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Cancer: Prostate Message Board
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Old 12-03-2010, 09:10 PM   #1
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Janet Howard HB User
Post-Radiation Therapy Bladder Bleeding

My husband was diagnosed with prostate cancer in 2007 and had the da vinci surgery. He required salvage radiation treatment in 2008. In July 2010 his bladder began to bleed. Since then he has been cauterized, had hyperbaric chamber oxygen therapy and several weeks ago had nephrostomy tubes inserted to divert urine from his bladder. This is an attempt to dry out the bladder so it will heal. However, he continues to bleed and must be monitored almost daily for dropping red blood counts and transfusions.

We have been told that his is a very severe case and he may need to have his bladder removed to stop the bleeding. He is being treated at a major cancer center and we are consulting with another academic medical center.

Has anyone had experience with this long-term late effect? If so, do you mind sharing your experience?

Thanks,

Janet

 
Old 12-04-2010, 07:50 PM   #2
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Re: Post-Radiation Therapy Bladder Bleeding

Hi Janet,

Welcome to the board, though I'm sure this is one group you would have rather had no reason to join, along with the rest of us.

Dr. Charles "Snuffy" Myers is a leading prostate cancer medical oncologist, but he is also man who had to deal with his own challenging case of prostate cancer, including an aggressive course of radiation therapy (also hormonal blockade for about 19 months, and highly target lymph gland surgery). The side effects from the radiation, including bleeding, were severe enough that he had to suspend his medical practice for many months, though he resumed his practice within a year or two. That prompted him to thoroughly research how to cope with such side effects, and he reported what he learned and what worked for him in several issues of his Prostate Forum newsletter. He still publishes his newsletter each month, but the issues of interest to you were published years ago. Fortunately, back issues are available. You might want to obtain these issues for you and your husband, or you might find them in the library of a well-stocked education and support group near you, such as a chapter of the Us Too or Man-To-Man organization.

You can also use a marvelous free resource (paid for by us taxpayers), www.pubmed.gov, a site we can mention on this board because it is Government sponsored. I just searched PubMed (for Public Medicine) with this search string, not including the quotation marks, and got 224 hits: " prostate cancer AND radiation therapy AND side effects AND bleeding ". By clicking on the blue hypertext titles, you can read an "abstract", a description of the study, if there is one for that study. Much of the language is written by and for doctors, but a lot of it is understandable to us non-medically trained cancer survivors. Of course, you can also try your own search string, and you can use the "Limits" feature to narrow your search.

I hope you and your husband find something that works.

Take care,

Jim

 
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Old 12-04-2010, 08:25 PM   #3
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Janet Howard HB User
Re: Post-Radiation Therapy Bladder Bleeding

Dear Jim,

Thank you for your informative and thoughtful reply. We will follow your suggestions.

With the best wishes of this holiday season,

Janet

 
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