Thank you for keeping us in your prayers! I take such comfort in that.
Clint is now in remission (although they never said that) we now do the wait thing.. and in the mean time keep busy with 'living life'and doing what we CAN do.
He still hurts allot, still takes oxycodiene and tires easily. They did find another spot in the lower part of the half lung they removed. Last CT the size hadnt changed. We make it a point to use each day to its fullest. Although this has all been life changing for us, I often wonder if I would have ever viewed life and how precious so many things are had cancer not knocked at our door??
I beleive all things work together for the good of those who love God, ( I never said I liked it though) and this is a lesson I guess he felt I would need to master before I move on from this "preschool" to the highschool..... *grins*.
Renee and Scott have been in my thoughts so much latley, the final moments are truly the hardest. Thank you for the note of carring.
I think it is amazing how much you and Renee have helped each other and a host of others on these boards. I think of you two alot and check the boards often for updates. How big is the spot on his lung, I am dealing with a thoracotomy in the very near future. Listening to the boards takes me back to when I was going through this with my mother and father, how I wish that I had this place to come to for information and insperation. I pray that Renee can find some peace, there is never a "reason" for any of this, they say it all been worked out and we have no control that you need to turn it over to God, he is charge. I pray that Clints remission continues, how bad was the thoracomtomy how large was his tumor that they removed, if you do not mind me asking?
I dont mind, it was aprox the size of a golf ball (little bigger), with it having some spread into the trach area, and one lymph. His cronin (spell?) was also involved. It was a 10 hour surgery.. (including recovery time till transfered to ICU). His inscision ran 11 inches on his right upper back area.(along the rib cage) They did not have to remove any bone. He did loose allot of blood. And also after being home 3 days had a 104 temp he had 3 different infections so he had 2 powerful antibiotics.. after 3 days he flet so much better. Hospice pops in on and off they are such a help. His new growth is aprox the size of a marble. In his right lower lobe. We have used many things to keep his health up.... boost,liquid vitiamans,relax music, laughter.
When do you have surgery, and what is it you have to have done? Ill be praying for you , and Im sorry. I hope you have others who are thier for you. Know you can always come in here and thier is so many kind carring people who will be thier to respond. They have all 'filled ' me in my times of need. God bless. Mattie
I have been sick since memorial weekend, weak and tired, horseness, cough, the cough often ends up choking me causeing me to vomit. After about 3 weeks finally one of the doctors on base got all my test results out and looked at them and she was the one that noticed a spot on my lung. It had been missed by three others before her. Cat-scan reveled the node, small only 4mm not fesable needle biaopsy. I waited 6 weeks and they took another cat-scan and found two more had popped up with two more leasions on my left kidney. The surgeon that had told me I should wait and see was now telling me he recommends the surg it was sched for 9 Sept. I was admitted and taken to the operating room, they put me under but they could not get the lung tube in because of my throat the way it is made, they canx the surg. I woke up in the recovery room just sure I would finally have some answears and I found out they could not do it, needless to say I was devistaed. The surgeon wanted to referre me to a larger faciality that is prepaird for this type of thing, I think they should have looked before they leaped but thats just me. So right now I am dealing with the militart retired insurance and its a hassle. I am still horse, there is something in my throat I have been telling them from day one something is wrong or in my throat. I am going to call agiain today to find something out, I do know instead of sending me to Baylor Hosp in Dallas they are sending me to a military hosp in San Antonio. Who knows the doctor their may not think surg is needed. I am worried also because of a family history, mother, father, grandmother.
I am sorry for rambeling on, I have found so much strength and compasion in yous and Renees posts I just felt compeled to write.
Well you certainly have been put through allot, and then to still not know what lies ahead of you, you poor thing, Man...Sometimes I think Dr's forget how afraid of the unknown we feel, and how days can feel like months.
How old are you chazz? Can you afford to go to other Dr's outside of the millatary?
Please do try to keep a positive outlook, this nodule may be begin, and thier may be pressure causing the throat problem, or several other things. We are all here for you. Although hard, try to rest and take of you. I will be praying for you.... Mattie
Last edited by Lady_J_1_01; 09-17-2004 at 07:42 PM.
I am 47 years old, I try to keep my spirts up but all this red tape makes me just feel like I want to give up and say the heck with it. My wife is the only thing that keeps me going sometimes. She refuses to let me get down or too obsessed with whatever is wrong with me. Without her I would be nothing. I just read Renees post, I feel so bad. Hope everything is ok at your end.
You have much to be thankful for Chazzz... she can be your strength in hour of weak moments, my mama use to say "If you have ONE person who cares..you have it all!"... then she would say, and ya know ya got me!and she would give a lil wink.
You have many in here, and also one by your side. It may be a long haul, but never forget Your worth it all.. You have been through many struggles already in your life, and Lord knows each one dosent make it any easier...
butcha know, we can turn our scars to stars, and unknowingly be a glimmer of light for another. Like Renee,Tjr, sawbuck and others in here, who reach out and take the time even in thier saddest moments to put anothers needs or hurts before thier own.. and offer, share, jot a poem, a thought,a prayer, The human spirit and love for others.... still thrives. As proven here.!!
