large cell neuroendocrine lung cancer - Cancer: Lung Message Board

55ian55 · 05-28-2006, 05:34 AM

My wife recently had surgery to remove the middle lobe of her lung, we are both seeking help as what to expect now. She was diagnosed as having
large cell neuroendocrine cancer. We are both very scared as we do not know what to expect and also what is likely to happen. At the moment my wife is recovering from surgery done on 12/05/06, one thing we do know is that my wife is to have chemo and radiation. Is there anyone that can help us with any information thanks. Ian

lorriem · 05-30-2006, 11:00 AM

My husband had non small cell lung cancer and last july they took out his top right lobe. They decided on Chemo Taxol and carboplataim for 16 weeks. It was no picnic for him but with the drugs they give you now to ease any side effects really do work well.He did work during the chemo and on days that he felt tired he just worked from home. He did not do RAD because during surgery they had to resection his bronci tube and sleave it with fat so rad was not an option.What Stage was your wife at after surgery and had it spread to her lumph nodes?One thing I would suggest is that your wife have a port put in her for the Chemo. My husband didn't and it was very hard at the end to find good veins.Tell her she will have some good days and then some bad days but just because she feels good she must take any meds to deal with the side effects that creep up on her.Her blood will also be tested before every chemo session to make sure her red and white blood cells count is ok.If they are not that have great meds for that also and Chemo can go along as planned or she might have to miss a week.I hope I have helped and I wish you both the best of luck along with my prayers.

55ian55 · 05-31-2006, 07:44 PM

what stage is your husband at, yes the cancer had gone to the lymph nodes.
We thank you very much for your information at least we now know what to expect, my wife is so happy that someone has been able to give some idea as to what will happen. We wish your husband all the best for the future. sent to you both with a prayer. Ian and Carole

lorriem · 06-01-2006, 02:45 PM

Quote:

Originally Posted by 55ian55

what stage is your husband at, yes the cancer had gone to the lymph nodes.
We thank you very much for your information at least we now know what to expect, my wife is so happy that someone has been able to give some idea as to what will happen. We wish your husband all the best for the future. sent to you both with a prayer. Ian and Carole

His tumor was 10 cm and prior to surgery they didn't stage him but said it most likly was 3a or 2b it turned out to be 1b since no lymph nodes was invole but we live from scan to scan every three months and that is our new type of normal life. I have a great LC site that is a big message board with all types of LC and that could really help you but we cannot post other sites on this board.It starts with lung cancer.I would give you the rest but I don't want any problems with this board since it is very good also. Good luck to your wife.
Lorrie

55ian55 · 01-18-2007, 05:09 AM

hi Lorriem i have sad news my wifes cancer spread to the liver and pancreas and we found out on the 10th of jan that she now has 2 tumors on the brain all the drs can do is give her dexmethsone to try and get the swelling down and they said she may only have a few weeks