It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Cancer: Colon Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 08-27-2005, 10:17 AM   #1
Junior Member
 
Join Date: Nov 2004
Posts: 33
Michelle M HB User
Large Tumor Found..Near Obstructed & Awaiting Surgery

Hello all. New to the Board, thanks for being here!

My mom is in acute distress.

Had colonoscopy two years ago; was clear. Started having abdominal pain and discomfort about a year ago, bowel trouble; became really acute about two months ago. She went to the ER a month ago and they found a "mass." Now, a new colonoscopy reveals a large tumor in her large intestine (upper part tho not sure exactly which, this news delivered bedside by Dr. following colonoscopy), seemingly about 5 inches long judging by his hand gestures describing his findings.

Seems I read that large tumors like this are rarely benign so I'm trying to pin hopes in other directions.

Mother is in pretty severe pain immediately after eating, nearly impossible to have BM's, so has pretty bad blockage tho not quite total, apparently. Also bloating.

If she avoids eating, she's feeling otherwise normal.

The doc will have biopsy results on Monday but I am pretty sure we are talking about colon cancer here, with something that size. I guess I am praying for no invasion through walls of intestine or to lymph nodes.

The doc did not really hang around after colonoscopy other than to say we should call on Monday for biopsy results.

So my question is: Any tips on food to sustain a person? She is having a pretty awful time. I'm making a haul of soup, pudding, Ensure, that kind of thing. Anything remotely solid leaves her in agony. We're both praying for a fast surgery date.

Thanks in advance for any help anyone can offer...

:-)

Michelle

 
Sponsors Lightbulb
   
Old 08-28-2005, 12:53 AM   #2
Senior Member
(female)
 
Join Date: May 2005
Location: California
Posts: 140
P00hbear HB User
Re: Large Tumor Found..Near Obstructed & Awaiting Surgery

I am so sorry you and your mom are going through this...it is so hard to get good food and nutrition when you cannot eat solid food. However, I know when my husband was having a hard time with BM's after surgery, I used our smoothie maker and made him fruit smoothies with pure fruit and ice only, no milk, etc so he at least got the nutrients, he also had soup and crackers, a little jello, but he did love the smoothies. I don't know if that will help, but thought I would throw it out there, and let you know we're thinking of you!

 
Old 08-28-2005, 05:32 AM   #3
Junior Member
(male)
 
Join Date: Jun 2005
Posts: 40
caffiened HB User
Re: Large Tumor Found..Near Obstructed & Awaiting Surgery

When we discovered my husband's tumor, he was almost blocked. It took SO long to get things started and he was scared to eat. Homemade pudding was a big hit. I have a good recipe somewhere if you want it.

Deviled eggs - no relish, boiled eggs and fried eggs - I don't think eggs have any fiber.

We make smoothies now with buttermilk - buttermilk has good bugs like yogurt.
We didn't make smoothies when he was worried about a blockage because it still has the fiber from fruit in it. (I'm not sure if it's soluble or non-soluble fiber and don't know if some still makes it through or not, so we didn't.)
He drank lots of fruit juice.

Honey is good - it can be self-sustaining for a while.

Ice cream without nuts, cookie dough, etc.

I hope that helps.

Last edited by caffiened; 08-28-2005 at 05:33 AM.

 
Old 08-28-2005, 09:22 AM   #4
Senior Veteran
(female)
 
Join Date: Oct 2003
Location: England
Posts: 705
ktee_uk HB User
Re: Large Tumor Found..Near Obstructed & Awaiting Surgery

Dear Michelle

Welcome to the boards but sorry it is in such circumstances. It is great that you are taking the time and trouble to try and help your mum.

My first thought is that your mum should not be in any kind of pain or distress. The doctors at the hospital should have sorted this out for her by medication.

Secondly, whether the tumor is benign or not, it needs dealing with to relieve the blockage. It simply wont disappear on its own. If the blockage is severe, which it sounds like it must be for her to be in such distress with bloating, you need to get the doctors to act pretty quickly. Have you seen a specialist colo-rectal doctor? It would be prudent to seek one out now.

