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Cancer: Prostate Message Board
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Old 01-24-2009, 10:10 AM   #31
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precious49 HB User
Re: My Husband has Prostate Cancer - now what?

Hello Jim,
I'm so sorry to hear about your neighbor and I will keep that family in my prayers. So young and willing to help, it breaks my heart. I can't imagine loosing a child at that age.

You are very welcome for my kind words and that's because I really mean it--I have learned so much from you and I will take the information you provided on this post and study up. My husband goes in for his next PSA in March. I'm very impressed with his Dr. I didn't like him at first because he doesn't have "a very good bedside manner". But I've learned that--to me now--that really doesn't matter. This Dr. saved my husband and I know that he does alot of Robotic Surgeries and he needs to be to the point and get on with his job.

Sorry that it took me so long to get back to you. I had a couple of things that were overwhelming Tues. and Wed. Tuesday, I had to give my Yorkshire Terrier mouth to snout resuscitation. I almost lost her--but thank the Lord--she's just fine. Then Wednesday evening about 9:30, my husband had to take me to the ER. I've been having pain in my gut about an hour after I eat and have had some tests. At the ER they said it was probably my gallbladder, so I go Tues. for that test. Never dull at my house!!!

Again, Thank You so Much for all your information and I pray that your life is full of joy.
precious49 (Donna) God Bless You and Yours Today and EveryDay

 
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Old 01-24-2009, 10:24 AM   #32
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precious49 HB User
Re: My Husband has Prostate Cancer - now what?

Quote:
Originally Posted by daff View Post
While it's excellent that your husband and many others come through surgery cancer free, having surgery doesn't guarantee this. I think it's a misconception that surgery equals cure and radiation is a distant second in terms of cure. One of the benefits of advanced forms of external beam radiation is the ability to treat the margins that may have cancerous cells, as well as the prostate itself. Those that have surgery and find out that not all the cells have been removed may need to also get radiation to the prostate bed after they've recovered from the surgery, meaning they will have had to go through two courses of treatment.
Hello daff,
Thank you for your response. I do understand that having the organ removed is no guarantee. I had a hysterectomy at age 28 because of cancer and I still am tested to make sure everything is OK. But the cancerous organ is gone from my husband and now we deal with the other possibilites that we need to be aware of to keep him cancer free. The thing we don't have to worry about is his prostate having cancer because it's gone.
But yes, I know that there is no guarantee and that there could be cancer somewhere else. Cancer is so evil and I know that because I took care of both of my parents (who lived in our apartment built onto our house) who went home to be with the Lord within 6 months of each other. It's not a good way to go but Praise God--my parents went quick and didn't have to suffer too much.
Thanks again for reminding me that it is something that we all need to be aware of and that we need to take charge of our healthcare. precious49
God Bless You and Yours Today and EveryDay

 
Old 02-06-2009, 06:46 AM   #33
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Wildewoman HB User
Re: My Husband has Prostate Cancer - now what?

We are back from our cruise & for 7 fabulous days we actually forgot about the PC.

Alas, it is only 5 am here in California & the appointment with the Cancer Team is from 10 - 1 pm this afternoon (they are treating us to lunch as the surgeon will be late & will join us later)

I have a 3 page lists of questions - basically general stuff - scores, results, etc.

We have pretty much decided on the laproscopic surgery unless they have some other information that will drastically sway us another way.

Waiting is NOT an option for us.

Didn't sleep well last night - I've taken the day off to go, listen & be supportive.

Any last minutes advice?? Any last minute questions that we need to ask??

Thanks so much!!

 
Old 02-07-2009, 04:12 AM   #34
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viperfred HB User
Re: My Husband has Prostate Cancer - now what?

I am on my way home from a CyberKnife users meeting.

I was able to attend 6 presentations on SBRT or CyberKnife. ED at 3-4 years typically 10% with some patients having better than base line sexual activity at 4 years. This got a big laugh as a new treatment.

Side effects for all studies are tracking Dr. Kings and the expectation is that this will continue. The newest model has even better features for target(prostate) tracking and the margins near critical structures approaching zero.

Amazing.

I was invited as a patient advocate for choice and to help with appeals.

 
Old 02-09-2009, 07:19 AM   #35
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daff HB User
Re: My Husband has Prostate Cancer - now what?

Quote:
Originally Posted by Wildewoman View Post
....the appointment with the Cancer Team is from 10 - 1 pm this afternoon .... I've taken the day off to go, listen & be supportive....
Just wondering if the information from this board helped at all when you had your doctors' team meeting this past Friday. How did everything go, and did you ratify your decision to go with the surgical approach?

 
Old 02-09-2009, 07:52 AM   #36
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Re: My Husband has Prostate Cancer - now what?

