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Cancer: Kidney Message Board
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Old 04-03-2012, 12:24 PM   #1
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Join Date: Apr 2012
Location: waterford ny united states
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von hippel lindau> testing for my kids

i need help with finding out how to get my medical records from my youth to determine what mutation the doctors would look for in my children. i was told today (lol) that i in fact had been tested as a child.......... i was never told i carried the gene for von hippel lindau ( VHL ). i found out in 2009 that i had cancer VHL since then i have had a 3rd of both my kidneys removed and my left adreanal gland.

 
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