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Cancer: Lung Message Board
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Old 02-13-2010, 12:43 PM   #1
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willsauntie HB User
Very worried and would like advice please

My niece is in her early 40s and has just had a scan showing she has a tumor in her lung. She sees a specialist next week and so until then we are only guessing. I have been reading up everything I can find, she has 2 small children and I really want to be there for her and do the best I can. I know at this stage its only guesswork but Im hoping to draw on others experience.

My question is this, she has been told that her tumor looks to be about 2.5 cms by 2-5 cms. From the size could it be assumed that they have 'found it early' and that being so small its unlikely to have spread? Or, is the size not as relevent to it spreading as much as where in the lung the tumor is located.
I know Im clutching at straws and that until the have staged the cancer its only guesswork but I would be grateful for any input. Thank you,

 
Old 02-14-2010, 05:55 PM   #2
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young61 HB User
Re: Very worried and would like advice please

Hello, I don't know if you reed my last post ( today is the first day of my life )
But I know it's hard not to worry but try not to. 2.5 cm is pretty small and she is young, I assume she has never had cancer before? and God willing she doesn't have it now. But if she is in good health other them MAYBE have cancer now and she hasn't had it before The Doctor will recommend cutting it out, That type of operation these days is pretty simple, If it's in the left lung
they will go through her back with a very small opening, If it's on her right she could have her choice The can split her chest or go through her back.
Splitting the chest so really the hard way to go, But I have had lung cancer 4 times 2 on my left and once on my right, When I had it on the right I also had a hart problem and had to be opened from the front, So I found a great Surgeon that felt he could do both my hart and lung at the same time. I'm a man so I wasn't worried about a long scare on my chest. But I didn't need to worry anyway a year later you can't even see a scare, If I had to do it all over again even just for cancer in my right lung I would request them to open me from the front, It hurt for a few days when I coughed and I had to hug a pillow but I healed much faster, I was up and pretty much doing anything I wanted in 2 weeks as to a month or longer with my left lung operation.
This last time # 4 I couldn't have an operation because so much of both my lungs had been removed in past operations. Both my family Doctor and the Oncologists gave me 3 months to live. Well I have never worried about dieing
it's a part of living, But I asked the Oncologists to try Chemo, He agreed and set me up for treatment once every 3 weeks and he turned me over to his nurse to handle me, I guess he was sure it was a waste of time and money.
That was 7 months ago, and because I waited awhile before going to see him
I only had 4 treatments then I was sent out for a CT scan last week. I was told Friday the CT scan could not find any cancer anywhere in my body.
And I no longer need Chemo, All I'm saying is don't worried or be scared Just tell her to fight and believe in her mind she is fine.
Good luck and God bless you.

 
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Old 02-16-2010, 10:17 AM   #3
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Re: Very worried and would like advice please

Willsauntie, I am so sorry you are going through this. The not knowing is horrible. I too am fearing my mom might have lung cancer. She had pneumonia and a tumor was found. She had a bronchoscopy and it was inconclusive. < edited >

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Old 02-16-2010, 04:37 PM   #4
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young61 HB User
Re: Very worried and would like advice please

I let a Doctor do a bronchoscopy on me once and not only did he almost drown me It didn't do any good, I think that test is just to get cash from you or the insurance Co. If you or your Doctor aren't sure, Have them do a needle biopsy, That sounds scary but you won't feel a thing, The use a CT machine to guide the needle. Your awake when they do it But all you will feel is just a little, little pinch as they start in. I had it 3 times 2 of those times I requested it, And I refused to go back to the Doctor that ordered the bronchoscopy.
Just don't worry you'll end up with a hart attack.

 
Old 02-17-2010, 10:48 AM   #5
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Re: Very worried and would like advice please

I agree with YOUNG61- my mom had a bronchscopy (and biopsy) 2 weeks ago and it was a waste of time. We waited 4 days for the results and they came back inconclusive. I had no idea lung cancer was so hard to diagnose!! We now are waiting weeks for an appt with a cancer center and she will proably have an EBUS (endobrocnial ultrasound done). Willsauntie- keep me posted please on what happens. By the way- how was your nieces tumor found (what prompted the scan?) and does she have any symptoms? My mom's was found because her pneumonia didnt resolve (discovered from a follow up Xray) and a CT was ordered. Her tumor is blocking the right upper lung and the airway leading to it. Good luck as you wait....