Quote:
Originally Posted by daff View Post
Just wondering if the information from this board helped at all when you had your doctors' team meeting this past Friday. How did everything go, and did you ratify your decision to go with the surgical approach?
We listened to all of the comments & went with the surgery. It is scheduled for the end of March. We are very happy with the choice - we almost went with the radiation - but when we met with the surgeon, he was so much more easy to talk to - felt like a friends - spent a lot of time with us.

This board helped immensely as we knew what to ask & what the answers meant!!

 
Old 02-09-2009, 07:54 AM   #37
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precious49 HB User
Re: My Husband has Prostate Cancer - now what?

Wildewoman,
I'm so glad that you had such a great trip. I just pray that everything now will go easy for you and your husband. I will be here if you need me after the surgery. precious49
God Bless You and Yours Today and EveryDay

 
Old 02-09-2009, 10:19 AM   #38
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Re: My Husband has Prostate Cancer - now what?

Quote:
Originally Posted by viperfred View Post
I am on my way home from a CyberKnife users meeting.

I was able to attend 6 presentations on SBRT or CyberKnife. ...
I was invited as a patient advocate for choice and to help with appeals.
I'm glad you had such a fine meeting, and I can't think of a better person to serve as a patient advocate and to help with appeals.

Jim

 
Old 02-09-2009, 10:38 AM   #39
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Re: My Husband has Prostate Cancer - now what?

Quote:
Originally Posted by Wildewoman View Post
We listened to all of the comments & went with the surgery. It is scheduled for the end of March. We are very happy with the choice - we almost went with the radiation - but when we met with the surgeon, he was so much more easy to talk to - felt like a friends - spent a lot of time with us.

This board helped immensely as we knew what to ask & what the answers meant!!
Hi Wildewoman and Sneadman,

It's very good that you were able to seriously look at several options, and I'm especially glad to hear that you found a choice of treatment and doctor that gives you confidence! I believe that we patients often have a sixth sense for what is right for us, provided we have done our homework.

Just to cover yourselves, getting an ultrasensitive PSA that is accurate down to <0.01 would be a wise step for followup monitoring. That hopefully would give you early peace of mind, but even if not, you would know early to take additional steps, some of which are as simple as supplements, and those at times are enough by themselves to stabilize or reverse mild recurrences.

I think you have found that best path for you, and I wish you well!

Jim

 
Old 02-09-2009, 11:25 PM   #40
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viperfred HB User
Re: My Husband has Prostate Cancer - now what?

Congratulations!

Making a treatment choice is half the battle and now you can move on to better times after treatment.

I wish the very best possible outcome for you and your husband.

Jim's PSA advise is good and important. Suggest the same lab be used for the Ultra.Sen. PSA test.

 
Old 02-10-2009, 11:16 AM   #41
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shs50 HB User
Re: My Husband has Prostate Cancer - now what?

We're all pulling for you now that you both have reached an informed decision and are comfortable both with your treatment choice and the surgeon who'll be performing it. I agree with Jim's recommendation about the ultra-sensitive PSA as the means of monitoring the post- surgical outcome.
I would only add that now that you've reached your decision and have scheduled the surgery, relax in the knowledge that you've done everything appropriately at your end and look forward to a completely successful result. Under no circumstanes should you look back or second guess any of the steps which led you to this point.
Best of Luck and let us know how it goes.
Bob

 
Old 05-29-2010, 09:59 AM   #42
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Geoff41 HB User
Re: My Husband has Prostate Cancer - now what?

My husband has just been given simular options..from what i understand its very slow growing and if i was you i would go on your holiday and try to put it to the back of your mind..sort it out when you get back.
Best of luck Carol

 
Old 10-28-2010, 10:00 PM   #43
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pretty12d HB User
Re: My Husband has Prostate Cancer - now what?

Hi Wildewoman:

I'm a 65 year old male who has had two episodes of recurrent prostate cancer in 2007 and 2009. Initially I had external beam radiation therapy and a surgical procedure called HIFU (high intensity focused ultrasound) which utilizes sound waves to essentially burn out the prostate-this is approved in Canada but not approved by the F.D.A. in the States. Coincidentally I'm part of a North American study that is examing the safety of this procedure in the hope that it will be approved for use in the States. From the three options that you mentioned, I assume that you are not currently dealing with a large cancer centre because there are more than three options available. Two other options are brachytherapy (radioactive beads are implanted in the cancerous areas of the prostate) plus cryotherapy (freezing) the tumor. You also didn't mention your husband's Gleason score or P.S.A. level. Unfortunately all cancer treatment options have side effects-the question is not if but rather degree of side effects. Let me wish both of you good luck in your journey. Let me conclude by suggesting that you go to an academic centre that specializes in Cancer treatment(s). Finally do some home work prior to seeing the specialist by accessing the internet < edited > If I can be of any further assistance please feel free to contact me at your convenience.

Last edited by hb-mod; 10-29-2010 at 01:07 AM. Reason: Please don't post unapproved websites, per Posting Policy. Thanks.

 
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