Thirdly, if it is malignant, I dont think the docs will be able to tell you much about whether it has spread or not unless they do more tests. It is normal to have the colonoscopy along with blood tests and a scan (PET, CT, etc). Also, if she has a v.bad blockage, they may not be able to see beyond it with a colonoscopy.

And lastly (I think !!! ), regarding what to eat. I would say a light diet of soups, soft food, etc. Anything easily digestible. Small but frequent meals.

Anyhow, hope I have added to all the info you are gathering. Good luck for your mum

regards
ktee

 
Old 08-28-2005, 06:01 PM   #5
Junior Member
 
Join Date: Nov 2004
Posts: 33
Michelle M HB User
Re: Large Tumor Found..Near Obstructed & Awaiting Surgery

Thanks, all, for your kind replies.

She had CT scan at the hospital, where they found the mass, then colonoscopy.

She is so near to complete blockage that she can only eat, as KTee suggests, tiny soft meals. Yesterday a small bit of rice pudding proved severely painful shortly afterward. (I guess rice must consist of fiber or bulk which does not pass as easily as one would imagine.)

Much later, however, a light cream of asparagus soup (strained thru a strainer!) caused no trouble.

We are to talk to the doctor Monday morning for biopsy results.

It is my prayer (and mother's) that he will move heaven and earth to get her into surgery asap. I cannot think she could survive long like this, unable to eat.

Is it wrong to think this is pretty dire?

I do have a further fear and perhaps some of you could address this: she is a recovered alcoholic and so has cirrohsis of the liver. Some 5 or 6 years ago her liver was in rather poor condition; now, fortunately, she does not drink and her liver has recovered nicely though I do not kid myself that it is entirely perfect. Would this only have an effect if there were mets to her liver? I know we told the doctor this in giving him her history and he nonetheless encouragingly spoke of surgery after finding the large tumor in the colonoscopy. I'm taking that to mean he's not too daunted by the less-than-perfect liver health.

Thank so much for being here, everyone, as I try to get a grip on all this.

Michelle

 
Old 08-28-2005, 07:02 PM   #6
Senior Veteran
(male)
 
Join Date: Apr 2004
Location: Northeast USA
Posts: 1,497
CancerDad HB User
Re: Large Tumor Found..Near Obstructed & Awaiting Surgery

Michelle:
Did they dp a CT of the abdomen and pelvis after dx via colonoscope? If so, they would have noted any liver trouble. If she stopped years ago, her liver repaired itself quite a bit I'm sure. It's when you continue to do damage, you have a problem.

Good luck!
CancerDad

 
Old 08-29-2005, 12:12 PM   #7
Veteran
(female)
 
Join Date: Feb 2005
Location: Australia
Posts: 420
Mazrose HB User
Re: Large Tumor Found..Near Obstructed & Awaiting Surgery

Hi Michelle and welcome. Youve come to the right place for info and support for what your mum is going thru..
I want to add a food supplement.. which is Sustagen.. It can be expensive but at least she will be getting the much needed vitamins etc.
Why are you worried about mets to the liver at this stage??? I too was (am) a alcoholic (now under control) and recently they thought theyre might be a met to my liver and so had a PET scan done. NO METs at all to my liver or anywhere else in my body. I know its hard, but please dont worry too much until they tell u otherwise.
I pray for a quick surgery for her.
Goodluck to you and your mum.
Take care of YOU !!!

Maz

 
Old 08-30-2005, 05:51 AM   #8
Junior Member
 
Join Date: Nov 2004
Posts: 33
Michelle M HB User
Re: Large Tumor Found..Near Obstructed & Awaiting Surgery

Thanks CancerDad and MazRose. I have been really worried about her liver because of the cirrhosis. I know it's repaired itself a LOT in the past few years but used to be in such poor condition she was actually on a liver transplant list!

They did a CT scan at the emergency room about a month ago and that's where they found the "mass." Then came the colonoscopy.

I got hold of her biopsy report yesterday.

