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Old 01-01-2011, 07:06 AM   #1
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Unhappy Just Dx'ed 12/28/10 & I'm only 43 yrs old

I am still slowly getting over the shock of my Dx. I am married,17 years, with a 3 year old. I was in the middle of what WAS a great life, great family, great friends, stable well paying job. Everything was going so good. Now this!

I am stage T1c, 6-24 slides positive for early stage non invasive cancer, all cores were Gleason 3+3=6, perinueral invasion was abesent, <10% cancer on all positive cores, DRE-negative, PSA 8.5.

My PSA has been stable since May '10. I wasn't informed of this May Psa by my primary for whatever reason, that's a another story! I had the psa taken in Dec. during a yearly physical and it was 8.5. This led to my biopsy.

I meet with my urologist next Wednesday and a radiation oncologist Friday. In the meantime I am researching what direction to take and what Dr. is the most capable. I am leaning heavily towards prostatectomy, by regular surgery or da Vinci. I have not decided.

It's not hard to find info, but it is hard to conclude who and where the procedure will take place...PLEASE assist me...PLEASE!!! Guys my son is 3...3 years old! I MUST LIVE...I MUST LIVE LONG...FOR HIM IF NOTHING ELSE!!!

THANKS for any support you can give!

Last edited by Mholiday2; 01-16-2011 at 05:04 PM. Reason: Had to update my clinical stage

 
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Old 01-01-2011, 08:51 AM   #2
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Re: Just Dx'ed 12/28/10 & I'm only 43 yrs old

Holiday,
Very few patients Dxed with a Gleason 6 ever die from prostate cancer. All prostate cancer is not the same, it can range from being harmless to highly agressive. One way to determine the risk factors is by Gleason grade and psa, and both of yours are low. Any treatment you choose will result in a cure rate in the mid 90% range and even if you are in the unlikly 5%, it would take years or decades to get symptoms. The survival rate of contained G6 is about 100% 10 years out.
Do your research very carefully because of the low risk of your cancer, side affects of the treatment options should play a very sidnificant part in coming to a treatment decision.
Some books to read before choosing a treatment or even seeing a doctor so you can ask intelligent questions, "Surviving Prostate Cancer" by Dr Patric Walsh" Invasion of the Prostate Snatchers" by dr Mark Scholz and "A Primer on Prostate Cancer" by Dr Stephen Strum. If you have a good conception of all these three books you will know more about pc than 90% of the doctors you will be seeing.
Only by being informed can you make the best decisions regarding your options.
JohnT

 
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Old 01-01-2011, 09:04 AM   #3
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Re: Just Dx'ed 12/28/10 & I'm only 43 yrs old

Thanks for replying. I've already order Walsh's book it should be here Monday. I'm going to order the other's you've suggested right now!

 
Old 01-01-2011, 11:58 AM   #4
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Re: Just Dx'ed 12/28/10 & I'm only 43 yrs old

Welcome to the club! I was dx'd in late 2006 at age 57. My biopsy path was Gleason 3+3=6 Right Apex only. I opted for radical surgery. I had a daVinci robotic prostatectomy in January 2007. My post op path came back a bit worse. My post op path was Gleason 3+4=7; Stage T2c; bilateral but confined to the prostate gland only. I'm glad I had it removed! Recovery was a cake walk! Back to work in 6 weeks only because I was a lineman for the phone company. If I did lighter work, I could have returned much sooner. I'm happy with the results. You need to remember, there are lots of ways to treat prostate cancer. I chose the one that made sense to me. You need to do the research (serious research) and decide what works best for you. There's lots of advice here but you need to remember, they are only opinions. As far as longevity, my uro says if I get to five years post op with a PSA that remains at zero, he will allow me to return back to my family doctor for all future PSA tests and consider me cancer free. I've had zeros since my surgery and my five year anniversary is January 2012. Best wishes!

Last edited by *tony*; 01-01-2011 at 12:05 PM.

 
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Old 01-01-2011, 01:04 PM   #5
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Re: Just Dx'ed 12/28/10 & I'm only 43 yrs old

If it's any help, I felt just like you when I heard my uro say the words, "You have prostate cancer." A shock! Although, my dad died of it in 1981 so I was always wondering and waiting.

