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Old 03-26-2010, 11:02 AM   #61
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equation319 HB User
Re: My Husband, 43 yrs. old was just dx with prostate ca, gleason score of 6

This coming Saturday (April 3) will mark my one year anniversary of a radical prostatechomy and I want to encourage you that life does go on, and that being able to say that you are now cancer free, is the best feeling in the world. The operation was absolutely no fun but I was surprised as to how quickly it was all behind me. All the worries of the "indignities to the plumbing" were soon forgotten whenever I remembered that my cancer could have put a serious dent in my time on this planet.The dreaded incontinence disappeared within days and frankly, thank goodness for Cialis! My point is that it is vitally important for you and your husband to focus on educating yourselves on the alternatives, make an informed decision and get yourselves on the road to recovery. Keep in mind the objective of dealing with the cancer first and the aftereffects second. If it's surgery, find the best surgeon (if you are Canadian, I highly recommend the Vancouver prostate center), if it's radioactivity, learn of the various methods and what the later prognosis could be if the cancer returns or if some of it is missed. Check into the nerve-sparing "cavermap" technique which could markedly decrease the post op fears of incontinence and impotence. Prepare for the battle by getting fit and if necessary, lose that extra weight. Your husband is young so the "watchful waiting" may not be the best option, although his current numbers (Gleason and PSA) are low. One out of six men get this disease and the ones who suffer the most from it are those that ignore it or discovered it too late. At this stage your prospects are extremely good so take advantage of your lucky "wake up" call! This summer my wife and I are going cycling in France with a group and will be riding part of stages 8 and 9 of Le Tour de France. You WILL get through this and life does go on.....even a bit sweeter. Good luck to you both!
Ed

 
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Old 03-27-2010, 04:34 PM   #62
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Re: My Husband, 43 yrs. old was just dx with prostate ca, gleason score of 6

Hi:

I was diagnosed with PC when I was 49 years old. I had one of the first nerve sparing radical protatectomy's done at MD Anderson Hospital in Houston. That was 11 1/2 years ago.

While one thinks about the possibility of impotence and incontinence as horrific, I can personally tell you that I am fine and well.

I would suggest that you and your husband find a Urologist that you trust, sit down with him and discuss all of the options then make your decision.

Last edited by moderator2; 03-27-2010 at 05:00 PM. Reason: please do not post your email address

 
Old 04-08-2010, 05:12 PM   #63
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Re: My Husband, 43 yrs. old was just dx with prostate ca, gleason score of 6

i have a gleason score of 3+3 iam going to have it removed your husband is young he will still have a sex life. if you have the seed implant and 2 years later the cancer comes back its all over.

 
Old 04-09-2010, 04:29 PM   #64
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Re: My Husband, 43 yrs. old was just dx with prostate ca, gleason score of 6

<<if you have the seed implant and 2 years later the cancer comes back its all over.>>


This is not true. There are other treatments for those who have seeding and a subsequent failure, including re-seeding, potentially external beam radiation, HIFU, cryosurgery, possibly a salvage prostatectomy, and hormone treatments. I am not trying to convince anyone to do surgery or seeds or any other treatment -- that is an individual decision to be made by each person after getting a variety of professional input. But the suggestion that if you have failure after seeding, "it is all over" is not right.

Last edited by medved; 04-09-2010 at 04:31 PM. Reason: include additional alternatives

 
Old 06-07-2010, 10:00 AM   #65
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Re: My Husband, 43 yrs. old was just dx with prostate ca, gleason score of 6

Hello Sbear1102. I wish you and your husband all the best in this fight. I was stunned at first when my biopsy came back positive. I just turned 61, I jog 2-3 miles, go to the gym etc, no one believes I am 61. I just had robotic surgery on 4/12/10. Original gleason was 3+4, T1c, but the majority of my cores were positive.

I decided on the robotic surgery as my urologis thought that was the way to go due to my young age. I did explore all the other options.

After the surgery my gleason was 4+3 and my staging went to T3, so I know I made the correct decision to have the cancer removed. It is now 8 weeks since the surgery and the incontinence is not that bad, 1 pad a day.

