I have Polyplastic Polyposis Syndrome. What does it mean?
I have just been diagnosed with Polyplastic Polyposis Syndrome, and I don't know what it means! I asked the diagnosing doctor a few questions not realising it was so uncommon. I haven't been able to find a definition on google, in libraries or anything, andI can't get into contact with my doctor as he's too busy. Does anybody know a thing or two about this condition? Anything at all?
I'm only 23 and just had my first colonscopy. I had no less than NINE polyps removed. My doctor has diagnosed me with Polyplastic Polyposis Syndrome, which I think basically means I have a high tendency for developing these precancerous polyps. So I will have to have repeat colonoscopies every 1-3 years to have the polyps removed, or alternatively have the whole colon removed. I am an otherwise fit and healthy guy, so i really can't understand why I would be getting this, and why so many polyps.
The reason I had the colonoscopy done in the first place is because I have abdominal pains and no amount of specialists, testing or medication seem to do anything about it. While I was lucky that the colonoscopy found the polyps, I still have no idea what the cause of my pains are. My doctor has diagnosed me with Irritable Bowel Syndrome (IBS), which is basically the doctor saying he doesn't know what it is. I get the pain a few times a week and I am in fair amount of pain unless I lie down for an hour or so. Because of this reason, it has been very difficult to hold down a steady job without having to always go home sick.
I discovered recently that tap water aggravates my pains, and since then I've been drinking only bottled water, but tap water ice and boiled tap water are fine, which makes me think it is a bacterial problem. If I have so much as a lass of tap water, about half an hour later I will be writhing in pain that will last for hours.
If anyone has any idea about this, then please let me know.