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Old 04-23-2013, 12:47 AM   #1
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Hendrehet HB User
Red face Liver Cancer

Hi there, has anyone had these symtoms before with liver cancer. My wife has been in hospital for the past two weeks complaining of sivere stomac pains. While in hospital her stomac swelled up and she looks about 9 months pregnant, but she is not pregnant, she has liver cancer. The doctors did all kinds of thest but cant seem to find the sorce of the pain and the swelling on the stomac. We are being transferd from the one doctor to the other and in the mean time treatment for the liver cancer is standing still because they take their time. Now she is being discharged form hospital with the paining stomac by the doctor because he said he cant do anything at the moment as he is going over seas so she must come back next week and then he would see from the blood tests he did what he picked up and if he could see what the cause of the swelling and pain is. If only we could get rid of the pain. What is wrong with doctors these days!

 
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Old 04-29-2013, 11:47 AM   #2
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Chele60 HB UserChele60 HB UserChele60 HB UserChele60 HB UserChele60 HB UserChele60 HB User
Re: Liver Cancer

When my late husband was battling liver cancer, he began bloating up severely. It put pressure on his diaphram to where he had difficulty speaking, put pressure on his lungs so he had difficulty breathing, put pressure on his heart so his heart rate was excelerated. He was extremely uncomfortable, and because the bloat put pressure on his stomach, he couldn't really eat. We ended up going to an Urgicenter doctor over a weekend, and she had told us what he was experiencing was totally common for individuals with liver disease, and wondered why no other doctors had ever told us this. I was dumb-founded!

She had us go to the Emergency where my husband had 3 1/2 liters of fluid removed from his abdomen. It didn't stop it - he became bloated again - and we needed to keep going back to the hospital to have this fluid removed every 3 - 4 days. The most ever removed was over 5 liters.

The way it was explained to me was that my husband's liver was damaged (in his case, he had liver cancer and also had had half his liver removed), and there is a secretion the liver produces. Because of the damage, the liver cannot absorb this secretion and must expel it, and it is expelled into the abdomen. Because there is no outlet in the abdomen, the fluid builds up, putting pressure on all the internal organs. This can cause a great deal of discomfort and pain. Normally, the doctors will draw a sample of the fluid to test to make certain the fluid is what it is supposed to be. However, comfort of the patient should be the highest priority. It is fine to draw a sample of the fluid for testing. Yet, at the same time, it is appropriate to drain the fluid from the patient's abdoment to allow the patient to feel more comfortable.

I would suggest (not sure how the medical system works where you live) to got to an Emergency setting and demand a "paracentesis." That's the medical term for removing the accumulated fluid from the abdominal cavity. They might do some testing, but it sounds to me, based on what you say here, that what is causing the swelling is fluid build-up, and that is probably causing a lot of her pain as well.

Good luck!

 
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Old 04-29-2013, 09:13 PM   #3
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Re: Liver Cancer

Thank you very much for the help. I will go to the doctor with this information. I think what you are telling me makes al lot of sence if you think about it. I just dont know why the doctors are so slow to make a diagnose. Enjoy your day. Sorry to hear about your husband.

 
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Old 06-13-2013, 07:32 PM   #4
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HectorSF HB User
Re: Liver Cancer

"Hi there, has anyone had these symptoms before with liver cancer. My wife has been in hospital for the past two weeks complaining of severe stomach pains. While in hospital her stomach swelled up and she looks about 9 months pregnant, but she is not pregnant, she has liver cancer."

I am sorry to say it appears the your wife has advanced cirrhosis of the liver. Commonly know as decompensated cirrhosis. He swelling is caused by her liver failure. It is called ascites and is very common in patients with advanced liver disease. Since the doctors don't know this basic fact about liver disease they obviously can not help your wife. The only people that can help her now are doctors at a liver transplant clinic. Please get her an appointment at the nearest one to you ASAP. Both decompensated cirrhosis and liver cancer are fatal if not properly managed. I have had both for many years and current close to death if I don't get a transplant soon.

Acites:
The most common cause of ascites is advanced liver disease or cirrhosis. Approximately 80% of the ascites cases are thought to be due to cirrhosis.
There may be no symptoms associated with ascites especially if it is mild. As more fluid accumulates, increased abdominal girth and size are commonly seen. Abdominal pain, discomfort, and bloating are also frequently seen as ascites becomes larger. Shortness of breath, loss of appetite can also happen with large ascites due to increased pressure on the diaphragm, stomach and the migration of the fluid across the diaphragm causing fluid around the lungs.