Any PC history in your family?

 
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Old 01-01-2011, 07:18 PM   #6
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Re: Just Dx'ed 12/28/10 & I'm only 43 yrs old

Quote:
Originally Posted by *tony* View Post
If it's any help, I felt just like you when I heard my uro say the words, "You have prostate cancer." A shock! Although, my dad died of it in 1981 so I was always wondering and waiting.

Any PC history in your family?
Yes, my grandfather was Dx'ed in his mid 80's. He was given shots to suppress his testosterone levels and died at 96!! His brother my uncle has it now and he's in his mid to late 80's and is doing fine. No one else that I know of. My father is 65 & his last PSA was < 1.

Last edited by Mholiday2; 01-04-2011 at 03:41 PM.

 
Old 01-02-2011, 12:34 AM   #7
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Re: Just Dx'ed 12/28/10 & I'm only 43 yrs old

Quote:
Originally Posted by Mholiday2 View Post
I am still slowly getting over the shock of my Dx. I am married,17 years, with a 3 year old. I was in the middle of what WAS a great life, great family, great friends, stable well paying job. Everything was going so good. Now this!

I am stage T2, Gleason 6 , 3-12 slides positive for early stage non invasive cancer, PSA 8.6 max. My PSA has been stable since May '10. I wasn't informed of this May Psa by my primary for whatever reason, that's a another story! I had the psa taken in Dec. during a yearly physical and it was 8.4. This led to my biopsy.

I meet with my urologist next Wednesday and a radiation oncologist Friday. In the meantime I am researching what direction to take and what Dr. is the most capable. I am leaning heavily towards prostatectomy, by regular surgery or da Vinci. I have not decided.

It's not hard to find info, but it is hard to conclude who and where the procedure will take place...PLEASE assist me...PLEASE!!! Guys my son is 3...3 years old! I MUST LIVE...I MUST LIVE LONG...FOR HIM IF NOTHING ELSE!!!

THANKS for any support you can give!

 
Old 01-02-2011, 02:01 AM   #8
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Re: Just Dx'ed 12/28/10 & I'm only 43 yrs old

Once the initial shock settles in, approach the Dx with one objective. To make the best decision for you and your family. Research this dreaded disease and take notes, volumes of it. It will be a long drawn out battle. The more you know, the better your ultimate decision on how to battle it out. Thats how i approached my battle with PC. With your PSA at around 8 and a young 3 Year old, you need a solid game plan. After exhaustive research and interviews with the best specialists ( i spent almost a year researching ), i finally decided on an Open RP to treat my PC ( Gleeson 3+4 , PSA 11 , age 55 ). My PSA which had been holding steady at 8 had just jumped to 11 in a space of 3 months. Once i got the latest PSA reading, i immediately went on to the next stage and identified the best surgeon available in the country whom i wanted to perform the RP on me. I found one in Sydney, who was based in a different state from where i live, but that didnt matter, i felt he was the man i wanted to operate on me. I managed to get hold of him over the phone ( it wasnt easy, try calling a top specialist and see if they give you the light of day ). After speaking to him, i just felt i had found the right person i would entrust my life to. The vibes felt right. It wasnt the most economical route, the logistics and cost were horrendous, but money we can always earn back, Life is but one. I flew to see him Nov 2010, and booked surgery with him 6 weeks later in Dec. I had 6 weeks to get myself into good physical shape to prepare for the surgery. It was well worth it as i recovered post op with very little discomfort. I showered the day after surgery, had a solid breakfast and starting walking the hospital corridors. The choice of the surgeon was the best decision i ever made and he achieved the best results i could ever hope for. Negative margin , no lymph node involvement. The pathology from my excised prostate showed it was a nasty cancer which would have spread if i had waited much longer. The cathether came out a week after surgery, im now in my 2nd week post surgery and only needed to wear a pad the day they removed the cathether. Never needed a pad after that. I left for a long journey home the day after the cathether was removed, in time to spend Christmas Eve in my own home. Im hopeful for my potency to return in the future, but hey, the fun is in experimenting with Sex in a different playing field. But im hopeful. Very hopeful. A Positive Mental Attitude is imperative. In closing, let me add, Peter Scardino ( Sloan Kettering ) , Patrick Walsh ( John Hopkins ) specialist veterans from the best Institutes and experts in the field of PC, both say the same thing in their books, its not the procedure ( Robotic, Open etc ) but the CHOICE of the Surgeon thats crucial. Has he the numbers ( how many operations performed ) and track record ( post operative results on cure, continence and potency ) that matters most. Its still early days for me, but i feel great, and a burden has been lifted from my shoulders for now at least. That ticking time bomb in my belly has been removed, and with it, i hope and pray , the cancer within. Good Luck with your journey ahead, i will pray for your success in your endeavour. You may not decide to or need to go the surgery route like me, but the process of arriving at the final decision is still the same. Look for the best in their fields. It may cost more but its well worth it.

