Final Stages Questions ----You all are the best!!
I want to start out by saying that you all are the best! I have not registered before now, but I have been reading for almost a year, and I am so impressed by your strength, encouragement, and knowledge. You all have brought me comfort and knowledge in a really tough time. You all have made me feel as if there was a support system when I did not always feel that at home. I and I want to say thank you to all of you theat read and post on this messgae board!!
With that being said, I am reaching out because I am confused what constitues final stages and where do we go from here. As I have read many, many posts all seem a little different from my experience or maybe I have missed one that is similar.
I am 34 my mother is 64. I am her primary caregiver, and to cut a very long story a little bit shorter, she was diagnosed 3 years ago, had a whipple, was doing well, then had a matasis in her liver. She underwent chemo (abraxane and irnotecan) and that almost killed her with no reaction in the tumors. She went to Cancer treatment Centers of America and recieved and intraheptic treatment and was doing great! But after 6 mos she had to stop and started another chemo agent just irinotecan. Under this drug it spread to her lungs. She switched doctors, and started taking xeloda. She starteddto respond in that her tumor marks showed a leveling in activity. The doctor than up the dose in a final ditch effort to kill the chemo and I guess to see how much she could take.
With all this being said her counts dropped significantly and she developed moth sores. She hasnt eaten in a month and has been in the hospital for 2 weeks. Her mouth is slightly better. They have her on nutrition, antibiotics, and fluids. Well...yesterday she developed an infection a mild fever and has been transferred to icu. She is showing signs of heart problems, started taking insulin, antibiotics, albumien because of the accities being drained, aintibiotics, nutrition, and fluid.
I guess I want what everyone else wants on here an answer. I know this is not good by any means. But is this something she will recover from and we will leave the hospital, is this something she will be in the hospital for months with, are we approaching the final days, weeks months?
When should I call family without her feeling like I am giving up on her fighting spirit?
Thank you all so much again. My thoughts are with each and everyone of you.