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Old 04-18-2010, 09:54 AM   #1
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Life a few days after surgery

I had my surgery last Wednesday - robotic laporoscopic prostatectomy. All went well. The surgeon spared the nerve bundles and seemed pleased with the results in general. I will learn the results of the pathology on the gland, seminal vesicles and lymph nodes next week when I get the cathetar removed. I returned home after one day in the hospital. I am recovering well and enjoying the sunshine. I take a few walks each day, watch too many movies, read too little, and sleep off and on throughout the day. I've been able to manage pain by using tylenol and moving my position as needed- haven't needed the vicodin at all. I'm eating well and managing a bit of constipation with prune juice. The cathetar is the most annoying thing, but manageable. I look forward to parting ways with it even though I understand the seperation is pretty uncomfortable.

I wish to thank KCON and IADT3since2000 for providing much needed information I used in making, what I believe, were informed decisions. KCON gave me a sense of what I could expect during the first two weeks after surgery and the confidence that I could manage things on my own if I chose that path. The books both individuals recommended were helpful as well. I read over a thousand pages on prostate cancer - and the effort has been worth it.

I am looking forward to functioning more fully in a few weeks and getting on with whatever challanges await.
-Lido

 
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Old 04-19-2010, 09:49 AM   #2
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Re: Life a few days after surgery

You are welcome. I'm glad to hear of your progress. Everything you described in your first paragraph sounds like normal progress...and sounds a lot like my experience.

Catheter will be gone soon, and then comes the slow progress to regain continence...it seems to move sooo slooowww, but I think part of it is in one's mind as a result of each bodily movement causes a tiny feeling of 'squirt, squirt.'

I'm a firm believer in Kegels. Studies show that almost everyone recovers continence with or without Kegels, but the studies also show that on average men who do Kegels recover weeks earlier than those who don't. I was motivated to recover quicker.

Hoping that you recieve favorable news with your pathology report later this week.

regards, KCON

 
Old 04-19-2010, 10:15 PM   #3
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Re: Life a few days after surgery

I did kegals too and they helped me regain contenence quickly. BTW, removing the catheter is not painful at all. It wasn't for me and those I've talked with either. Hope all turns out well with the pathology reports. I had the DaVinci LRP 3 years ago and am very happy with results.
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Old 04-20-2010, 10:15 AM   #4
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Re: Life a few days after surgery

Incontinence is going to be the biggest challenge unless the pathology report is discouraging. I practiced kegel exercises for a few weeks before the surgery and have been doing them a bit the last few days. I'm glad to hear the removal of the cathetar is not as bad as I've imagined.
-Lido

 
Old 04-20-2010, 05:08 PM   #5
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You know, it was a little weird because I was used to the catheter by the end of the week and was scared I would be completely incontinent when it was removed. Geeze, I could drink iced tea or beer all day and not have to get up to go pee. But when it was removed there was NO pain at all, just the sensation of it. And since I was used to doing kegals, I COULD "hold it" with some effort. Some guys have no incontinence at all! My wife had bought a box of Depends and I used some of them but not the whole box. I noticed I didn't leak any urine when I way lying down but there was always a little squirt when I got up from sitting or bent over or laughed IF I forgot to "hold it" with the Kegal. I hope you have the same good luck and if it means anything to you, I keep you in my prayers.

Michael
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Old 04-24-2010, 01:10 PM   #6
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Re: Life a few days after surgery

Lido I had the Da Vinci LRP on 4/14 so I may be only a couple days ahead of you. Your story sounds exactly like mine except my surgeon called two days after surgery with great news on the pathology report. The cancer was confined to the prostate and there was no evidence of cancer in the surrounding tissue. Being a Gleason 8 I consider myself truly blessed. The catheter removal did not hurt as the others have already said.

Deacon Michael- I'm curious about your comment about doing the Kegels when you get up, bend down, etc. I was told to do them (15 reps, 3x daily) in a seated position but not when making the above movements. I did start doing them on my own and it helps but I'm also concerned with straining something. I'm a huge Kegel fan or whatever it takes to regain my continence. The catheter has only been out 3 days so perhaps I'm being impatent, but I'm so over this already. Thanks everyone for your time.

 
Old 04-24-2010, 02:57 PM   #7
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Re: Life a few days after surgery

Quote:
Originally Posted by Jim1949 View Post
Lido I had the Da Vinci LRP on 4/14 so I may be only a couple days ahead of you. Your story sounds exactly like mine except my surgeon called two days after surgery with great news on the pathology report. The cancer was confined to the prostate and there was no evidence of cancer in the surrounding tissue. Being a Gleason 8 I consider myself truly blessed. The catheter removal did not hurt as the others have already said.

