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Cancer: Lung Message Board
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Old 08-14-2008, 03:51 PM   #1
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tapyeno HB User
Question Salivary Gland Type Lung Cancer

My wife Rose has been diagnosed as having this cancer, A very rare one - only 1 in a 1000 lung cancers are of this type.
She has had a lung removed and is now considering chemotherapy as there is a 50/50 chance the cancer may have spread, but has been advised that the benfits are doubtful with this type of cancer.

Research I have discovered on the internet shows that 24 patients with this type of cancer did not respond to chemo.

Does anyone know of anyone who has or had this type of cancer?

Many thanks,

Last edited by mod85; 01-10-2012 at 08:13 PM.

 
Old 07-04-2010, 03:35 AM   #2
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Re: Salivary Gland Type Lung Cancer - an update

The cancer has returned.

Rose has had a tumour removed from her liver in September, during an operation to remove an insulinoma. It was found by chance. Now a scan has found further lesions on her liver. We were told they would be removed by radiofrequency ablation, but she would have a whole body scan first to ensure they were nowhere else.

We got a call on Friday from the hospital saying they need to talk to us tomorrow. This does not sound good. There is no evidence that chemo or radiotherapy work with this type of cancer.

Our only hope is that they if they have found it elsewhere in her body that they cam use radiofrequency ablation there also. - Does anyone know if this is possible?

Pat Mahoney





[QUOTE=tapyeno;3689608]My wife Rose has been diagnosed as having this cancer, A very rare one - only 1 in a 1000 lung cancers are of this type.
She has had a lung removed and is now considering chemotherapy as there is a 50/50 chance the cancer may have spread, but has been advised that the benfits are doubtful with this type of cancer.

Research I have discovered on the internet shows that 24 patients with this type of cancer did not respond to chemo.

Does anyone know of anyone who has or had this type of cancer?

Many thanks,

Last edited by mod85; 01-10-2012 at 08:13 PM.

 
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Old 01-09-2012, 02:05 AM   #3
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Re: Salivary Gland Type Lung Cancer

Hi
Since posting this three years ago, the cancer has spread to her liver. She has had one course of chemo last year, and is half way through a second course, but the tumours are seen to be still growing.

I have asked before if anyone else has experience of this type of cancer, but as it is so rare did not get any replies.

I am re posting with the same request.

Pat Mahoney

[QUOTE=tapyeno;3689608]My wife Rose has been diagnosed as having this cancer, A very rare one - only 1 in a 1000 lung cancers are of this type.
She has had a lung removed and is now considering chemotherapy as there is a 50/50 chance the cancer may have spread, but has been advised that the benfits are doubtful with this type of cancer.

Research I have discovered on the internet shows that 24 patients with this type of cancer did not respond to chemo.

Does anyone know of anyone who has or had this type of cancer?

Many thanks,

Last edited by mod85; 01-10-2012 at 08:13 PM.

 
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Old 01-10-2012, 12:27 AM   #4
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Re: Salivary Gland Type Lung Cancer

Pat I don't really know anything about this cancer or know anyone who has had it. I am just really sorry that you are both going through this & I would like to offer you some support. Please keep us posted- thinking of you both & wishing you all the best!
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