Infections are a serious complication of ascites. In patients with ascites related to cirrhosis and portal hypertension, bacteria from the gut may spontaneously invade the peritoneal fluid (ascites) and cause an infection. This is called spontaneous bacterial peritonitis or SBP. Antibodies are rare in ascites and, therefore, the immune response in the ascitic fluid is very limited. Infection is persons with advanced liver disease can be fatal and must be monitor closely.

I don't want your wife to suffer through what I have for the last few years. Her ascites (fluid retention) can usually be manged with a low sodium diet and diuretics.
----------------------------------------------------------------

"The doctors did all kinds of these but cant seem to find the source of the pain and the swelling on the stomach. We are being transferred from the one doctor to the other and in the mean time treatment for the liver cancer is standing still because they take their time."

Get her to a liver transplant center near where you live ASAP. Her life depends on it!

There is nothing wrong with the doctors. They are not hepatologist (liver specialist) so have little to no knowledge or experience helping people with advanced liver disease. Only a hepatologist at a transplant center can help your wife.

"If only we could get rid of the pain. What is wrong with doctors these days!
You have been misinformed. Pain is a sign of serious and sometimes deadly liver disease. Liver disease only gets worse with time."

The pain is not the problem. The problem is her underlying advanced liver disease and cancer. Especially her liver cancer. Liver disease can be a slow moving disease that happens over years. Liver cancer is not. It is a aggresive form of cancer and longevity is limited. If her cancer advances too far it will be fatal. The transplant center will be experienced in treating her cancer and cirrhosis keeping her alive as long as possible so she can get the only cure for liver cancer (HCC), a liver transplant.

I am sorry that I have to be blunt, but time is not on her side and I want to make sure she has the best medical care available to help her manage what is two very brutal and deadly diseases.

Anyway I can help let me know and I will share my experiences with advanced cirrhosis and liver cancer.

Best -
Hector
Cirrhosis diagnosed in 2007. HCC (liver cancer) diagnosed June 1 2011. I have had 4 chemoembolization treatment for cancer and will be trying Percutaneous Ethanol Injection (PEI) treatments in the next few weeks. Current MELD score 34.

 
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Old 01-11-2014, 06:24 PM   #5
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Join Date: Jan 2014
Location: San Diego, California
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tita210 HB User
Re: Liver Cancer

Quote:
Originally Posted by HectorSF View Post
"Hi there, has anyone had these symptoms before with liver cancer. My wife has been in hospital for the past two weeks complaining of severe stomach pains. While in hospital her stomach swelled up and she looks about 9 months pregnant, but she is not pregnant, she has liver cancer."

I am sorry to say it appears the your wife has advanced cirrhosis of the liver. Commonly know as decompensated cirrhosis. He swelling is caused by her liver failure. It is called ascites and is very common in patients with advanced liver disease. Since the doctors don't know this basic fact about liver disease they obviously can not help your wife. The only people that can help her now are doctors at a liver transplant clinic. Please get her an appointment at the nearest one to you ASAP. Both decompensated cirrhosis and liver cancer are fatal if not properly managed. I have had both for many years and current close to death if I don't get a transplant soon.

Acites:
The most common cause of ascites is advanced liver disease or cirrhosis. Approximately 80% of the ascites cases are thought to be due to cirrhosis.
There may be no symptoms associated with ascites especially if it is mild. As more fluid accumulates, increased abdominal girth and size are commonly seen. Abdominal pain, discomfort, and bloating are also frequently seen as ascites becomes larger. Shortness of breath, loss of appetite can also happen with large ascites due to increased pressure on the diaphragm, stomach and the migration of the fluid across the diaphragm causing fluid around the lungs.

Infections are a serious complication of ascites. In patients with ascites related to cirrhosis and portal hypertension, bacteria from the gut may spontaneously invade the peritoneal fluid (ascites) and cause an infection. This is called spontaneous bacterial peritonitis or SBP. Antibodies are rare in ascites and, therefore, the immune response in the ascitic fluid is very limited. Infection is persons with advanced liver disease can be fatal and must be monitor closely.