Deacon Michael- I'm curious about your comment about doing the Kegels when you get up, bend down, etc. I was told to do them (15 reps, 3x daily) in a seated position but not when making the above movements. I did start doing them on my own and it helps but I'm also concerned with straining something. I'm a huge Kegel fan or whatever it takes to regain my continence. The catheter has only been out 3 days so perhaps I'm being impatent, but I'm so over this already. Thanks everyone for your time.
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Old 04-24-2010, 03:09 PM   #8
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Re: Life a few days after surgery

About Kegals. No one ever told me about them. When I asked my urologist the only thing he said was "they can't hurt". So, I did them whenever I thought about it before surgery, with my catheter and when it was removed. I always seemed to squirt a bit when standing up from bend over but like I said, if I remembered to "tighten up" I held it OK. I was impatient too but it seemed each day was a little better and after a couple weeks I didn't really need a pad but I wore one anyway just in case. And there were a few times I was glad I did. But after about 3 weeks, I realized I didn't need a pad any more so I just stopped using one. It's been a little over 3 years now and I still get a "little squirt" once in a while if I'm squatting down and then get up but only a few drops. My briefs can handle it.
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Old 04-24-2010, 05:44 PM   #9
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Re: Life a few days after surgery

Hi Lido,

You wrote in your post #1 on this thread:
Quote:
Originally Posted by Lido View Post
...

I wish to thank KCON and IADT3since2000 for providing much needed information I used in making, what I believe, were informed decisions. KCON gave me a sense of what I could expect during the first two weeks after surgery and the confidence that I could manage things on my own if I chose that path. The books both individuals recommended were helpful as well. I read over a thousand pages on prostate cancer - and the effort has been worth it.

...
-Lido
I'll join kcon in saying "you're welcome." I'm glad we could help, and I'm convinced you will be better off for being an empowered patient.

There are two things I've heard that sound like good strategic points: ultrasensitive PSAs, and looking after potency recovery at an early stage.

Ultrasensitive PSAs should be brands sensitive to levels of <0.01; some kits are, and some kits are less sensitive. Ultrasensitive tests give you early reassurance or an early warning of recurrence, enabling you to take very early countermeasures that may prove to be all you will need to halt a rising PSA.

Potency recovery often involves the usual viagra-like drugs. Dr. Mulhall, the expert from Memorial Sloan Kettering in New York (Director, Sexual and Reproductive Medicine Program, Dept. of Urology), spoke at the National Conference on Prostate Cancer 2010 in Los Angeles. He emphasized that it was important to act early to prevent penile atrophy. His book is entitled "Saving Your Sex Life - A Guide for Men with Prostate Cancer," Hilton, 2008.

Good luck for continued smooth recoveries and take care,

Jim

 
Old 04-25-2010, 10:10 AM   #10
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Wink Re: Life a few days after surgery

The doctor told me to do about 200 kegals a day divided up by repetitions of 10 two second ones and 10 five to ten second ones, resting between each kegal. I'm also supposed to do half of them standing up and half sitting down. Sometimes I do them while I am walking (I walk as much as I can). The exercises seem to help and I notice I am able to do more things each day without that annoying 'squirt'.
Sometimes I forget to do them. I now keep a small stone in my pocket to remind me to exercise.
Hopefully my experience will be as good as yours.
Thanks for the encouragement.
-Lido

 
Old 04-25-2010, 10:44 AM   #11
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Re: Life a few days after surgery

Hi Jim,
Good advice again. My results from the pathology are good. though the gleason score was raised to 9, all of the cancer was confined to the prostate - none on the capsule, margins were negative; no cancer was found in the seminal vesicles or lymph nodes. The surgeon was able to spare both nerve bundles. I feel very fortunate to have gotten the bad news of cancer early. I am scheduled for the next PSA test in three months and will ask about the sensitivity of the test.

I really believe the studying helped me immensely to understand what I was (am) up against and the possible outcomes. I am far from being the expert you have become on this topic - in fact I hope to leave the topic somewhat behind me (for awhile I seemed obsessed in gaining knowledge about prostate cancer) and get on with other things like returning to work, planting a garden, and maybe dating again. I know that just because the results are good now does not mean that the cancer won't return later in life so I will continue to read things and refresh my knowledge.

I don't know what to think about the impotency issues since I don't have an active sex life. I don't know whether to just leave it alone or to pursue a course that would eventually allow for that. The issue is a conundrum. I don't wish to buy viagra just because someday I might want it. Yet something tells me that penile atrophy would not be a good thing.

Thanks again for providing such good advice. You have been a hopeful and ecncouraging part of my experience.
-Lido

Last edited by Lido; 04-25-2010 at 10:45 AM.

 
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