I know, at a time in your life, when your entire world has been thrown into turmoil as a result of a medical diagnosis, it is difficult to rationalize just exactly what is happening, what the prognosis is to be...and how it is going to affect your family and possibly, the rest of your life.
I have battled lung cancer since Sept. 2007, having had two major surgeries, numerous radiation & chemo treatments, and continue taking the chemo pill, Tarceva, daily.
This has been a long, stressful, and very difficult time in our lives. I assure each and everyone out there touched by this disease, be it a friend or family member, there is no way to get through this without perserverence. Stand STRONG and keep POSITIVE thoughts throughout. You can beat this disease !!
My best advice to everyone reading this post is.....ASK QUESTIONS !!
Read anything, and everything you can get your hands on....and ask questions. Lots & lots of questions. Talk to people...perhaps someone will trigger another question....or be in a postion to offer suggestions or advice...but talk about what is taking place in your life. DO NOT allow your doctor to brush you off as if you are unimportant...or beneath his expertise...you deserve to know everything....and he is obliged to take the time to explan what this is going to mean to you..what affect it is going to have on your life...what the treatments are and their side effects.....
On our first visit to the Chemo Oncologist, he spoke in general terms and explained very little...as he rose to bid good-day, my wife quickly stopped him in his tracks by saying, "sit down, we not through here" and continued to ask questions. This particular oncologist no longer expects a short appointment period. He just accepts our questions and your doctor needs to accept them too.
DEMAND THE INFORMATION YOU NEED TO MAKE INFORMED DECISIONS.
If something is explained to you, but you fail to grasp what it means, or you just don't understand, ask again...tell the doctor to explain further, not leave feeling like you are dumb, afterall, we're all ignorant with regards to something like this.....demand they explain in terms that you understand fully. Leave NO question unanswered.....and answered to your satisfaction.
The internet...go to the library.....Books, read everything you can.....call anyone you can think of to discuss you situation...but DO NOT just accept what you're told unless you are satisfied with the explanation and understand EXACTLY what you're facing. Make your list of questions and take them with you as you visit the doctor. We kept a piece of paper on the table and regardless of the time of day, if a question arose, we immediately wrote it down. Don't wait, do it then !!
I know this is an extremely long post, and I apologize. However, I see so many posts here asking important questions, with dire hope and a real need to know, and find it a sad state of affairs that this is where everyone must try to find the answers.
My God Bless each and everyone of you....and remember:
THE ONLY STUPID QUESTION IS THE ONE YOU DIDN'T ASK, AND THEREFORE, NEVER GOT AN ANSWER.....you may die wishing you had taken just a few more minutes.....