Been awhile for all. Just want to say hello. Has every one got some half way decent weather ? Its been nice this weekend. I have over done though. Oh well got to get back into the swing of things.Summer is my favorite time of year. Especially here in NY.
Dad and Mom will be returning in a few short weeks. YIPPY. I know it will mean some work though. Dad has been feeling pretty good lately and is looking forward to coming back home. Although he really likes his doctor there. I have made him an appt. with a new doctor so we wil lsee how things go. The doctor there states he is STABLE !! Awesome news.
We all have to face this like we are NOT dieing from cancer but living with cancer for as long as possible. Best wishes to all.
The news here has been rough.Stan's one older brother has had heart problems and now it seems he is finally getting better, then his oldest brother is in the hospital in Chicago not doing the best , he got liver disease and diabites and really having a bad time.
My dad went to the emergency room yesterday with possible annerysem. He does have an annerysem but it is small so they have admitted him into the hospital for further test to see what may have happen. He had an episode where he couldn't tell by sister what was wrong, he was studdering and short of breath and he just kept saying he didn't feel good but couldn't tell her why.
Then on top of all this Stan's side effects are back , the bledding is back and the burning but both are worse this time. We talked alot today off and on and I know he wants to quit the chemo pills and he doesn't want to quit but I had called his dr. today and she told him to stop taking them. He goes on the 23rd of this month for his CT scans and we find out on the 25th what the scans show.
I am thinking of everyone and wondering how all is going so keep me informed and pray and I will pray for you all also.
Yes the weather is wonderful. 80 degrees today. I came home and after supper mowed.
Sorry to hear all the things going on there. I send you wishes for all to feel well soon. I know how tired you may be. I hope you are getting your rest too.
Heres that all is well with you too. I myself have been having some stomach issues and well still tring to get to the bottom of them. I hope it will be soon.
Dad and mom will be heading back soon. So I will be real busy with in the next couple weeks. Dad has an appt with a new doctor .So in between mine and his it will seem like alot. I will post again when I can.
Just want to let you all know I am thinking about you as always. Please know that.
Last edited by lilsis1071; 04-12-2008 at 02:45 PM.
Stan is finally starting to feel better after being off the chemo pills for 11 days. He is starting to go out more , laugh more , and eat better. Amen to all this. The chemo is just not worth this.
He goes have Ct scans of his brain, chest, and abdomen on Wed. morning and then we find out the results on Friday.
I hope this note finds all doing as good as can be expected.
Where is every body at??? Busy becasue of the pretty weather we have been having?
Right now it is raining here and we are suppose to have rain tomorrow with possible flooding.
Take care and love and prayers to all. Mary Jean
How are you and Stan ? How are things going now that he is off the meds?
Let us know how his test turns out tomorrow.
Mom and Dad started there journey home this morning!! YIPPY I can not wait to see them. It wont be until Sunday though. Dad goes for his first appt with the new doctor on Wednesday the 30th. I can not wait to see how that goes. It will be a long afternoon as we have to travel a couple hours to get there.
How is every one else doing? There hasnt been much activity here lately. Hope as is well with everyone.
Thoughts are with you all.
The chemo never helped Stanley. The ares on his liver are slightly bigger and the are on the spine is still there. There will be no more treatments or test and he is being refered to Hospice. The dr. stated he has 2 months to maybe 1 to 2 years. There is just no way to tell how fast this will go.I am a mess and so is he.
I am sooooooooo glad you are getting to see your dad, treasure every minute.
Love to all... Mary Jean
I am sorry to hear about your husband.
My husband is also under hospice care and it is so sad and hard to deal with.
He is still taking the vitamin C infusions and I see that he feels better on the days he has them. He has refused to go as much as the doctor wanted him to and I'm upset about that but I have to respect his decisions.
I would encourage you to find a MD that does some alternative treatments and have your husband try the vitamin C. If you search that you can see that there was success with renal cell carcinoma. I wrote the information on that doctor in Fairfax, VA on the other thread but if you need that info I will find out again.
I hope you will find some peace, one day at the time.
Thank you so much.
Stanley doesn't want any other treatments and I respect that BUT it isn't easy.
