It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Cancer: Lung Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 03-29-2010, 02:11 PM   #1
Junior Member
(female)
 
Join Date: Dec 2008
Location: sarasota, fl, usa
Posts: 36
redwind30 HB User
Really scared

I have previously posted in the lungs forum. So some of you may be reading this for a 2nd time.
My husband has been having difficulty breathing for the past 3 -4 weeks. He has seen Primary Doc and been to ER. Two chest xrays came back clear. Blood oxygen sat level has been done 3 times and was in the high 90's. Yet, he still has a very difficult time breathing.
They did a CT scan of the chest last week, results were inflamed lymph nodes in the lungs. Lung Specialist looked at CT scan today and said it definately seems to be cancer. Because of the location it is not possible to operate. He said chemo would need to be used.
A bronschoscopy is scheduled for tomorrow AM. I guess it will take several days to get the results from this test.
My husband is only 55 and I can't believe this is happening. We have no children and no other family. He is all I have, and I am so afraid of losing him.
I have no idea what to do next, don't know what to expect and no idea as to how quickly this will progress.
Anyone have similar expierence that you are willing to share would be appreciated. I think I would feel a little better if I had an idea (good or bad) as to what to expect.

 
Old 04-13-2010, 06:03 PM   #2
Newbie
(male)
 
Join Date: Apr 2010
Posts: 2
KaiGriebenow HB User
Re: Really scared

Hi: too bad to hear! However, first you really need an exact diagnosis before speculating.

All the best!

 
Sponsors Lightbulb
   
Old 05-09-2010, 06:31 PM   #3
Newbie
(male)
 
SarasotaRobert44's Avatar
 
Join Date: May 2010
Location: Sarasota
Posts: 5
SarasotaRobert44 HB User
Re: Really scared

Quote:
Originally Posted by redwind30 View Post
My husband is only 55 and I can't believe this is happening. We have no children and no other family. He is all I have, and I am so afraid of losing him.
Dear one,

I have gone through the same thing as your husband. I was diagnosed with lung cancer in 2006. I had surgery to remove the bad lobe. That was no fun but I got through it. The best things I had going for me were and are my faith in God and my wife who was and is at my side.

After the surgery I had three types of chemo therapy plus something called talc pleurodesis. If your husband has the thing called "pleural effusion" have him ask the doctor to do talc pleurodesis. It will relieve the shortness of breath and can extend his life years.

There is no cure for lung cancer but it can be beaten into remission and, with God's blessing and proper care, he can live many years.

I will pray that God gives you His peace and comfort and that He gives you both strength to fight and win this battle.

God bless.
__________________
Regards,
Robert

 
Old 06-14-2010, 11:47 AM   #4
Junior Member
(male)
 
Join Date: Jun 2010
Posts: 10
kentsjolund HB User
Re: Really scared

Robert, I'm in Sarasota and may be starting down the same path you did. I had a clear x-ray in October and after some throat problems from acid reflux, had a cat scan (4 june) that showed "Right Hilar/mediastinal mass consistent with malignancy"
Not sure if this is lung cancer or some form of lymphoma --I am an ex smoker.
-I had a PT scan on Friday and will have a biop[sy (bronchioscope) on Wed but won't get results till the 24th--the stress is KILLING me!!!

 
Old 06-15-2010, 10:49 AM   #5
Newbie
(male)
 
SarasotaRobert44's Avatar
 
Join Date: May 2010
Location: Sarasota
Posts: 5
SarasotaRobert44 HB User
Re: Really scared

Quote:
Originally Posted by kentsjolund View Post
Robert, I'm in Sarasota and may be starting down the same path you did. I had a clear x-ray in October and after some throat problems from acid reflux, had a cat scan (4 june) that showed "Right Hilar/mediastinal mass consistent with malignancy"
Not sure if this is lung cancer or some form of lymphoma --I am an ex smoker.
-I had a PT scan on Friday and will have a biop[sy (bronchioscope) on Wed but won't get results till the 24th--the stress is KILLING me!!!
I don't understand why they are taking so long to give you the results. I go to Moffitt and always see my oncologist to get the results within an hour or two.

Who are you seeing? I hope it's not that awful Dr. Brown.

Regards,
Robert
__________________
Regards,
Robert

 
Old 06-16-2010, 05:40 AM   #6
Junior Member
(male)
 
Join Date: Jun 2010
Posts: 10
kentsjolund HB User
Re: Really scared

Quote:
Originally Posted by SarasotaRobert44 View Post
I don't understand why they are taking so long to give you the results. I go to Moffitt and always see my oncologist to get the results within an hour or two.

