im guessing he had CA-125 tested, I know that is a tumor marker) but my sister didnt know what the level was.

He is sending her to a GYN oncologist and of course the word "oncologist" has her beyond terrified. And her GYN's office was contacting this GYN/Onc as they were leaving

Now a bit of background on me. I had a breast cancer scare a couple of years ago so I understand the profound fear that she is experiencing, how hard it is to stay focused on facts in the face of fears etc etc.

She hasnt asked for any of her reports (US or the blood work) so I dont know the answer to any of that. All she knows is the following (copy and past from an email)

"If the '2' cysts were 8.4cm and 7.3cm...
and now, he is thinking that it is possibly 1 large cyst..that would be 15.7cm. "

So that is all I know.

Would love some factual and informed feedback from those of you who know this journey.
Again I know what it's like facing a breast cancer scare and how this (the not knowing) is the worst part. How one's mind goes to very dark corners.

I would appreciate any information.

My Sister's Sis

Last edited by mod85; 09-13-2012 at 02:15 PM.

 
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Old 10-08-2012, 12:54 PM   #2
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Join Date: Feb 2009
Posts: 372
luvbug412 HB Userluvbug412 HB User
Re: Hello ladies--looking for helpful info for sis

Didn't see any followup on how your sister is doing.

She is lucky though to have an advocate in your that is watching out for her health!!

First off, I would recommend getting copies of all lab work and reports. The reason for this (I found out) is that sometimes Drs aren't (how would I put this) forthcoming with all of the information? She is entitled to that information and should not hesitate to have it in her hands. Keeping a copy for herself will save her in the long run if she ever needs to get a second opinion and the Dr has "issues" sending records (had it happen, just saying!).

Secondly, if she doesn't feel comfortable with her Dr's advice, if at all possible, seeking a second opinion is recommended. Heck, I would recommend it even if she is comfortable with it. I am learning this the hard way (i've posted elsewhere, so I won't bore you).

In two cases now I have had friends referred to a gyn/onc as a "Just in case" because of large tumors (one case ovarian, the other uterine). In both cases neither were cancerous BUT a gyn/onc is a specialist in dealing with and treating odd and/or large masses.

Remember, CA-125 is a tumor indicator, but it is FAR from perfect as it can be elevated for a non-cancerous reason and be non-existant even when cancer is present.

Good luck!

 
Old 10-08-2012, 01:02 PM   #3
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(female)
 
Join Date: Sep 2012
Location: CT
Posts: 2
SistersSis HB User
Re: Hello ladies--looking for helpful info for sis

Quote:
Originally Posted by luvbug412 View Post
Didn't see any followup on how your sister is doing.

She is lucky though to have an advocate in your that is watching out for her health!!

First off, I would recommend getting copies of all lab work and reports. The reason for this (I found out) is that sometimes Drs aren't (how would I put this) forthcoming with all of the information? She is entitled to that information and should not hesitate to have it in her hands. Keeping a copy for herself will save her in the long run if she ever needs to get a second opinion and the Dr has "issues" sending records (had it happen, just saying!).

Secondly, if she doesn't feel comfortable with her Dr's advice, if at all possible, seeking a second opinion is recommended. Heck, I would recommend it even if she is comfortable with it. I am learning this the hard way (i've posted elsewhere, so I won't bore you).

In two cases now I have had friends referred to a gyn/onc as a "Just in case" because of large tumors (one case ovarian, the other uterine). In both cases neither were cancerous BUT a gyn/onc is a specialist in dealing with and treating odd and/or large masses.

Remember, CA-125 is a tumor indicator, but it is FAR from perfect as it can be elevated for a non-cancerous reason and be non-existant even when cancer is present.

Good luck!
LuvBug,

Thanks for your reply. All turned out well. Turned out to be endometriosis. She has since join these boards (dont know her screen name) so I am going to respect her privacy here.

I know you all will take really good care of her and each other!!! So glad I pointed her in the direction of this site!!

 
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