I don't want your wife to suffer through what I have for the last few years. Her ascites (fluid retention) can usually be manged with a low sodium diet and diuretics.
----------------------------------------------------------------

"The doctors did all kinds of these but cant seem to find the source of the pain and the swelling on the stomach. We are being transferred from the one doctor to the other and in the mean time treatment for the liver cancer is standing still because they take their time."

Get her to a liver transplant center near where you live ASAP. Her life depends on it!

There is nothing wrong with the doctors. They are not hepatologist (liver specialist) so have little to no knowledge or experience helping people with advanced liver disease. Only a hepatologist at a transplant center can help your wife.

"If only we could get rid of the pain. What is wrong with doctors these days!
You have been misinformed. Pain is a sign of serious and sometimes deadly liver disease. Liver disease only gets worse with time."

The pain is not the problem. The problem is her underlying advanced liver disease and cancer. Especially her liver cancer. Liver disease can be a slow moving disease that happens over years. Liver cancer is not. It is a aggresive form of cancer and longevity is limited. If her cancer advances too far it will be fatal. The transplant center will be experienced in treating her cancer and cirrhosis keeping her alive as long as possible so she can get the only cure for liver cancer (HCC), a liver transplant.

I am sorry that I have to be blunt, but time is not on her side and I want to make sure she has the best medical care available to help her manage what is two very brutal and deadly diseases.

Anyway I can help let me know and I will share my experiences with advanced cirrhosis and liver cancer.

Best -
Hector
Cirrhosis diagnosed in 2007. HCC (liver cancer) diagnosed June 1 2011. I have had 4 chemoembolization treatment for cancer and will be trying Percutaneous Ethanol Injection (PEI) treatments in the next few weeks. Current MELD score 34.

 
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Old 01-11-2014, 06:33 PM   #6
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Join Date: Jan 2014
Location: San Diego, California
Posts: 5
tita210 HB User
Re: Liver Cancer

Hi, I appreciate your post very much. I am so frustrated and upset, mainly at the doctors who just wont be straightforward with you. I have had HEPC from a transfusion in 1977. It has gone on for years. I got the treatment twice with no response. In my biopsies they have been all the way from stage 1-3. My liver enzymes are slightly elivated. Normal cat scan and ultrasounds. lately I have had pain in my right upper quadrant. sometimes it feels like a knife is stabbing me. Recently I feel more bloated than usual. My stomach is big, but it doesnt look like acities, it is just big. Now I am getting naseous and vomiting. I think I may have had an episode of Hepatic encephlopy where your hands shake and your drivng is affected. My GI gave me latucalose and is doing an endosposcy next week.

I just read a study of a guy in the VA that is my same age, same genotype, same treatment twice, same normal ultrasounds and catsscans. Same lab tests that showed only elevated liver enzymes for years, until finally they diagnoised him with liver cancer and it was too late. It is all so eri and I cant help myself feeling that I am in the very same boat. Am I reading too much? Are these symptoms cause for concern?????

Your help and insight would be appreciated.

LMO

 
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Old 01-11-2014, 06:34 PM   #7
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Join Date: Jan 2014
Location: San Diego, California
Posts: 5
tita210 HB User
Re: Liver Cancer

Quote:
Originally Posted by tita210 View Post
Hi, I appreciate your post very much. I am so frustrated and upset, mainly at the doctors who just wont be straightforward with you. I have had HEPC from a transfusion in 1977. It has gone on for years. I got the treatment twice with no response. In my biopsies they have been all the way from stage 1-3. My liver enzymes are slightly elivated. Normal cat scan and ultrasounds. lately I have had pain in my right upper quadrant. sometimes it feels like a knife is stabbing me. Recently I feel more bloated than usual. My stomach is big, but it doesnt look like acities, it is just big. Now I am getting naseous and vomiting. I think I may have had an episode of Hepatic encephlopy where your hands shake and your drivng is affected. My GI gave me latucalose and is doing an endosposcy next week.

I just read a study of a guy in the VA that is my same age, same genotype, same treatment twice, same normal ultrasounds and catsscans. Same lab tests that showed only elevated liver enzymes for years, until finally they diagnoised him with liver cancer and it was too late. It is all so eri and I cant help myself feeling that I am in the very same boat. Am I reading too much? Are these symptoms cause for concern?????

Your help and insight would be appreciated.

LMO

 
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