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Old 11-10-2003, 06:58 PM   #1
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jthorp HB User
Question stage 4 colon cancer mets liver and lung

Hi, I have stage 4 colon cancer with mets to liver and lungs and I have been on chemo off and on for a year. The doctor gave me a year to live but I am still here. Thank God. But, my tumors are growing and spreading. Dr. said that the average survival is now about 20 months.
I get really short of breath when I try to walk and am now on Procrit. Often I just don't feel like eating, just soup and little bits at a time.
What is your experience with how long patients survive? I hope to make it to spring. Jthorp

 
Old 11-11-2003, 05:42 AM   #2
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HoosierBj HB User
Hello, and welcome to the Boards..
My belief is that the human spirit is one tough cookie. It is well documented that even people who are in the last stages of life can make it until "the birth of a grandchild, a wedding, Christmas, Spring.
Trying to pinpoint the death of someone's physical body is like trying to predict the birth of a baby. It just doesn't work like that! Some are born early, some later by weeks.
And the same principle would exist if you knew you would die from a car crash somewhere between now and next Spring.
Live now. Talk to those who need to hear you say you love them. Do something you've always wanted to do that your health today allows.
And most all, I really hope that you will continue to return here as you deal with the coming time.
We would all benefit from and value your journey.

 
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Old 11-13-2003, 10:18 PM   #3
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nelldance HB User
Quote:
Originally Posted by jthorp
Hi, I have stage 4 colon cancer with mets to liver and lungs and I have been on chemo off and on for a year. The doctor gave me a year to live but I am still here. Thank God. But, my tumors are growing and spreading. Dr. said that the average survival is now about 20 months.
I get really short of breath when I try to walk and am now on Procrit. Often I just don't feel like eating, just soup and little bits at a time.
What is your experience with how long patients survive? I hope to make it to spring. Jthorp
If a cancer patient tells themself they can make it, and beleives in the therapy, and wants to beat it, there are many odds they will. When a person is depressed, and all they do is think of depressing thing, they fall deeper and deeper into that depression. When you tell yourself something negative, yoiu get negative effects. When you tell yourself positive thiungs, you get positive effects.
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Old 11-14-2003, 01:06 PM   #4
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ktee_uk HB User
Hi jthorp

I have 2 experiences of bowel cancer spread to liver. First my husband, aged 45, who is responding really well to surgery and chemo. I am the sort of person who wants to know about everything there is to know about cancer. It helps me prepare myself to help my husband. I have however held back from asking docs about life expectancy as my husband does not wish to know. He is the sort of person who deals with things in an orderly and calm fashion. He says it will not help him to know what the docs "think" his odds are but it will help him to know what the docs can do for him in the hear and now. I respect my husbands stance on this and have strangely found some strength from not asking. Its almost like we are tiptoeing around the grim reaper so he wont notice us and then we are gonna leg it up to the finish line and beat him.

My other experience is my mother. She has exactly same as my husband. They were diagnosed within 6 weeks of each other. She is in late 70s and generally poor health. Chemo has not worked for her and she made decision to stop the chemo 6 weeks ago. My mum did want to know about life expectancy. The docs told her 6 months from May 2003. She is still going strong and is now busy making plans for Christmas celebrations. She is quite honest with me (most of time) and told me she was surprised to still be alive. I think it has helped that she is at peace with herself and her god, she has a loving family and her friends are brilliant at taking her out or visiting.

Hope the above helps but it is a bit of a ramble.

Ktee

 
Old 11-15-2003, 08:12 PM   #5
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jthorp HB User
Quote:
Originally Posted by ktee_uk
Hi jthorp

I have 2 experiences of bowel cancer spread to liver. First my husband, aged 45, who is responding really well to surgery and chemo. I am the sort of person who wants to know about everything there is to know about cancer. It helps me prepare myself to help my husband. I have however held back from asking docs about life expectancy as my husband does not wish to know. He is the sort of person who deals with things in an orderly and calm fashion. He says it will not help him to know what the docs "think" his odds are but it will help him to know what the docs can do for him in the hear and now. I respect my husbands stance on this and have strangely found some strength from not asking. Its almost like we are tiptoeing around the grim reaper so he wont notice us and then we are gonna leg it up to the finish line and beat him.