It reads, "Tumor, ascending colon...poorly differentiated adenocarcinoma..comprised of intact hyperplastic colonic mucosa. Within the submucosal stroma are solid nests and sheets of round and oval neoplastic cells. These cells have moderate amounts of cacuolated cytoplasm and large pleomorphic vesicular neuclei. The histologic findings are consistent with a poorly differentiated colonic adenocarcinoma. Since the tumor is limited to the submucosal stroma in the present biopsy, an adenocarcinoma from elsewhere in the colon cannot be excluded. Immunohistochemical studies were attempted in order to further classify the nature/phenotype of the adenocarcinoma. CDX2, cytokeratin 7, and cytokeratin 20 immunostains were noncontributory since diagnostic material was not identified on subsequent levels."

They further found a "polyp, colon, 60 cm, tubular adenoma" but made no remarks on the biopsy further about that.

We are to go see her regular doc today to get referred out to a specialist, get set up (I pray) for a surgery, etc. She continues to do well so long as no solid food passes her lips. I have supplied her with every gourmet soup and fresh herb to liven it up known to man! The Ensure I brought her seemed to give her blockage.

Can anyone remark on the biopsy report? I know that "poorly differentiated" seems to correlate with aggressive. However, 'limited to the submucosal stroma' might be hopeful, though I realize that's just the scrap of a sample in the biopsy, not the whole thing. Also, what's the ''Polpy, colon, 60 cm, tubular adenoma' mean?

Sorry so many questions but really, truly overwhelmed; looking for any bright spots to hang onto...

Thanks so much.

Michelle

 
Old 08-30-2005, 06:48 PM   #9
Senior Member
(female)
 
Join Date: Jul 2003
Location: Casnovia MI USA
Posts: 193
giddyup715 HB User
Re: Large Tumor Found..Near Obstructed & Awaiting Surgery

CD, can you tell me what this means?

Did they dp a CT of the abdomen and pelvis after dx via colonoscope

Does that mean if the Dr. doing the colonoscopy finds something wrong with the liver (I know that they can see things there) they will order further tests, or am I wrong?

 
Old 08-30-2005, 09:51 PM   #10
Junior Member
 
Join Date: Nov 2004
Posts: 33
Michelle M HB User
Re: Large Tumor Found..Near Obstructed & Awaiting Surgery

Quote:
Originally Posted by giddyup715
CD, can you tell me what this means?

Did they dp a CT of the abdomen and pelvis after dx via colonoscope

Does that mean if the Dr. doing the colonoscopy finds something wrong with the liver (I know that they can see things there) they will order further tests, or am I wrong?
I am curious too -- can they actually visualize the liver, or part of it, while doing the colonoscopy??

Wouldn't mets be visible on the CT scan she had done right BEFORE the colonoscopy? (not micromets, obviously, but mets big enough to be picked up by CT?)

If none were found on her CT scan, could I hope reasonably that she mightn't have any?

Sorry to barrage you all with questions.

Thanks in advance...

Michelle

 
Old 08-31-2005, 04:10 PM   #11
Senior Veteran
(male)
 
Join Date: Apr 2004
Location: Northeast USA
Posts: 1,497
CancerDad HB User
Re: Large Tumor Found..Near Obstructed & Awaiting Surgery

That was actually a typo... it was "did they do a CT scan?" And this is because they can see mets to the liver, or any other supicious area if they scanned. So, if they were concerned about the liver... they would have said so.

NO they can ONLY visualize the colon upon doing a colonoscopy. I just wanted to know if we were dealing with mets or spread.

Poorly diff adenocarcinoma are the worst kind of cells... fastest growing. So, hopefully they caught it quick.

She should also have a PET scan. And they should be comparing this CT to the one previously to see if there were any changes. Also, what is her CEA? (blood level)

All my best, and don't hesitate to ask ANY questions.

Fondly,
CD

PS Tubular Adenoma 60 cm describes the tumor... it's tubular shaped, and 60cm away. And yes, if the tumor is confined to the mucosa, that's better~ limited to the submucosa rather than muscularis propria

 
Old 09-01-2005, 11:51 AM   #12
Junior Member
 
Join Date: Nov 2004
Posts: 33
Michelle M HB User
Re: Large Tumor Found..Near Obstructed & Awaiting Surgery

Quote:
Originally Posted by CancerDad
Poorly diff adenocarcinoma are the worst kind of cells... fastest growing. So, hopefully they caught it quick.

