It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Cancer: Colon Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 02-04-2009, 09:14 PM   #1
Newbie
(female)
 
Join Date: Feb 2009
Location: California
Posts: 8
choosethisday HB User
Iliostomy reversal surgery - what should I expect?

In three weeks I will have surgery Four mos. ago I had most of my rectum removed, but the resection had a leak so I had an emergency iliostomy in order to allow my resection to heal, and to remove all the infection. The week between the two events I had lots of diarehia and a sore bottom. Is that what is normal, and what I should expect when my I'm put back together? On one hand I am thrilled to get rid of my bag... but then I have some fear of pain in the future.

 
Sponsors Lightbulb
   
Old 02-10-2009, 06:18 PM   #2
Junior Member
(male)
 
Join Date: Mar 2008
Location: canada
Posts: 15
lowdog9 HB User
Re: Iliostomy reversal surgery - what should I expect?

Hey there I had a ileostomy reversal after battling rectal cancer back in November at the age of 27. If you are wondering what to expect I will let you know but keep in mind everyone reacts differently to surgery so I can't say you will experience the same. The surgery itself is fairly minor and I tolerated it well. Expect many bowel movements to begin with. For the first month after the reversal I had an urgency to go after every meal I ate. Usually I had multiple movements because the amount of stool evacuating was so small. I also experienced a lot of acid in my stool for the first month and a half after the reversal. This was painful and seemed to be made worse by eating greasy and fattening food. Over the last couple of months (its been a little over 2 months) I have noticed improvements in the number of bowel movements i am having. I no longer have painful movements and my stool has more bulk to it. I suggest you stock up on Immodium or its generic counterpart to help combat loose stools. I have switched over to a fibre supplement and am slowly getting the number of movements I have daily reduced. Good luck if you have any more questions don't hesitate to ask.

Last edited by lowdog9; 02-10-2009 at 06:46 PM.

 
Sponsors Lightbulb
   
Old 02-11-2009, 08:35 PM   #3
Newbie
(female)
 
Join Date: Feb 2009
Location: California
Posts: 8
choosethisday HB User
Re: Iliostomy reversal surgery - what should I expect?

Thanks for replying. I actually had two weeks of life before the iliostomy, after my surgery. I was bottom sore, and had frequent BM's - so I guess more of that - it was pretty painful. How about at night? I am hoping to finally sleep through the night? Do you have to get up often?

 
Old 02-19-2009, 08:41 PM   #4
Junior Member
(male)
 
Join Date: Mar 2008
Location: canada
Posts: 15
lowdog9 HB User
Re: Iliostomy reversal surgery - what should I expect?

Not very often at all. After the first couple of weeks I have been able to sleep relatively well. I still wake up to go the odd time but not very often.

 
Old 03-13-2009, 09:14 PM   #5
Newbie
(female)
 
Join Date: Feb 2009
Location: California
Posts: 8
choosethisday HB User
Re: Iliostomy reversal surgery - what should I expect?

I'm now two weeks out from my reversal, and it has been difficult. Realized I had a stricture at my anastomosis in my rectum. But I'm having 15 - 25 bm's a day/night... it fairly wears me out. But at first nothing would pass because of the stricture. But that has been massaged a couple of times to widen it. Not a huge improvement, but at least I'm passing something. My surgeon gave me a three week "off work" note. That means I'm supposed to go back to work in three days. I can't imagine! What did your doctor give you?

 
Old 03-31-2009, 06:25 AM   #6
Newbie
(female)
 
Join Date: Mar 2009
Location: Ayrshie, Scotland
Posts: 1
mogg HB User
Smile Re: Iliostomy reversal surgery - what should I expect?

SHOULD I HAVE A REVERSAL? I CURRENTLY HAVE PAIN FROM FROM MY RECTUM. SEEMS TO BE RELATED TO PASSING MUSCUS. IT FEELS LIKE SEVERE SPASMS. THIS HAPPENS SEVERAL TIMES A DAY BUT MORE OFTEN AT NIGHTMY SLEEPS IS FREQUENTLY DISTURBED .i've had an iliostomy for 14th months now due to colon cancer, MY CONCERN IS THAT I HAVE M.S AND HAVE SOME BLADDER PROBLEMS AND FEAR I MAY BECOME BOWEL INCONTENANT CAN ANYONE ENLIGHTEN ME

 
Old 03-31-2009, 11:40 PM   #7
Newbie
(female)
 
Join Date: Feb 2009
Location: California
Posts: 8
choosethisday HB User
Re: Iliostomy reversal surgery - what should I expect?

Wow, 14 mos. seems a long time to have the iliostomy. My doc said that 1 - 5 mos was the norm. But I don't know the reason you needed one. You said colon cancer. I had that too, but then I developed a "leak" where they stapled the two ends of my colon back together, and had a bad infection, that's why I was given the iliostomy. I was very anxious to get mine reversed - and am glad I did... but it has not been "normal" yet. I have 10 - 25 bm's a day. Some times I have a very sore bottom. But, in the last couple days, I am seeing some improvement (it has been a month since the reversal). I don't mind walking this path; I believe I will reach some sort of new normal that will be tolerable. But I would think that passing mucuous is a good sign of a healthy colon - one that's ready to do the job. I can't speak to the MS issue. May God grant you the wisdom to choose the right thing.

 
Old 04-04-2009, 07:30 PM   #8
Junior Member
(female)
 
Join Date: Jul 2008
Location: cary,nc,usa
Posts: 45
denise1956 HB User
Thumbs up Re: Iliostomy reversal surgery - what should I expect?

hello. i had my ileostomy for 15 months due to several problems. i had my reversal 7 months ago. i have been improving over the months, but it has not been easy. i have had cronic diarrehia, anal fischures, and stricture. i have tried many medications. medimucil really helps. but..(butt?)...it is all better then the alternative and i am very thankful. it is a slow process. but...as i said, it is getting better and i am thankful.
peace

 
Old 04-06-2009, 11:05 PM   #9
Newbie
(male)
 
Join Date: Jan 2009
Location: Palmerston Nth, NZ
Posts: 8
Jeggles HB User
Re: Iliostomy reversal surgery - what should I expect?

I had colorectal surgery last year, an illiostomy bag for several months and then a resection in November last year. I am only now in the past few weeks at the stage where I have the confidence to go far from home due to fears of being 'caught out' with no warning and a degree of faecal incontinence. Currently I don't have that now as things have improved but I still only get minimal warning as food now moves down thru the colon much quicker. When I do have to 'go' I may go a number of times over a period of a few hours and then be OK for 12+ hours. It seems to have been a long slow process but there are signs of continuing improvement and I would hope you experience progress as time goes by. The colon is very sensitive to disturbance I am told so having had a traumatic interference with its normal function I guess what I have experienced could be expected.

I have found a product called BowelBiotics by Lifestream a very useful product in aiding digestion, forming proper stools, eliminating odour and generally improving the bowel environment. I don't where else it is available besides New Zealand.

I wish you all the very best going forward.

Last edited by Jeggles; 04-06-2009 at 11:07 PM.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
ileostomy reversal Cat Az Cancer: Colon 20 07-11-2010 02:07 PM
Bowel problems after reversal surgery ksd55 Bowel Disorders 1 08-06-2009 09:34 AM
Reversal Woes gocatsgo Cancer: Colon 13 06-20-2007 04:24 AM
HIV/Aids Reversal jeffreyp123 HIV Prevention 81 05-17-2007 01:54 PM
Illeostomy reversal after about 10 months. tahb Cancer: Colon 3 04-24-2006 01:04 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 03:21 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!