I will continue to pray for you and that youll find direction to the best dr. I also pray God will give these Dr's wisdom to Dx you, and treat you.
I know comming in here, reading, sharing,trying to learn from others about cancer, what to expect, has gotten me through many what would have been sleepless nights.. to know right now, as I type thier are others praying for me, and know my needs, and also know what I am or may go through in the future... Because in some way cancer has or is in thier life also.
I thank God I have been blessed to have found this circle of hope. I will keep in touch. Take care of you!! Mattie
Thanks for the words of encouragement, I almost feel selfish complaining about my situation when there are others that are in this a lot deeper and in more need of prayers than I am right now. I did finally get through to my ENT and am finally going to get a CT done on my throat. I have had a throat constriction feeling since all this began around memorial day. The doctor that I am being referred to wanted to talk to the sergeon that could not do the surg for some reason, we are hoping that it gets taken care of quickly, we are now going on 5 months since all of this started. My father was diagnosed in Nov and passed away in July, so I know how time is very important. One problem I think we have is I do not nessessarily have a main doctor, I have three specialist that are each looking at different things, no one is taking all this information and putting it all together. It gets so frustrating. Sorry I just seem to come on here and vent, not helping but complaining. I do pray that God puts his arms around Renee, her battle is far from over. Thank you for your encouraging words Mattie you are a very special caring person. As I have said before for someone to reach out to a total stranger is a rare gift.
Greaaat! Im happy to hear the ball is rolling... I understand the confusion, about the right hand not knowing what the left is doing.. we have had that happen too, and also "methods' of treatment each chooses or suggests is different *sigh* We just get confused, at times its like drawing straws... I come in here also and vent, I figure those who write back really want to lend a hand. Makes this a special place 4 me. Please do keep us posted with what your tests show! Ill be rootin for ya (grabs her pom-poms). God bless. Mattie
Just a update, I got a call from the doctor that is in charge of surg at the hosp I was referred to. He had reviewed my records and wants me to come their for a full work up. After that they take all the results before a tumor board. I guess on the board is a oncologist, a surgeon, radiologist and so on. They then come up with a plan of attack, surgery, treatments or whatever. He did say that with these spots poppin up all over that surgery might not be a good choice, you cannot open someone up everytime a new one popps up. He said after reviewing my records if it was cancer it would be stage 3b and surgery is not an option at that point. The key is getting all appropriate tests done for a definitive diagnosis. I do not like the sound of this 3b so I am praying that it is scar tissue or something like that on my lung and kidney.
Well Im glad someone seems to have your best intrest at heart.!! The sooner the better... will they do a series of chemo first (they did with Clint)... Clint WAS diagnosed with 3b... then they went ahead with the surgery and then placed him at 3a?? I was so puzzled, still not understanding all this...Then after a month of healing after his lung surgery they proceeded to get him 'tatooed for radiation' then the Dr. in charge read his chart and said I dont feel you need it..
Now.....Last Friday we went in and the Dr. said the spot in his lower right lobe hadnt changed, and they are not concerned about it...they did lab work and although he is still on oxycotton, and in pain on and off, along with being tired.. released him to go back to work. The Dr. said he will need OT before returning to work...I asked the Dr. is he now in remission? he said no as far as we are concerned he is cured!!! I almost fell off my chair. I never heard of such a thing... I was elated...... I never would have thought having 3b then 3a cancer would become cured?? I feel confused, and happy... and yet a little aprehesive waiting for the other shoe to fall off.... I wonder if others have ever heard of this scenario?? I will be praying chaz that the Dr's will have great knowledge and knowhow to do right by you. Mattie
That is such great news you hardley ever hear the term cured in regards to this illness. I am very glad that someone is taking the charge here. The doctor told me I have all these specialist working and no one is taking the info and processing it, he said I needed a quarterback so to speak to take over. I am feeling bad today, is it unsual to have a couple of good days and then get knocked on your rear??
Chazzzz.... Buckle up! I Know This ride is bumpy... I hope someone starts to run with the ball for you because time is so very important. I can feel for you concerning 'bad' days... we started to use the term 'tokens' and adjusted accordingly as to how many he had to spend on any given day.
Have they said if one of them will start the chemo first to shrink it some before surgery??I know at times I felt like I was dealing with the "marks" brothers... *pretends to do the cigar to the mouth thing*.... I call the "team' the dream team now.
Do keep pushing them back in the ring! I called allot to see who knew what.. and pin point a date to start the chemo etc... I would go in with a list in hand, (sometimes to a sigh and eyeroll) but I got every penny worth of info I could each time before leaving.
Thats why I was so confused about this CURE statement... I though it to be a bold (possibly deceiving) word... But Im the new kid on the block, *shrugs* and maybe they now call it cured... So Ill hold it 'with care' and be thankful for where we are at now. Keep me posted... Mattie