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Old 08-24-2008, 10:17 AM   #1
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Join Date: Aug 2008
Location: Las Vegas, NV
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wifeToW HB User
folfox fatigue

Hi everyone! This is my first time posting here.
I have a question for you...
My husband just completed round 8 of folfox for
stage III colon cancer. Only 4 more to go! yeah!

My question is about the fatigue. He was awake for only
4 hours total yesterday. Poor guy is wiped out.
We have talked to the Dr. about this and she says to
get more exercise or go back to work! She just does
not understand that he has/had a super physical job and
could not work his job during this chemo.

I prod him to go with me to walk the dogs each evening
and to go with me to the grocery store and other quick
errands. It has been 106-110 degrees for the last few weeks and
the heat is really tough on him.

So any suggestions are appreciated!

wifeToW

 
Old 08-24-2008, 11:38 AM   #2
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Location: san diego ca
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backslide05 HB User
Re: folfox fatigue

hello Wife,
I saw your post and can relate; my hb went through folfox last year for 12 treatments; it wasn't easy and the fatique did get to him also. he didn't work a physical job but even so he wasn't able to work during the treatment and slept a lot some days or napped a lot. Everyone is different and for someone to say" just get out and exercise when you can't physically move your body" makes me angry! I think it is important to try to do what you can to prevent muscle weakness and even blood clots, but also important to rest when your body needs it.

Plus even feeling healthy who wants to get out and walk when it's over 100 degrees?
I wouldn't! He's on the homestretch of his treatment and he will get through it and I wish him and you the very best.
~Backslide

 
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Old 09-02-2008, 11:56 AM   #3
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wifeToW HB User
Re: folfox fatigue

Hi Backslide ~ thanks for the reply :]

We are just stunned at this point. Took hubby in for round 9 of folfox this morning. The Doctor has lost her mind!
She said to him that his dizzy spells, fatigue and shakes "are all in your head" . Do you believe that?
Ummm... do you think it could be from all the medicine she has him taking each day???!!

I don't know what kind of weekend she had, that would put her in that kind of mood today, but we are switching doctors.

My hubby is exhausted and now very mad. Anger is the last thing he needs at this point.

I hope we find a more positive Doctor to help him through the last of these treatments.

:] Wife

Last edited by wifeToW; 09-02-2008 at 11:56 AM.

 
Old 09-02-2008, 01:03 PM   #4
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Join Date: Apr 2006
Location: san diego ca
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backslide05 HB User
Re: folfox fatigue

Hi again,
I think it's good that you are switching doctors.
There are plenty of good ones out there who treat the person as a whole and not just a disease.
What meds is he on? some of the meds like anti-nausea medicine can cause fatigue, and other symptoms. He's getting so close to being done that I encourage you both to keep hanging in there and soon you'll be looking back on this --Just keep the faith.
Backslide

 
Old 09-02-2008, 11:56 PM   #5
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Join Date: Aug 2008
Location: Las Vegas, NV
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wifeToW HB User
Re: folfox fatigue

Thanks so much for the support! It is so nice to hear from someone who has been through this :]
We made an appt with another Dr. for Thursday. We really want someone who is in a POSITIVE frame of mind and is a "coach" for him and who listens to what he is saying.
I think a good attitude has so much to do with recovery!

He has Lyrica for the neuropothy, celebrex for pain, etc...
2 meds for nausea ( which he never takes - not needed ).
He takes as little medication as possible -he is not a pill taker at all.

:] Wife

 
Old 09-03-2008, 05:06 PM   #6
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Join Date: Apr 2006
Location: san diego ca
Posts: 461
backslide05 HB User
Re: folfox fatigue

Wife-
I'm glad you've got another doctor lined up, it is very important to stay positive and have positive support, and that does make a huge difference so that's good to hear.

I hope his neuropathy isn't too bad. my HB is on disability due to severe neuropathy he developed after the chemo. He's taking neurontin but also tried Lyrica for awhile. Both those drugs can also cause drowsiness and fatigue, but nerve pain isn't something easy to ignore. Hoping it will soon be over for both of you and you can get on with your life.
It's a different life but still good, and each day is one you'll treasure, I know I do!

 
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