 
Old 01-02-2011, 05:26 AM   #9
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Re: Just Dx'ed 12/28/10 & I'm only 43 yrs old

Thanks for your prayers and the info. Finding the most "gifted" surgeon for my procedure is by far the most daunting task of this journey. Nevertheless, I'll take on the challenge for my family and me of course.

 
Old 01-02-2011, 07:10 AM   #10
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Re: Just Dx'ed 12/28/10 & I'm only 43 yrs old

Quote:
Originally Posted by Mholiday2 View Post
I am still slowly getting over the shock of my Dx. I am married,17 years, with a 3 year old. I was in the middle of what WAS a great life, great family, great friends, stable well paying job. Everything was going so good. Now this!

I am stage T2, Gleason 6 , 3-12 slides positive for early stage non invasive cancer, PSA 8.6 max. My PSA has been stable since May '10. I wasn't informed of this May Psa by my primary for whatever reason, that's a another story! I had the psa taken in Dec. during a yearly physical and it was 8.4. This led to my biopsy.

I meet with my urologist next Wednesday and a radiation oncologist Friday. In the meantime I am researching what direction to take and what Dr. is the most capable. I am leaning heavily towards prostatectomy, by regular surgery or da Vinci. I have not decided.

It's not hard to find info, but it is hard to conclude who and where the procedure will take place...PLEASE assist me...PLEASE!!! Guys my son is 3...3 years old! I MUST LIVE...I MUST LIVE LONG...FOR HIM IF NOTHING ELSE!!!

THANKS for any support you can give!
Hi Mholiday2:

I'm sorry to hear that you've now gained membership in a club that no one wishes to join. However; if this shocking news (diagnosis prostate cancer) can be temporarily put aside, there is ample room for a sense of optomisim coupled with an opportunity for a long and productive life. I would add that I fully agree with the comments echoed by Johnt1 regarding your risk factors-"as being low". The suggested reading material will also be instructive in terms of allowing you to get a better handle on your situation, and further assisting you in your future decison making process. Unfortunately, all interventional techniques have some significant side effect risks associated with the procedure-a radical has two significant risks that include: possible incontinence, and sexual impotence. Another option that you might want to consider is the option of "active surveillance". Probably the longest running program (15 years duration) is headed up by Dr. Lawrence Klotz in Toronto, Canada. You can Goggle his name + active surveillance and a great deal of information will pop up. Another good source for information gathering is PubMed. Finally, undoubtedly the most knowlegeable person on this site is Jim-his handle is IADT3since2000. If you don't hear from Jim, I'd make a concerted effort to contact him.
With all best wishes for the future.
Yours truly,
pretty12d

 
Old 01-02-2011, 10:04 AM   #11
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Re: Just Dx'ed 12/28/10 & I'm only 43 yrs old

Quote:
Originally Posted by Mholiday2 View Post
Thanks for your prayers and the info. Finding the most "gifted" surgeon for my procedure is by far the most daunting task of this journey. Nevertheless, I'll take on the challenge for my family and me of course.
My suggestion, try to select a surgeon with "plenty" of experience. Even if you have to travel a long distance to find a surgeon who has a fantastic reputation, it's worth it. My surgeon had over 900 daVinci surgeries under his belt by the time he got to me. He's a professor and he actually teaches the daVinci procedure and travels to hospitals all across America to train urologists on the daVinci procedure. If you have to spend money for airfare and hotels and car rentals just so you can get to an experienced surgeon, it's the best money you'll ever spend. That's my opinion.