Who are you seeing? I hope it's not that awful Dr. Brown.

Regards,
Robert
Finally heard my pet scan was clean and will have the bronchioscopy this morning (w/biopsy)
More to follow!!
I'll be in tough

 
Old 06-17-2010, 03:38 AM   #7
Junior Member
(male)
 
Join Date: Jun 2010
Posts: 10
kentsjolund HB User
Re: Really scared

Thank you Robert--I will do that.

My insurance (Retired military -TRICARE) referred me to an oncologist, Dr Scott A. Tetreault, MD at the Florida Cancer Specialists <edited>--Do you have any feedback on them?

Bronch went well BUT more cancer then they though based on the PET scan and of course the Dr will not committ until he gets the Biopsy. He was fairly confident it was NOT the small cell vairety so there is some room for optimism.

I am going in person to the oncologist to give them copies of the referral and the Bronch photos and get signe up ; the PET scan was done in the same building.....I have heard they will not start ANYTHING until they get biopsy results--what was your experience on this??

Cheers and G_D bless you for your help......

Last edited by mod-anon; 06-18-2010 at 06:17 AM. Reason: Please do not post outside urls. Please read and follow posting rules.

 
Old 06-18-2010, 02:58 AM   #8
Junior Member
(male)
 
Join Date: Jun 2010
Posts: 10
kentsjolund HB User
Re: Really scared

Well I should have some results today (Friday 18 June) --I have been "politley pressing" to get things reports in the hands of the right people quickly. My Doc said after the bronchiascope that :
Yes it was lunge cancer
His clinical Diagnosis was that it was NOT small cell
The PET scan did not show it has spread
Stage III or IV
His exact words were-"It is lung cancer but not a death sentence"

I meet with an Oncologist office today Florida Cancer Specialists (27 offices )to get started AND I have connections to some folks at Memorial Sloane in New York-Both thankfully take my insurance......

Does anyone have any skinny-good or bad on "Florida Cancer Specialists??


I am young (51) and still in excellent health (for now) so we'll see. I have a great support network, good insurance, a great girlfriend and a great spiritual relationship with G_d that is growing everyday.

Your thoughts and prayers are most appreciated.

 
Old 09-14-2010, 04:44 PM   #9
Junior Member
(female)
 
Join Date: Sep 2010
Location: Sterling Hts, MI
Posts: 16
graspingforhope HB User
Re: Really scared

I pray my message finds you in good care and doing well. I stumbled upon your post and see that you are approximately the same age as my father with a similar prognosis. My dad, 55, was just diagnosed with stage IIIb nsclc and will be starting intense radiation for 7 weeks as well as chemo every 21 days.. I am afraid to show any fear, or any negative thoughts to my dad or my mom as I need to help maintain the positive outlook. Today is the first day my dad broke down and cried over his prognosis. The radaition consultation has scared him to death over what lies ahead for him. I realize I don't know you, and that while you are also fighting this awful disease, you may not even have the energy to respond, but I would greatly appreciate your insight and preparation for what I might be able to do for my dad during his treatment both to help maintain his positive outlook, ease his fear and pain, and reduce any other symptoms that may arise. I just figured that being a few months ahead of him with your diagnosis, you may be a great resource for strength and information. I would greatly appreciate any info you can provide. God bless you & your family as you fight this battle. I wish you well & will keep you in our prayers also.

Jessica

 
Old 09-15-2010, 10:08 AM   #10
Junior Member
(male)
 
Join Date: Jun 2010
Posts: 10
kentsjolund HB User
Re: Really scared

Hi Jessica--It's tough but I have strength of will and faith in God. Hardest part is all the waiting and keeping the weight on--I have not lost 5 lbs and it has been a battle as the radiation (12 sessions) killed my taste buds. I juice and just maximize calories with grits & softboiled eggs (4) for breakfast with a muffin and an BOOST drink (800 calories total) and other high calorie stuff I can eat during the day--I shoot for 2500 to 3000 caloriesa day.

OK-the breakdown:
Haven't had the big one yet BECAUSE I say "What's next" and never "Why me"
I'm always on top of newest treatment and WHAT I should be doing


There are ALWAYS people on the right side of the survival curve that live 3 years and not 1 or longer BECAUSE we all react differently to chemo, radiation, etc.

