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Cancer: Pancreatic & Liver Message Board
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Old 05-22-2005, 10:43 PM   #1
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Liver Cancer and Cirrhosis

[FONT=Comic Sans MS]I just learned last week that I have liver cancer and I'll need a transplant. I live with Cirrhosis of liver for almost 15 years. I worked until now on a construction site as worker, but the doctor told me that it's better to stop working as soon as possible. The doctors wants to make my a chemoembolization for the cancer, but I understand that it's very dangeros and I might not be arround anymore for a liver transplant. Does anybody have any ideea?[/FONT]

Last edited by ltbcp; 05-22-2005 at 10:45 PM.

 
Old 05-23-2005, 08:19 AM   #2
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Question Re: Liver Cancer and Cirrhosis

You've lived with cirrhosis for 15 years? What were your symptoms during that time?

 
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Old 05-24-2005, 05:57 AM   #3
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Re: Liver Cancer and Cirrhosis

I am rather suprised that they will even consider a transplant when the liver failure is due to cancer as when my son was in liver failure five years ago, I was told that if it turned to cancer at some point(cholangiocarcinoma)that transplant could no longer be considered.Have they changed those guidelines since then?I am very happy that you have the option but just a little confused here.I know too that years ago when Walter Payton(the chicago bears football player?)was on tv pratically begging for a liver as he had primary sclerosing cholengitis(my son had this too),he ended up not being able to be transplanted due to the fact that he did develop the cholangiocarcinoma and passed away about a month later.I am just a little baffled.could you clear this up for me?thanks,Marcia

 
Old 05-25-2005, 05:56 PM   #4
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Re: Liver Cancer and Cirrhosis

feelbad,

Why won't they consider you for transplant with cholangiocarcinoma? I'm thinking it's something to do with being too late for some reason but I would still like to know why for my curiousity.

Also, sorry about your son.

Dan

 
Old 05-27-2005, 05:42 AM   #5
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Re: Liver Cancer and Cirrhosis

I am not really totally sure just why this is either.I can only assume that when you are dealing with cancer espescially in an organ like the liver there is a real big chance of having cancer cells left behind that will just end up destroying the liver,so it would be kind of a 'wasted" organ???We were also told that when my son was really just sooo incredibly sick with (at that time) undiagnosed PSC which involved this really horrid infection in his bile ducts,that if this remained. even if they found that 'perfect' match for his liver that they would not even be able to do the Tx as the overwhelming infection would just go crazy once he was started on the antirejection meds and there was no immune system there to try and fight the infection.luckily for us and mostly for him(lol) they determined that he did have the PSC and the bile duct infection was due to that and was contained only in the liver itself and not anywhere else.God that was a very scarey time you know?He has been doing really really well with regard to the liver.He has had some other major med issues but thank god, the liver has been working top notch.He had one bought of rejection right after the Tx but that really is quite common as they are still adjusting med levels.He also developed the CMV virus about five months after Tx which is also pretty common.But overall, he really has come through all of it with flying colors.He will celebrate five years on June 7.and we keep hopin for many many more anniversaries.good luck to you.marcia

 
Old 05-27-2005, 06:49 PM   #6
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Re: Liver Cancer and Cirrhosis

feelbad,

Thanks for the explanation and I am so sorry to see what you have gone through with your son. Take care and I pray for future success.

 
Old 05-27-2005, 11:32 PM   #7
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Re: Liver Cancer and Cirrhosis

First time when doctors told me that I have cirrhosis was back in Romania almost 15 years ago (I don't remember exact the year). The simptoms was same with hepatitis: nausea, no apetit and a lot of sleep. I didn't drink any more, maybe from time to time a glass of wine or a beer. From three years I didn't drink anything which has alcool. Now I don't know anything more about my liver, only that I have cirrhosis, all 3 types of hepatitis and from 3 weeks I know that I have cancer.Next month I'll have my first appointment at BC Transplant Society, so I'm not even sure about transplant. Now my mind it's down and from where I was working in constructions untill last month, now I don't know how long I'll be arround anymore. I'm leaving In Vancouver, BC from 8 years with my wife and I'm only 42 years old.
Sorry about my english, I know it's not very good, but this it's last on my list right now!

 
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