It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Cancer: Prostate Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 02-11-2008, 10:44 AM   #1
Junior Member
(male)
 
Join Date: Sep 2007
Location: CA, USA
Posts: 34
MMS2 HB User
Wink 3 Months Check Point!

Gents:
I wanted to cap my three months post op, but first and foremost, I cannot tell you all how instrumental these postings have been for me. Basically it put me in charge of my Prostate cancer treament, and helped me to manage my doctors as they are all too busy for details. So kudos to many of you who are offering your experience to us mostly readers. Please keep it up.

I am 56 years old, Pre-op PSA of 5.4, Gleason of 3+4, which turned out to be 4+3.

Once I found out about my cancer, this message board became my best point of reference. I read Dr. Patrick Walsh's book, and passed on my local surgent, and went to the best surgent, at the Standford University Hospital.

As the good book says, there are surgery, Cancer, Continence and ED to worry about.

I chose to go with the RRP and made sure my surgent has had good scores and expertise on this procedure.

Obviously the two weeks recovery was not all that fun! But one advice on this posting was to use Neoporin+Pain on the catheter, and believe me as a disinfectant and lubricant was a total a life saver. What a great advice.

I improvised on the Urine bag, and only used the large bed bag for all two weeks. Basically I bought a cheap pair of sweat pants, cut a large hole on the seems on both sides, and passed the bag through it and placed it in a fancy shopping bag going for LONG walks everyday!
I ulternated to each leg, so there was less skin irritation on my legs.

Long walks and good diet, and great family support, helped me to drop my cholesterol by 30 points and my weight by 10 pounds in 30 days.

The surgery went well, clear edges, lost one third of my left nerves in the process only.

Three months post op, and my PSA results just come in as <.02 I guess being proactive and on top of it paid off for me.

In the continence department, 2 weeks ago I felt that I no longer needed the pad at night, one pad a day will do me fine unless I am working in the backyard and lifting stuff.

On the ED segment, I am not doing too well. I am following the advice of this board and and taking a quarter of V pill everyday and hoping for the sun to rise at some point!

I have heard that from here on every six month PSA test is in order, but my surgent wants to see every three months for the first year, any comments?

Anyway, a quick recap of where I am at this point. Once again I want to thank all our veterans for chimming in giving their advice, it sure helped me a lot.
-Mike

 
Sponsors Lightbulb
   
Old 02-11-2008, 11:45 AM   #2
Veteran
(male)
 
Join Date: Jun 2007
Location: Philadelphia, PA USA
Posts: 358
able5 HB User
Re: 3 Months Check Point!

Quote:
Originally Posted by MMS2 View Post
Anyway, a quick recap of where I am at this point. Once again I want to thank all our veterans for chimming in giving their advice, it sure helped me a lot.
-Mike
Hang in there Mike...

It keeps getting better. Not in leaps and bounds. Just slow and gradual improvement. You've got to keep in mind that your surgeon yanked and pulled on nerve bundles that have been left virtually undisturbed for 56 years. All of a sudden one day he's inside your abdominal cavity and he's stretching this delicate nerves like he's pulling taffy. Any wonder that long term recovery is necessary? I guess not! Anyway, full nerve bundle recovery will take time and patience.

All the best and keep posting!

__________________
robotic LRP; Jan2007

 
Old 02-11-2008, 05:04 PM   #3
Veteran
(male)
 
Join Date: Aug 2006
Location: NJ,USA
Posts: 362
shs50 HB User
Re: 3 Months Check Point!

The specialists who recommend daily dosing of Viagra to restore erectile funmction following surgery usually recommend higher dosages such as 50 or 100mg daily. Whether this really jump starts the nerve healing process is open to question but its doubtful that 1/4 or 25mg of Viagra will have any effect. Suggest you check back with the Dr. or consult a specialist in sexual function following Radical Prostatectomy regarding the most effective dosing level. You might also want to look into using the VED System( Vacuum Erection Device) which many of us have found quite effective either alone or in combination with PDE inhibitors such as Viagra,Levitra and Ciallis. The most frequently recommended model is the Osbon ErecAid System which is available directly from the company by prescription only and covered by most insurance plans. The company is Timm Medical Systems, Inc. and most urologists are familiar with the product.

Last edited by moderator2; 02-11-2008 at 05:33 PM. Reason: please read our rules - product names are allowed - websites and contact information are not

 
Old 02-12-2008, 06:40 AM   #4
Junior Member
(male)
 
Join Date: Sep 2007
Location: CA, USA
Posts: 34
MMS2 HB User
Re: 3 Months Check Point!

Good points. Thanks will look into it.

 
Old 02-12-2008, 01:47 PM   #5
Junior Member
(male)
 
Join Date: Sep 2007
Location: CA, USA
Posts: 34
MMS2 HB User
Re: 3 Months Check Point!

Here is a reply from my specialist, who is highly regarded by the way:

Unclear what the correct dose for Viagra should be because it has not
been studied yet. In one study of men with ED of all causes, 25 mg
was given a day and found to be as good or better than giving high
doses when needed. In studies of patients who have had a radical
prostatectomy, the daily doses used have been 50 mg and 100 mg. In
that case a higher dose did not make any difference. whether the same
is true of 25 mg in that setting is not known. Based on what I know
about the drug, I bet 25 mg a day is fine.

I have not recommended the osbon system at this point. There is some
anecdotal evidence that using at after surgery can decrease changes in
the penis, but this has been poorly studied.

