It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Cancer: Prostate Message Board

Prostate Cancer -- So many questions after reading


Post New Thread   Reply Reply
LinkBack Thread Tools Search this Thread
Old 09-13-2015, 03:56 PM   #1
USNC1
Newbie
(male)
 
Join Date: Sep 2015
Location: Charlotte, NC, USA
Posts: 1
USNC1 HB User
Prostate Cancer -- So many questions after reading

Hi, about 2 months ago, my biopsy revealed a Gleason 6 score of prostate cancer. Before I jump into my questions, let me first give you my stats and facts. I feel it will help generate some excellent advice.

Age: 54
Race: Black
Weight: 198lbs
Activity level - very active--puts over 10000 steps on my fitbit. somedays I put over 20k steps!
Height: 6' 2"

July 2014 -- local doctor noticed elevated PSA
October 2014 -- assigned urologist--had prostate exam
results showed enlarged prostate
April 2015 -- another PSA test--results -- PSA = 2.7, % Free PSA 3.7
July 2015 -- had prostate biopsy --- results index Gleason score: 3+3=6
4 out of the 12 samples were positive
clinical tumor stage T1c
Percentage of positive biopsy cores 33.33%

Ok, now that's my stats. Please help. At first, I was angry and just did not want to talk about it. I am married of over 32 years. Have 2 sons ages 30 and 27. My 27 yo is attending Dental school at the moment. I am retired military but still working in corporate america with a super 7 to 4 job looking to retire for good in about 12 more years. While on vacation this past weekend, I started reading the question of others with symptons like mine. I had to back off because some of this research is really overwhelming! It's like I go into an analysis paralysis! Ok, off my soap box! The wife and I met with the Levine Cancer institute doctor last month and we return for a follow up tomorrow.

In our last meeting, we learn the doctor said he's not too concerned about me and placed me on "active surveillance". BUT he did say they do not know how active this cancer is. He said he wants to test my PSA every 6 months. That made the wife feel better.

After that appointment, I visited my natural path doctor. She spent 2 hours with me explaining cancer in more detail and told me I had to change my diet and lifestyle. SO, I did. I started a paleo diet. I dropped 15lbs in only 2 weeks. I upped my work outs in the yard. The natural path doc gave me some vitamins to take and I take them religiously 3 times a day. My skin has cleared up, I sleep very well now and I feel great!

My urologist wanted me to do this oncotypeDX test. But after researching it, I decided against it. He called me and asked why? I told him why plus my insurance did not want to pay for it. He suggested another one that was much cheaper but that got me thinking---why did I not get this option months ago? I dug deeper with my doctor asking him why this other test. He said, they caught my cancer in time and the test will tell him how much time they have before we have to start treating this tumor. My response is, if I'm in active surveillance, what difference does it make? He said, he believes at some point in time I will have to have my prostate removed----he just does not know when. He said, the cancer may never grow. he said the goal if I deceide to keep the prostate is to keep it contained IN the prostate. So, I asked him. If you were me, What would you do? He said, active surveillance.

So, the wife feels better. Me? I'm angry and really don't want to talk about it but i have too. To ignore this is stupid....I know that. But I'm still angry! So, I called some folks who had prostate cancer and asked them lots of questions about there decision. Here is what I learned: Four men were diagnosed in their 60s. Two went with the radiation seeds. Only one had the prostate removed. Those 2 have quarterly follow-ups. Out of those 2 men, one of them had the cancer return and lost one of his testicles. The 2 men who had their prostate removed, the cancer never came back and they think it was the best decision.

So, here I am leaning towards having this cancer completely removed. I know for a fact my sex life will just about go away if I do. But why is that? Does the blue pill control the penis or the prostate? My natural doctor said, she can't tell me what to do, but she does believe I have to watch this closely and make a decision quickly depending on how active the cancer is. I will say this. Since I've been taking the vitamins and changed my diet, I do feel much better.

Any comments you can give me will help. thank you for your time! And, I'm still little angry that I got this thing called cancer! But I will bless the Lord no matter what happens to my life!

regards,
USNC1

Last edited by Administrator; 10-07-2015 at 06:26 PM.

 
Reply With Quote
Sponsors Lightbulb
   
Old 10-07-2015, 05:42 PM   #2
IADT3since2000
Senior Veteran
(male)
 
Join Date: Nov 2007
Location: Annandale, VA, USA
Posts: 1,875
Blog Entries: 3
IADT3since2000 HB UserIADT3since2000 HB UserIADT3since2000 HB UserIADT3since2000 HB UserIADT3since2000 HB UserIADT3since2000 HB UserIADT3since2000 HB UserIADT3since2000 HB UserIADT3since2000 HB UserIADT3since2000 HB UserIADT3since2000 HB User
Re: Prostate Cancer -- So many questions after reading

I'm very envious of your numbers!

It's too bad the doctor did not give you and your wife more confidence about active surveillance. We survivors now have enough information to know that well-done active surveillance is highly effective. It gives the patient extra time before treatment is needed, if it is ever needed. A large proportion of patients on AS never need treatment!

Many of the major centers treating prostate cancer have large AS programs, but you can do fine with a savvy local doctor. If you want to learn more about AS and the research that backs it up, the Prostate Cancer Research Institute has good information for patients, and you can check our taxpayer supported www.pubmed.gov with the search string " prostate cancer AND active surveillance " to review published medical papers (at least the abstracts). I just tried the string and got 171 hits. Arguably the world's leading guru is an expert urologist named Dr. Laurence Klotz at the U. of Toronto. He enrolled the first patient in his series in late 1995, so you can see he has been watching AS results for some time. You can check his work by searching PubMed for " prostate cancer AND active surveillance and klotz l [au] ". I just did that and got 80 hits. (He is an awesomely prolific researcher/physician, one of the truly brilliant people in prostate cancer.) Johns Hopkins, MD Anderson, UCSF, Memorial Sloan Kettering and several overseas programs also have published about AS.

I'm thinking those other guys you talked to will come to envy you.

Good luck.

Last edited by Administrator; 10-07-2015 at 06:27 PM.

 
Reply With Quote
Reply Reply




Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 09:29 AM.



Site owned and operated by HealthBoards.com™
Terms of Use © 1998-2017 HealthBoards.com™ All rights reserved.
Do not copy or redistribute in any form!