Last edited by lynn91970; 02-17-2010 at 10:48 AM.

 
Old 02-17-2010, 11:43 AM   #6
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young61 HB User
Re: Very worried and would like advice please

I still think the only sure way to find out is to have a needle biopsy if it in and area they can get to. With the needle biopsy they can get a pics of it and send it the lab and know what is going on in a day. Was the CT scan done with contrast, If they do it with Contrast They inject something I can't remember the name bit you get a warm feeling, That stuff lights up the cancer cells if it is cancer. I've had Lung cancer 4 times and every test you can think of The only 2 I trust are the above. This last time I had to have chemo and it isn't even close to being as bad as I had heard The only thing is I did loss my hair after the first treatment, They tell me most people don't until after the 3rd or 4th treatment. The only part of Chemo that I found a little hard to deal with was the shot they give you the day after Chemo it helps to build white blood cells, Be sure to have the Doctor give you ONDANSETRON You may have to have your Doctor fight with the insurance Co. for it, But if you take that about 4 hrs before the shot and take it every 8hrs. for about 3 days you wont get sick and you will be able to eat and keep the food down Also have a pretty take a pretty strong pain pill for a few days after the shot, The shot makes your joints and bones hurt for a few days.
It's strange when your hair does fall out the short stubs even hurt if you run your hand over them, But that goes away too.
Good luck and god bless you.

 
Old 02-17-2010, 01:33 PM   #7
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Re: Very worried and would like advice please

Hello Young61, All of the info is greatly appreciated. My mom's CT was definfitely done with contrast. I had also heard this does cause the cancer to light up- so why they have no idea if it is cancer or infection is beyond me. Have you ever had an EBUS? I think the pulmonolgist feels my moms tumor is hard to get at and that is why he isnt doing the needle biopsy. Hers is in the airway blocking the right lung (obstructing the upper lobe).

 
Old 02-18-2010, 04:10 AM   #8
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willsauntie HB User
Re: Very worried and would like advice please

Thank you all for the replies. Its so good to have the support of others.
The xray was done in the first place when she went into hospital with breathing difficulties. She has a long standing heart problem and has been on medication for years to help live with it. They did the xray as routine and saw the shadows on the lungs, she was then given a scan.

Things have moved on since then because she has been to see the specialist who says she also has 2 swellings in glands on her chest and also something showing on her kidneys. She is going within the next 2 weeks to another hospital where they have a more specialised scanner which should give better information.

It does not look good, they have told her they will do a biospsy by keyhole surgery and the tumer in her lung is in a position where it can be removed. However this should be followed up with chemo and because of her heart condition this is out of the question for her. She wouldnt survive a major operation either. If what they can see on her kidneys are secondary cancers then it looks very bleak.

They arnt yet in a position to say what stage the cancer is at. Its a case now of keepoing our fingers crossed and hoping for the best when the next scan and biopsy are done.

Thank you all and best wishes to you all.

 
Old 02-18-2010, 11:29 AM   #9
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young61 HB User
Re: Very worried and would like advice please

Sorry to hear about her hart condition, That could throw a wrench in the works. Like I said I have had caner 4 times 3 first 3 they cut it out and no other treatment at the time they said they could see something on my kidneys
but not to worry because it was normal in some people and it was not good but it was not cancer and to just live with it. I had a very rare hart problem
when I also had my 3rd Lung cancer, most Doctors wont do open hard and Lung operations at the same time But because my Cancer was on the right side I talked him into trying He had to stop my hart and go in to remove some big hunk of meat that should not have been there, The he removed the cancer in my right Lung and a week later I was home, I'm 61 years old and also disabled in other ways and I'm still here. You will be surprised what the Human body can put up with and bounce back. I had Chemo this last time and it is not as bad as some people say. What other choice do people like us have, If you want to live you take the chance, If you don't your going to die anyway, At least doing what the Doctor wants you have a chance.
At first I didn't want Chemo and my Doctors gave me 3 to 6 months max.
My family ask me to at least try so I did after only four chemo treatments
they can't find cancer any where in my body, Both of my Doctors could not believe it. You have to keep the Faith and fight Wanting to live helps.
God bless you

 
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