I have not routinely sent patients to an ED specialist at this point
after surgery. Usually I have waited until 1 year after surgery.
However, in occasional cases, I have sent men to an ED specialist
earlier if they would like to begin injection therapy (prostaglandin
injects to the penis) early so they can get back to being sexually
active while their nerves are recovering.

 
Old 02-12-2008, 02:25 PM   #6
Junior Member
(male)
 
Join Date: Sep 2007
Location: CA, USA
Posts: 34
MMS2 HB User
Re: 3 Months CheckPoint!

Everyone's point of view is important. I have treated this kind of like stock advice. Listen, but do own research. I appreciate everyone's comments.

 
Old 03-01-2008, 03:33 PM   #7
Member
(male)
 
Join Date: Jul 2007
Location: New York NY
Posts: 89
GBINAB HB User
Re: 3 Months CheckPoint!

Quote:
Originally Posted by MMS2 View Post
Everyone's point of view is important. I have treated this kind of like stock advice. Listen, but do own research. I appreciate everyone's comments.
Hi Mike ,
I have read your post and the comments, and must congratulate you on the main event: YOU ARE CANCER FREE!!!! and most likely if you have had a healthy sex life pre surgery you will recover better in the ED dept.

I am in a similar route but had the open surgery with bi lateral nerve sparing back in June 2007, however as Able pointed out it takes a long time for nerves to recover from the "shock" they been through even if they fully saved, i am 8.5 months post op now and just start seeing some significant improvement in the ED Dept. (maybe now at 90&#37 and i hope before a year is out i will be back to a 100%.

My Uro was expecting a faster progress and mentioned the Muse and Injection therapy to me if i am nterested in faster moving results, being that my surgery went well and my nerves were spared.
I thought as your Uro said , before giving a full year for your nerves to recover it would be rushing into more advanced treatment prematurely and not giving your nerves the chance to heal and recover fully.

I am only starting now to be a bit more agressive with the Meds an VED once i felt there is a progress.

It does take time , patience , and gradual therapy to get back to normal.
i hope to read some more good news from you on this post.

good luck !! and keep up the good work...
GB

Last edited by GBINAB; 03-01-2008 at 03:46 PM. Reason: typo

 
Old 03-03-2008, 06:00 AM   #8
Member
(male)
 
Join Date: Jul 2007
Location: New York NY
Posts: 89
GBINAB HB User
Re: 3 Months CheckPoint!

Quote:
Originally Posted by MMS2 View Post
Everyone's point of view is important. I have treated this kind of like stock advice. Listen, but do own research. I appreciate everyone's comments.
Hi Again Mike ,
I just read or found out that there is a stronger dose of Viagra on the market called Viagra Pro i am not sure if its real, i never tried any, but maybe worth checking into it ....anyone jheard of it ?

GB

 
Old 03-03-2008, 02:22 PM   #9
Junior Member
(male)
 
Join Date: Sep 2007
Location: CA, USA
Posts: 34
MMS2 HB User
Re: 3 Months Check Point!

Thanks for your comment GBINAB.
I am beginning to see minor imporvement in the ED dept. But I noticed that when I get a bit of an erection, I would feel some pain in my penis shaft! Is this normal?
As far as the V goes, as you mentioned, I plan to go with with 1/4 V for now and take it easy on the nurves. Today is exactly four months post my ops.
MS

 
Old 03-04-2008, 04:14 PM   #10
Member
(male)
 
Join Date: Jul 2007
Location: New York NY
Posts: 89
GBINAB HB User
Re: 3 Months Check Point!

Quote:
Originally Posted by MMS2 View Post
Thanks for your comment GBINAB.
I am beginning to see minor imporvement in the ED dept. But I noticed that when I get a bit of an erection, I would feel some pain in my penis shaft! Is this normal?
As far as the V goes, as you mentioned, I plan to go with with 1/4 V for now and take it easy on the nurves. Today is exactly four months post my ops.
MS
Yes the pain is absolutley normal mike, i had that feeling as well at 4 months when i had minor uncontrolled erections , your blood vessels are ginger and fragile after being poked and pushed, but it is a very good sign to feel some improvement already.... keep up the good work..
GB

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Thumbnail white lines for 9 months now all white benzboy Nail Problems 0 10-27-2009 10:58 PM
wait six months for next psa test? clem752 Cancer: Prostate 1 10-15-2009 10:08 AM
Still so far so good: 3rd PSA (6 months), third round, tenth year IADT3 IADT3since2000 Cancer: Prostate 5 05-18-2009 02:23 PM
Sore Thoat 5 Months Suffering.... yesithurts Ear, Nose & Throat 1 08-27-2008 10:20 PM
Checking in after quite a few months needtoescape Alzheimer's Disease & Dementia 9 11-11-2007 04:36 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Casodex
Cialis
Cipro
Flomax
Levaquin
  Levitra
Morphine
Proscar
Tylenol
Viagra




TOP THANKED CONTRIBUTORS



Tall Allen (174), IADT3since2000 (148), Baptista (97), Gleason9 (28), harpman (27), Johnt1 (22), honda50 (9), tumbleweed (6), flyfisher37 (6), GUAMJOHN (5)

Site Wide Totals

teteri66 (1136), MSJayhawk (941), Apollo123 (857), janewhite1 (823), Titchou (773), Gabriel (743), ladybud (667), sammy64 (666), midwest1 (655), BlueSkies14 (610)



All times are GMT -7. The time now is 07:47 PM.



Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!