Sexual function still has not returned, and I had problems before the surgery, I took 100m.g. Viagra for erections. I continue to do my kegels and hopefully I will resume the life I had prior to surgery.

I wish you both all the best and Good Health.

 
Old 06-08-2010, 01:03 AM   #66
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Re: My Husband, 43 yrs. old was just dx with prostate ca, gleason score of 6

Quote:
Originally Posted by sbear1102 View Post
Please, anyone who can offer any input or information. My husband had a high PSA level a month ago (over 5). I wanted him to get a level b/c of his frequent trips to the bathroom. The report came back today, I'm not a doctor, but it shows 4 out of 6 specimens positive: specimen b: malignant (3+3) =6 PTI: 20% specimen c: Malignant (3+3)= 6 30% specimen e: malignant (3+3)= 6 20% specimen f maligant (3+3)=6 15%

based on the above, and the his age (he will be 44 this Aug), should he have his prostate removed or radiation? Has anyone know or personally experienced prostate ca at this age? Please help with any information, thank you.
Hello SBEAR1102. I am somewhat older than your husband but I was diagnosed with prostate cancer in 2004, PSA 6.7 and further biopsy tests showed it to be malignant. After a year of further tests and many discussions with my doctors, I opted for the radical prostatectomy rather than take a chance with radiotherapy. My surgeon advised me that there was a 70% chance of me not being able to achieve an erection again and I'm afraid that is the case but healthwise, I am back on track. I have my PSA checked every six months and it's 0.004 now. Soon I'll be checking it yearly.

With regard to me not being able to achieve an erection, I still have the sexual urge, can be satisfied, by which I will not go into here and I am able to satisfy my wife and again I do not think it appropriate to reveal how at this point in time.

Tell your husband to consider the various options such as laser surgery etc. but tell him not to let it destroy his life.

Kind regards, glanville63

 
Old 06-08-2010, 09:35 AM   #67
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Re: My Husband, 43 yrs. old was just dx with prostate ca, gleason score of 6

Quote:
Originally Posted by sbear1102 View Post
Please, anyone who can offer any input or information. My husband had a high PSA level a month ago (over 5). I wanted him to get a level b/c of his frequent trips to the bathroom. The report came back today, I'm not a doctor, but it shows 4 out of 6 specimens positive: specimen b: malignant (3+3) =6 PTI: 20% specimen c: Malignant (3+3)= 6 30% specimen e: malignant (3+3)= 6 20% specimen f maligant (3+3)=6 15%

based on the above, and the his age (he will be 44 this Aug), should he have his prostate removed or radiation? Has anyone know or personally experienced prostate ca at this age? Please help with any information, thank you.
my gleason score was 3+3 thats low cancer risk get a cancer doctors opinion not a uroligist they love to do surgury, iam on a vtamin d regiment 4,000 iu a day plus selenium, my psa is now 2.9 dont rush into anything

 
Old 06-09-2010, 11:10 AM   #68
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equation319 HB User
Re: My Husband, 43 yrs. old was just dx with prostate ca, gleason score of 6

If your husband were 70 years old (like me) I would suggest "watchful waiting" or, "active surveillence" in addition to spending a bunch of time educating himself (and you) about the options available (surgery, radiation, etc.), before making any decisions. And if the numbers weren't getting worse, he could live with it. His numbers are low but he has a lot of life left to live, and rather than die WITH prostate cancer (at an older age), it could progress to dying BECAUSE of prostate cancer. Please focus on the objective....get rid of the cancer...because it is not going to get better and could (at his age) get a lot worse. If your husband is healthy and fit, better to be proactive now rather than wait until the numbers are worse and/or his ability to withstand whatever treatment you and he choose, is riskier.
At age 69 my Gleason was 6 (3 out of 12 cores) but within a few months had progressed to 7. Active surveillence became a lesser option. Because I'm quite fit for my age I opted for surgery and lucked on to a great surgeon (B.C. Prostate Clinic, Vancouver, Dr. Martin Gleave). Two days after the staples were removed I threw away my diapers and within 2 months the rest of the "plumbing" kicked in (with some help from Cialis.....but, hey, I'm 70 for goodness sake!). A year and a bit later, it's now all behind me.
Incontinence and impotence are serious matters but dying from cancer is more so. Not every man suffers from either, or both, of the "indignities to the plumbing", I'm an example.
Educate yourself on the options, choose the best surgeon/radiologist/prostate center facility and do what my wife did.....look your caregiver (surgeon, radiologist, whatever) in the eye and tell him/her that you want their "A" game. I was at a teaching hospital (U.B.C.) and my wife insisted that Dr. Gleave do the surgery....not a student.
Last comment; If you opt for surgery, check into a "Cavermap". It's a nerve sparing procedure that worked for me.
Good Luck!