I work for hospice so I do understand what it is all about, but in this sityation it is almost worse because I do know too much. I am a CNA with hospice. I have been for now 3 1/2 years.
Stanley is doing so good now but I also know that can change in a blink of an ey .Mary Jean
I just want to let you know I am thinking about you and Stan at this time. I know that it is extremely hard to decide what to do. However I am with you and Stan with the decision to do whats best for him at this time. I am sorry things havent worked for him as far as the treatments. It has to be so frustrating.
All I can say is you will be in my thoughts more and my hopes that things continue to go well. I will see my father today for the first time in 6 months and I know I am going to hug him like theres no tomorrow. I have missed them both extremely and when I chat with all of you it makes it even more difficult. I just wish there was more out there to help those with this disease.
I have also been real worried about Jackie and Keith as its been a very long time since her last post. I hope all is well with them. I think about you all often and it has been a great pleasure chatting with you all. I hope to continue that. I will be here when you need I just wish there was more I could do. Ellen, I hope all is well with you and Hubby too.
Hey all. Its been a while since I said Hi. I am still without solid answers, but closer anyways. Having to go the charity care route nothing is done quickly. They found suspicious areas in my bladder now also, and sent stuff to cytology testing. Had the CT with contrast for my left kidney, and found three areas that reacted with the dye, plus numerous kidney stones. So, see the Urologist again next week. Guess I'll go from there. Strength and health to everyone out there. Remember, every day is a blessing, thats why it's called the present. xoxo. Mary
Hi everyone. Hope this finds all in good spirits and health.
As of last Tuesday Stanley is now officially a hospice patient.
He is feeling good and still working so I can't really ask for anything more.
I will try to keep everyone informed as time goes on but just don't know how often.
Mary I wish you God's peace and health. Please let us know what you find when you can tell us.
Wendy I hope you are enjoying your parents being here with you right now
Ellen how is your hubby doing? I hope he is feeling good.
And to everyone God Bless
Love Mary Jean
I really am lost for words. I just want to tell you that you are always in my thoughts. Please let Stan know the same. I hope for you both that things continue on the good side for as long as possible.
Yes it is nice having mom and dad back. However since they headed to camp I dont see them as often. I have NO car. It really gets to me too. Not sure if I had one I could afford the gas to get there either! Its a real crazy world these days.
To all the rest of the warriors I hope all is well. Posting on this board has been slowly getting non existing. I know life is busy and well its hard sometimes mentally to bring ourselves here. Just remember we are all here for support and strength. So when need be I will be here!!
Hi Mary Jean,
Thank you for asking about my husband. He is doing ok but occasionally we have a hard time with pain control. He is taking quite a lot of narcotics and that makes him sleepy, but he is still here and I'm happy about that. The hospice nurse just left and said she does not think he is near death, but I know that can change without warning.
It is very hard to watch him deteriorate slowly. I try to keep my mind busy with what I can do to help him feel more comfortable, but I've been breaking down sometimes. This is the hardest thing in my life.
Hi to all
We are doing ok. No major problems except being way to busy so staying tired. I also know a part of that is from depression.
Hope everyone is doing as good as can be expected.
I pop in every once in a while to hear new news and there is hardly a peep out of anyone, so........ to all God Bless and I am thinking of all!!!!! Mary Jean
Update on Dad. He went and met with yet another doctor today. Trying to find one he likes as his doctor before just wasnt looking at it as trying to live with cancer it was more like your dying with cancer. Not the type of doctor to keep you pushing on.
Anyway all is well and dad really liked this new doctor. He states from his last ct-scan and bone scan on 5/5/08 all is stable!!
We do however have to keep an eye on the bone mets in the pubic bone and in the right femur. In which the femur area is somewhat new this year. Its not to bad as of yet and as long as it is not causing him pain all is well.
Dad is to continue with the 37.5 sutent as it seems to be holding it for now. When it should show progression then there are other medications to try. Until then continue as he has been. He will get another scan in three months ct and bone.
Hope alll is well with you all and my thoughts and prayers are with you all.
Just a quick note to let you know that my husband is entering the final stage to transition.
I wish you all better luck than I'm having and that your loved ones won't endure the suffering my husband has gone through.