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Old 11-26-2004, 12:40 AM   #1
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lemichele HB User
Hope

Hi all,

Most of you won't remember me, but I posted on this board nearly 2 months ago. My mother was in the hospital for a "routine" procedure to get rid of the fluid around her lungs. It caused shortness of breath - the only symptom of her stage IV lung cancer. A couple days later, they gave her 2 days to 1 week to live. It was awful, and that was when I posted on this board.

2 months later and my mother has just passed. They gave her no more than a week to live, and she lived for 2 months. In those 2 months, we kids got to hang out with her, tell her everything we ever needed to tell her and she was able to do the same. We had hospice in to help, but after about a week, she didn't need them. She was first on morphine (not for pain, she never had any pain - it helped relax her breathing) and anti-anxiety drugs, and a whole slew of others (I was the one who administered drugs). After about a week though, she got off everything. She was perfectly coherent to the end, and never "out of it". We were able to go through all her possessions and she could tell each of us who should get what and the story behind her things. I know it sounds morbid and hard to do, but I urge everyone here who is dealing with terminal cancer to do this. It gave Mom such joy to tell her kids why things were special to her and for her to know which one of us got them for those reasons. She invited everyone who ever meant anything to her to come visit her and they did. She planned her memorial service, which was the most wonderful thing - she worked for the police dept and had the full honor roll (bagpipes, drums), and even a band to play - one she loved. We never have had any doubt that these things weren't done without her being completely sastisfied with them.

I had a gift of 2 months with my Mother I didn't expect. No one did. We had plans through New Years. When she passed, it was one of the only times I wasn't by her side. I know she planned this. She didn't want me there - didn't think I could live with it. It came suddenly, and she told my brother who was there that she wasn't scared. She said this over and over. She talked with her mother who had passed also, and went very calmly, and at peace.

I hope you don't take this as morbid. If you are terminal, or have someone who is, know that this can be more than just sadness. We were blessed by having Mom longer than the docs would give her credit for, we were blessed by knowing she had heard everything we needed to say, and she was blessed by knowing we had heard everything she needed to. I miss my Mother terribly. She was my best friend also. But I am so happy we go more time together. If you get this gift, don't waste the time with sadness - rejoice in every minute you have.

Here is my original message - just so you know the state of mind I was in when it seemed hopeless, as opposed to how I feel now. I hope it can give you hope.

Good luck - this is not an easy thing, but you CAN make it bearable. Here's the original post...

"I'm sorry to jump this to the top, but things keep going downhill - the docs say there is nothing more they will do - basically, they are letting my mother suffocate to death. They are giving her a few days to live....I'm sorry to put it so bluntly, but I feel so helpless right now...my Mom is my best friend and Mother... I call her everyday just to ask how her day has been, and I can't imagine not being able to do that anymore. I'm only 28 years old, I still need a Mom. I'm engaged to be married, and I can't envision walking down the aisle without her to give me away... And I can't believe that there isn't someone out there who hasn't had this happen from their personal experience with lung cancer, and I will not allow them to just give up. There has to be something else we can suggest...Please, has anyone had this symptom? Are there any other treatments besides a chest tube??

Again, I know all posts are important, but time is running out on my Mother - it could be days at the most...."

 
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Old 11-26-2004, 07:55 AM   #2
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mimirea HB User
Re: Hope

Ok, I'm crying now. I am so thankful that my husband found this site for me. My mom was given 4-6 months (she has lung cancer) 16 months ago and we are going to lose her very soon. I am trying very hard to find a positive in all of this, most times I am sure it is more than I will ever be able to handle. Everyone keeps telling me how lucky I am to have had the time to say what I need to say and for her to say what she needs to say but I feel like I have been mourning her loss for the past year. My husband has told me all along, "But you still have her". Your post helped me. Thanks so much, I am very sorry that you have lost your mom but very glad that you got the blessing of having her in your life a little longer than expected.

 
Old 11-26-2004, 12:31 PM   #3
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renee_ky HB Userrenee_ky HB User
Re: Hope

I am very sorry to hear that your Mother has passed. But, very glad that you can see the blessing, thorugh the pain of the loss. You are engaged to be married aren't you? Your Mom will still proudly be there when you are walking down that aisle. She must be very proud of you. I do not think your post sounded morbid in any way, it was beautiful!

Renee

 
Old 11-27-2004, 10:56 PM   #4
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lemichele HB User
Re: Hope

Thank you both - I am glad if I could help anyone - that's the only reason I posted. I wish you all the best - this is the hardest thing in the world to live with. I am only 28, but I do know that this is going to be the worst it can be. And mom showed me it wasn't something to be scared of. She was at peace - the only thing I could ever wish for her. I hope your loved ones find that peace too - I think they will. And if this is the very worst that life can be, I've been able to find good in it - me, a pessamist at heart. Do everything you can to let them know that you are alright with them leaving. Make them know that you will be ok - that you will always remember them and that you will be strong when they have left you.

It's been 13 days and 2 hours since my Mom left, and already I am talking to her as if she was still around. That helps a lot too. I can't find something, and as it was when I was a little girl, I ask, "Mom? Where is my other sock"? And it seems like she answers for me.

But I would give anything to talk to her now, so make sure you talk to your loved ones as much as you can right now - even if they don't seem to hear. They will hear it, and answer in their own ways.

I'm not a religious person, but God bless you both. I wish the best and pray that the coming time will be as hopeful to you as it has been to me.

Lee

 
Old 11-29-2004, 08:06 AM   #5
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Re: Hope

Dear Lee…………..I was so sorry to read that your mum has passed on but so glad for the time you had together. I’ve been looking regularly since your last post hoping for some news of you. It’s nearly a year since my mum went – I still miss her every day but most times now the pain is bearable – I know it will continue to get better although I will miss her always. My thoughts and prayers are with you as you start your healing journey

xx

 
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