She should also have a PET scan. And they should be comparing this CT to the one previously to see if there were any changes. Also, what is her CEA? (blood level)

All my best, and don't hesitate to ask ANY questions.

Fondly,
CD

PS Tubular Adenoma 60 cm describes the tumor... it's tubular shaped, and 60cm away. And yes, if the tumor is confined to the mucosa, that's better~ limited to the submucosa rather than muscularis propria

Thanks SO much, Cancer Dad. It's unbelievable something like this could develop out of the blue in just two years since her last clear colonoscopy -- from clear to obstructed! I reckon that's what "poorly differentiated" means -- super fast growing!! I just pray that the biopsy sample showing it hadn't penetrated beyond the submucosal stroma holds true for the rest of the tumor. Haven't seen CEA levels or anything like that yet. She's doing pre-surgery blood workups today, meeting surgeon on Tuesday morning (holiday weekend preventing things happening sooner, I'm afraid).

No previous CT's for a baseline; just the one from the ER a few weeks ago when she presented with her abdominal pain which led her to her present diagnosis.

Wishing I knew more already...have a feeling I'll be asking lots of questions of you guys.

Thanks, thanks, thanks...

Michelle

 
Old 09-01-2005, 01:43 PM   #13
Senior Veteran
(male)
 
Join Date: Apr 2004
Location: Northeast USA
Posts: 1,497
CancerDad HB User
Re: Large Tumor Found..Near Obstructed & Awaiting Surgery

Michelle:
You ask anytime!!! There are SO many people on this board who want to help, and are so knowledgeable.

BTW... Histology reports, or pathology reports take a sample of the tumor... so they classified it as an adenocarcinoma with poorly differentiated cells. There are poorly, moderately, and highly (which is the best you can have). They grow faster from poorly to highly, and are more agressive likewise. The only way to tell how far the tumor went into the wall is from pathology. And of course, many times the surgeon if experienced will be able to guess. But you never take a guess... rely on the path or histology report. That shows it is in the mucosal layers still, not into the muscle or broken through beyond. So, that's good.

I wish her the best, and please keep in touch.

Fondly,
CancerDad

 
Old 09-01-2005, 01:44 PM   #14
Senior Veteran
(male)
 
Join Date: Apr 2004
Location: Northeast USA
Posts: 1,497
CancerDad HB User
Re: Large Tumor Found..Near Obstructed & Awaiting Surgery

duplicate message

Last edited by CancerDad; 09-01-2005 at 01:48 PM.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Bone tumor discovered on my proximal femur jellinger Bone Disorders 6 05-05-2010 11:41 AM
large mass/tumor on upper right thigh/hip anxietyridden09 Open to All Other Health Topics 0 10-07-2009 05:43 PM
Large Liver Tumor and cyst on kidney mssumr Liver & Pancreas Disorders 4 10-04-2009 09:16 PM
can you get pregnant when you have a pituitary tumor acdouglas Pituitary Disease 32 05-24-2008 04:58 AM
Constipation - Large Colon Disease Badluckgal Digestive Disorders 0 01-05-2008 06:57 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Aspirin
Ativan
Coumadin
Demerol
Lomotil
  Morphine
Nexium Potassium
Tylenol
Xeloda




TOP THANKED CONTRIBUTORS



WhistleDixie (7), Nassau one (4), LESLIETOO (4), gwb123 (4), solofelix (4), Daisy65 (4), JJSMITH (3), kjmiller (3), Misssty (3), ladybud (3)

Site Wide Totals

teteri66 (1177), MSJayhawk (1004), Apollo123 (903), Titchou (847), janewhite1 (823), Gabriel (758), ladybud (753), sammy64 (668), midwest1 (668), BlueSkies14 (610)



All times are GMT -7. The time now is 05:14 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!