Last edited by *tony*; 01-02-2011 at 02:38 PM.

 
Old 01-02-2011, 11:30 AM   #12
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Re: Just Dx'ed 12/28/10 & I'm only 43 yrs old

Quote:
Originally Posted by *tony* View Post
My suggestion, try to select a surgeon with "plenty" of experience. Even if you have to travel a long distance to find a surgeon who has a fantastic reputation, it's worth it. My surgeon had over 900 daVinci surgeries under his belt by the time he got to me. He's a professor and he actually teaches the daVinci procedure and travels to hospitals all across America to train urologists on the daVinci procedure. If you have to spend money for airfare and hotels and car rentals just so you can get to an experienced surgeon, it's the best money you'll even spend. That's my opinion.
I have no qualms with travel to be in the best surgeon's hands, but where do I begin? There's no clearinghouse of info on prostate cancer surgeons as far as I can tell. I am Very proficient on the Internet so obviously I start there, but I guess it's all in how string my search queries. I'm in NC.

I am currently reading Dr. Wash's book with more on the way! Thanks to everyone who have responded!

Last edited by Mholiday2; 01-02-2011 at 11:36 AM.

 
Old 01-02-2011, 11:43 AM   #13
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Re: Just Dx'ed 12/28/10 & I'm only 43 yrs old

Quote:
Originally Posted by Mholiday2 View Post
I have no qualms with travel to be in the best surgeon's hands, but where do I begin? There's no clearinghouse of info on prostate cancer surgeons as far as I can tell. I am Very proficient on the Internet so obviously I start there, but I guess it's all in how string my search queries. I'm in NC.

I am currently reading Dr. Wash's book with more on the way from Amazon! Thanks to everyone who have responded!

My surgeon was David B. Samadi M.D.

If you are considering surgery, especially daVinci robotic surgery, you might want to do an internet search for "Robotic Oncology".

Maybe you could give him a call on his toll free number.

What do you have to lose?

Last edited by *tony*; 01-02-2011 at 02:39 PM.

 
Old 01-02-2011, 02:33 PM   #14
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Re: Just Dx'ed 12/28/10 & I'm only 43 yrs old

Quote:
Originally Posted by Mholiday2 View Post
I have no qualms with travel to be in the best surgeon's hands, but where do I begin? There's no clearinghouse of info on prostate cancer surgeons as far as I can tell. I am Very proficient on the Internet so obviously I start there, but I guess it's all in how string my search queries. I'm in NC.

I am currently reading Dr. Wash's book with more on the way! Thanks to everyone who have responded!
Clearinghouse? I'm sure those who had prostate surgery, as well as those who chose a different treatment method, are happy to share their experiences with you. You are correct, there is no clearinghouse that rates doctor performance or treatment outcomes. There are only opinions and experiences. Over the years I have found that this forum is about sharing stories of those who have gone "down the road" before you and can share their experience and tell you what's in store and what to expect on a day by day basis. I would never tell you that my treatment choice was the best choice. What worked for me may not necessarily work for you. I can only give an opinion based on what happened to me. If you are looking for guarantees regarding outcomes, I don't think you'll find it here.

 
Old 01-03-2011, 04:14 AM   #15
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Re: Just Dx'ed 12/28/10 & I'm only 43 yrs old

Did any of you have a second opinion when it comes to reviewing your biopsy slides? It is recommended in Walsh's book. Of course, to one make sure you have PC and two to make sure it's properly staged. How does that work? Are the pics just sent to another pathologist?

I have not met with my urologist since my Dx, last Tuesday, so please excuse all my questions. I meet with him Wednesday and on Friday I meet with a "Radio Onc".

You guys are a big help!!! Thanks!

 
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