 
Old 06-13-2010, 09:40 PM   #69
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Re: My Husband, 43 yrs. old was just dx with prostate ca, gleason score of 6

My case was a bit different in that I had only 1 seed at 10% with a 3+3. I am 53 years old and opted for surgery. The best advice I got and I have seen from many members on this board is to get as much information as you can. Talk to the surgeons, the radiologists, etc. You will most likely get a biased view from some of them; however, my experieince was that the two surgeons I spoke to did a very nice job at laying out my options. I saw two surgeons as one specialized in the "open" proceedure while the other the robotic.

A Previous comment recommended against surgery due to his outcome. My guess is if you read enough literature you will find similar results with all the other treatment options. My outcome was very different and I had the robotic surgury last September. As I said above - the important part is to get lots of opinions and then make an educated decision.

 
Old 01-23-2011, 07:37 AM   #70
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Re: My Husband, 43 yrs. old was just dx with prostate ca, gleason score of 6

First of all, I am sorry to hear of your husband's diagnosis. I know it is quite a shock. But I am confident he will be ok. I am not speaking as a doctor but as someone who had a similar diagnosis. I am 50 yrs old. Not as young as your husband, but younger than everyone else I spoke to who had PC.
I would say the best thing to do is to talk to his doctors about all the options and continue to do your research. Together you will come to a decision that works for him and you.
I was a Gleason 6(3+3) TC1 w a psa of 4.4. After researching and discussing all the options I decided on Da Vinci robotic surgery at Johns Hopkins. I chose surgery bc I believe it gave me the most aggressive chance at full cure. The younger you are there is a higher emphasis on aggressive treatment. As my doc said we don't want you on the 10-12 yr plan. You need the 30 yr plan (40 in your husbands case).
In the end, it comes down to what works best for your husband. The radiation options have great success and my doc said I would probably do fine with that. But there is a piece of mind aspect to knowing you are removing the cancer and getting a full pathology report post operative that was important to me.
If your husband chooses surgery, given his age he is probably a good candidate for robotic. I had robotic on jan 10, 2011. I was home from the hospital in 2 days and am recovering well.
Yes, there are side effects to all treatments. So far I am fairing just fine with incontinence. The ED is a work in process but should recover. But I try to keep my mind on the main goal - cure the cancer!
If you choose surgery, I think the single most important factor is the experience of the surgeon. I was told the base learning curve for robotic is about 40 surgeries. The doc I went with has done well over 1000. That experience can be critical in not only the success of the cancer removal but also in minimizing side effects through skilled nerve sparing technique.
Good luck and best wishes to your husband on choosing a treatment path and on his eventual recovery!

 
Old 03-08-2011, 09:41 PM   #71
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Re: My Husband, 43 yrs. old was just dx with prostate ca, gleason score of 6

Quote:
Originally Posted by icancervive View Post
In my particular case, I went for the CT scan and bone scan on the same day. Because my doctor was associated with the hospital, the results were on the main server, so I didn't have to get a disc or film. Withing a day or so after the scans, I had the appointment with my original urologist where we discussed my options. Once, my wife and I decided on the course of action (DaVinci), I found the best available surgeon which happened to be at St. Joseph's Hospital in Atlanta.

Last edited by jellybean3009; 03-12-2011 at 12:02 AM. Reason: deleted by member

 
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