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Cancer: Kidney Message Board
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Old 04-25-2012, 11:59 AM   #1
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funkymonkey78 HB User
Stage lV Renal Cell Carcinoma, Interleukin 2 therapy anyone?

My husband was diagnosed with stage 4 kidney cancer. they removed his left kidney and lymph nodes around it. It has spread to two lymph nodes in his chest. The original plan was to go in and excise those as well then go on medication to reduce the chance of recurrence. Since he is so young (34) they want to try a more aggressive treatment of Interleukin 2 therapy and a facility in Chicago. Does anyone have any experience with this drug? I know the chances are slim but there is a chance of a total cure. I have a lot of faith and I know miracles can happen.

 
Old 05-18-2012, 10:20 AM   #2
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Shell667 HB User
Re: Stage lV Renal Cell Carcinoma, Interleukin 2 therapy anyone?

Quote:
Originally Posted by funkymonkey78 View Post
My husband was diagnosed with stage 4 kidney cancer. they removed his left kidney and lymph nodes around it. It has spread to two lymph nodes in his chest. The original plan was to go in and excise those as well then go on medication to reduce the chance of recurrence. Since he is so young (34) they want to try a more aggressive treatment of Interleukin 2 therapy and a facility in Chicago. Does anyone have any experience with this drug? I know the chances are slim but there is a chance of a total cure. I have a lot of faith and I know miracles can happen.
I'm so sorry to hear about this-- Move fast! Stage IV there is no time to think! do all you can-- I lost my Mother that had just turned 60 she was told she was in Stage IV June 22nd 2011 and they gave her 3-4 months we tried everything!! she passed away Dec 11th 2011---It was so hard for me to watch the suffering.

Keep the faith! I know about this drug and saw something about it on You Tube and a MAN OVER CAME his Battle and he was also young.

God Bless you!!
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Old 05-18-2012, 10:39 AM   #3
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Re: Stage lV Renal Cell Carcinoma, Interleukin 2 therapy anyone?

we got a second opinion and we are not positive it has spread outside the kidney area. his next CT scan is in week...if the nodules in his lungs grow or the lymph in his chest area we will know its cancer and procede with the therapy.
I am so sorry for the loss of your mother.
thank you for your response.
God Bless you too!

 
Old 05-19-2012, 01:26 PM   #4
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simba1995 HB User
Re: Stage lV Renal Cell Carcinoma, Interleukin 2 therapy anyone?

Hi,

I'm in a very similar situation to you. My husband was admitted to Accident and Emergency in Feb this year with chest pains that turned out to be muscular. Following tests he was found to have several nodules on both lungs. A CT scan revealed to our total shock that he had a huge tumour on his right kidney. He had no symptoms at all other than general tiredness which we put down to work. He had the kidney removed a few weeks ago and we go for another scan on monday to find out if there are any changes to lungs. We met oncologist last week and she said that Interleukin 2 is probable going to be the best treatment option for him. I'm very scared as he's only 43 and we have four kids to think about. Have you been given any idea about likely prognosis?

My thoughts are with you xxx

 
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Old 09-04-2012, 11:28 AM   #5
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PoppyDoug HB User
Re: Stage lV Renal Cell Carcinoma, Interleukin 2 therapy anyone?

I was just informed by way of letter with blood results that I have stage 3 Chronic Kidney Disease. The VA has not even set up a follow-up date to talk with me about this. I am going to a kidney specialist in town really soon. Am not thrilled about the prospects of dialysis or transplant. But am taking one day at a time. Your husband is young with a long life ahead of him. Get his treatments as soon as possible. I will put him on our prayer list. God knows who he is.
Have a blessed day

 
Old 09-04-2012, 07:17 PM   #6
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Missy1223 HB User
Re: Stage lV Renal Cell Carcinoma, Interleukin 2 therapy anyone?

Quote:
Originally Posted by funkymonkey78 View Post
My husband was diagnosed with stage 4 kidney cancer. they removed his left kidney and lymph nodes around it. It has spread to two lymph nodes in his chest. The original plan was to go in and excise those as well then go on medication to reduce the chance of recurrence. Since he is so young (34) they want to try a more aggressive treatment of Interleukin 2 therapy and a facility in Chicago. Does anyone have any experience with this drug? I know the chances are slim but there is a chance of a total cure. I have a lot of faith and I know miracles can happen.
My husband was diagnosed with renal cell carcinoma in 1989 at the age of 49. He also had three metastasis in his lung. His right kidney was removed. We lived in the Chicago area and his oncologist had once worked at the National Cancer Institute. He got him an appointment there to see if he would qualify for their experimental treatment. He was accepted and for the next year, he made several trips spending three weeks there at a time. He was treated with Interleukin 2 and alpha interferon and given Lack cells. The treatment was brutal but when they gave him the first two simultaneously, he went into an Alzheimer's-like state. The doctors told me he may not recover but he did. They released him saying there was nothing more they could do.

The treatments did get rid of the three metastasis in his lung. He lived 9 years with five of those years being stable as the doctors said as they would not say he was in remission. We felt that his treatments at NCI did help him.

I am certain that much more is known now about this disease and treatment. Do all the research you can and get the best possible doctors you can find.

Best wishes.

 
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