My other experience is my mother. She has exactly same as my husband. They were diagnosed within 6 weeks of each other. She is in late 70s and generally poor health. Chemo has not worked for her and she made decision to stop the chemo 6 weeks ago. My mum did want to know about life expectancy. The docs told her 6 months from May 2003. She is still going strong and is now busy making plans for Christmas celebrations. She is quite honest with me (most of time) and told me she was surprised to still be alive. I think it has helped that she is at peace with herself and her god, she has a loving family and her friends are brilliant at taking her out or visiting.

Hope the above helps but it is a bit of a ramble.

Ktee
Thank you. I too need to know everything so I can deal with it. The unknown puts more stress on me. Joanne Thorp

 
Old 11-16-2003, 01:53 PM   #6
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Nassau one HB UserNassau one HB UserNassau one HB UserNassau one HB User
Quote:
Originally Posted by ktee_uk
Hi jthorp

I have 2 experiences of bowel cancer spread to liver. First my husband, aged 45, who is responding really well to surgery and chemo. I am the sort of person who wants to know about everything there is to know about cancer. It helps me prepare myself to help my husband. I have however held back from asking docs about life expectancy as my husband does not wish to know. He is the sort of person who deals with things in an orderly and calm fashion. He says it will not help him to know what the docs "think" his odds are but it will help him to know what the docs can do for him in the hear and now. I respect my husbands stance on this and have strangely found some strength from not asking. Its almost like we are tiptoeing around the grim reaper so he wont notice us and then we are gonna leg it up to the finish line and beat him.

My other experience is my mother. She has exactly same as my husband. They were diagnosed within 6 weeks of each other. She is in late 70s and generally poor health. Chemo has not worked for her and she made decision to stop the chemo 6 weeks ago. My mum did want to know about life expectancy. The docs told her 6 months from May 2003. She is still going strong and is now busy making plans for Christmas celebrations. She is quite honest with me (most of time) and told me she was surprised to still be alive. I think it has helped that she is at peace with herself and her god, she has a loving family and her friends are brilliant at taking her out or visiting.

Hope the above helps but it is a bit of a ramble.

Ktee
ktee,
You are so brave...having two people who are closest to you having the same illness...how you are coping, I have no idea.
__________________
Husband dx July 2003, advanced rectal cancer stage 111C; myself dx July 2006 indolent lymphoma; husband dx February 2010, stage 2 prostate cancer.

 
Old 12-18-2003, 11:25 AM   #7
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HoosierBj HB User
Re: stage 4 colon cancer mets liver and lung

Hi jtharp, I'm just checking up on you! I haven't seen you on the board here in a month or so and was concerned.
Hopefully the the Holidays have just caught up with you and you're extra tired...
Please let us know how you're doing -
You're a part of the family here....

 
Old 12-29-2003, 10:35 PM   #8
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jthorp HB User
Re: stage 4 colon cancer mets liver and lung

Quote:
Originally Posted by HoosierBj
Hi jtharp, I'm just checking up on you! I haven't seen you on the board here in a month or so and was concerned.
Hopefully the the Holidays have just caught up with you and you're extra tired...
Please let us know how you're doing -
You're a part of the family here....
Hello Friends:
I have been going through chemo with Camptosar and had my last dose the first part of this month. My CEA was at 20 when I started and it is now down to 5.4 so I am so pleased to see that the tumors have slowed way down. I still get nausea and diarrhea from chemo but all the mouth sores are gone. I am on procrit now and after 7 weeks I am beginning to feel more energy.
I enjoyed Christmas with the family and my son, his family, my daughter and I then went over to visit my sister and her family. What a wonderful and blessed time.
Take care and may your new year be full of family blessings, and your spirits be bright even when you aren't feeling too good. My prayers are offered daily for those fighting cancer.
Your friend JThorp

 
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