I just had my "mid-term" scan and had Good "slightly mixed" results. Was slightly disappointed because I had hoped for SUPER results but hey---For the resons listed below these are common readings for this point in treatment (1/2 way).

Important term: SUV
SUV means "how bright do they glow-the brighter the light, the worse and more intense the activity."

The key to accurate diagnosis, according to a piece I read is the amount of tracer uptake - a "standardized uptake value" (SUV). At Cedars-Sinai, axillary nodes in breast cnacer studies when they found SUVs of 2.3 or greater, they were 15 times more likely to contain metastasis than nodes with SUVs less than 2.3. In fact, with the SUV threshold set at 2.3, 60 percent of those with axillary metastases were identified (60 percent sensitivity), there were no false positive readings (100 percent specificity) and all those with a positive result were accurately diagnosed (100 percent positive predictive value). Accuracy was 72 percent.

OK-Back to ME:

All of the lung tumors and those in the middle have SHRUNK-some by almost 50 % (Thank you God!!!!!)

-Some small potential ones show in the PET scan in the left lung (low SUV but potential--could have been there all along and the chemo has halted them)

-Some very low level in the liver and adreanal gland SUV less that 2.0 BUT were/are "metastatic foci" a potential location for a metatastic tumor to grow WITHOUT treatment.
- - A metastatic tumor is the name for an "offshoot tumor" as the cancer spreads to other parts of the body. Good possibility that is that these are early ones halted by the chemo
and continued treatment will halt/shrink them (GOD willing)

All in all , a normal result with GOOD results (very good actually) shrinkage on the primary tumors and as for the small ones, they are NOT unexpected and most likely stable under continued Chemo.

This is a common scan for people with my condition--some small mets that are came AFTER the main tumors (that are now shrinking) and they should halt growth under 1st or 2nd line chemo until they......start growing; that is how this monster progresses.

We'll see how the next three treatments affect what is there and well do this again in about 60 days!!!

Also, I am meeting a clinc on Thursday about getting ito a clinical trial for a new drug (LUCANIX) and it is in PHASE III and on the FDA fast tract because it has almost no side effects and GREAT results on over 70% of lung cancer patients. I am a good candidate or they wouldn't have me come see them so early.

OK--You SHOULD go join the INSPIRE network and friend me--There is SO much good information there and I have learned a lot. I am on three eastern suppliments with REAL clinical studies that I KNOW are helping me--links on my profile.

Good luck and he has folks to look after him-I have a good support system and REAL friends and family but I do live alone BUT I am financially secure with good insurance so that helps.

Blessings and go join INSPIRE.

Kent

Blessings to all!!
Kent

 
Old 09-15-2010, 10:24 AM   #11
Junior Member
(female)
 
Join Date: Sep 2010
Location: Sterling Hts, MI
Posts: 16
graspingforhope HB User
Re: Really scared

Good afternoon Kent,

Thank you so much for your reply! I am glad to hear you are seeing positive reults so far and responding to treatment! My thoughts and prayers are with you for more great news ahead! I'll look into INSPIRE.. I hadn't heard of that yet.

Thank you again so much... may God bless you and keep you well

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Really scared and depressed about symptoms iamcoco HIV Prevention 6 02-01-2010 03:39 AM
Pregnant for the first time @ age 31 and I'm really scared. Yellabonez Pregnancy 20 02-29-2008 07:25 AM
Since I'm pretty new here, I'd really like to get to know everyone a bit zosolizard Addiction & Recovery 4 10-29-2006 07:16 AM
Really bad teeth/gums! darlingnikki Dental Health 3 05-09-2006 10:43 PM
Really Scared of going to the doctors tomorrow.. DiabeticPHOBIA SolidSnake320 Phobias 2 11-14-2005 08:42 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Ativan
Decadron
Iressa
Methadone
Morphine
  Oxycontin Prednisone
Procrit
Tarceva
Tylenol




TOP THANKED CONTRIBUTORS



Kimslos (22), LeisaH (13), renee_ky (9), conan1017 (9), Janmarie2 (8), rockie (7), tuckygal (7), flintrock (6), pbj11 (6), snoopy63 (6)

Site Wide Totals

teteri66 (1180), MSJayhawk (1005), Apollo123 (906), Titchou (850), janewhite1 (823), Gabriel (759), ladybud (755), midwest1 (669), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 10:21 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!