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Old 01-06-2011, 01:08 PM   #1
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Self intermittent catherisation

Well....here we go...uroligist stated me on January 5....had prostate removed but healing issues with uretha...have had 2 corrective suregeries to remove scar tissues and widen the uretha....so seld cath...to keep flowing and camrera on february 14...to see how been healing...anyone out these have something similar?
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Old 01-07-2011, 11:53 AM   #2
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Re: Self intermittent catherisation

Quote:
Originally Posted by LacLemay View Post
Well....here we go...uroligist stated me on January 5....had prostate removed but healing issues with uretha...have had 2 corrective suregeries to remove scar tissues and widen the uretha....so seld cath...to keep flowing and camrera on february 14...to see how been healing...anyone out these have something similar?
Hi Laclemay,

I know exactly what you are going through because I had almost the same problems after my RP in 2005. I had bladder neck tissue form to the extent that I had to make an emergency trip to the hospital to have the scar tissue open up so I could urinate again!

I started self cath with a 16F red rubber catheter and did that for about 6 months, then I moved to a 18F clear plastic catheter. After you do this for a while, it's not more difficult than brushing your teeth. I did the self cath thing for almost a year until the scar tissue had matured. Now everything is back to normal: no more self cathing and my urine flow is better than it's ever been.

I know of several other people that had to go through this same thing. In fact, I donated the rest of my catheters to my urologist so he could give them out to people that were a little short on cash and couldn't afford to buy their own.

It's not the end of the world, but I know it can seem like it sometimes. I'm sure you will eventually see the same results that I had.

Have fun. Lionel.

 
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Old 01-08-2011, 07:32 AM   #3
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Re: Self intermittent catherisation

Flyfisher37
Many thanks for your encouraging note. It seems we may be on the same path...so jsut to summarize...I had Prostate removed Julu 15...then real sore urinating around mid sept....so oct. 15 op to remove/scrape scar tissue and widen uretha...as far as I know...then in Nov...3 times to emergency as could not urinate...and you know what that pain is like. So few days later thecamera and then inserted catheter on Nov. 22 until last operation on Dec 17. So my understanding is the self cathetering is to keep channel open while continue to heal...was that your understanding?
1. I use a FR 16 I assume that is size...then you say you moved to larger size?
2. How many times a day did you do it...I was told just one a day...at anytime of the day.
3. I assume you had to drink lots of water during that time...do you still?
4. Initially after both operations I had debris coming out but now seems to have stopper...did you as well?

How how I appreciate your encouragement.

Sincerely
Greg...retired but still working...cheers
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Old 01-08-2011, 08:07 AM   #4
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Re: Self intermittent catherisation

Quote:
Originally Posted by LacLemay View Post
Flyfisher37
Many thanks for your encouraging note. It seems we may be on the same path...so jsut to summarize...I had Prostate removed Julu 15...then real sore urinating around mid sept....so oct. 15 op to remove/scrape scar tissue and widen uretha...as far as I know...then in Nov...3 times to emergency as could not urinate...and you know what that pain is like. So few days later thecamera and then inserted catheter on Nov. 22 until last operation on Dec 17. So my understanding is the self cathetering is to keep channel open while continue to heal...was that your understanding?

"Yes that was the idea behind the self cathing, to keep the channel open until the scar tissue matures."


1. I use a FR 16 I assume that is size...then you say you moved to larger size?

" The only reason I moved to a larger size was simply because I thought I could handle it. I also thought that if I used a larger size ( such as an 18F ), it would keep the passage open even better. My urologist told me that it wasn't necessary to go to a larger size, but he said if I wanted to, give it a try".

2. How many times a day did you do it...I was told just one a day...at anytime of the day.

" When I first started, I did it once a day, usually in the morning. After a while, say a few months, I started decreasing the frequency, say once every other day then every third day on so on, until I was only doing it about once a month near the end. You can sort of judge for yourself when to slow down by feeling the resistance of the scar tissue as you self cath. In the beginning, there was considerable resistance from the scar tissue as I pushed the catheter past the bladder neck opening. Eventually the resistance became less and less as the scar tissue matured. I know this sounds a little strange, but you will be able to assess the status of the scar tissue by feeling it with the catheter. Maybe not when you first start, but definitely later on. I noticed that when I switched from the red rubber catheter to the clear plastic one, I had a lot more sensitivity to the condition of the scar tissue. Near the end, when I started doing it only once a month, I could tell that there was no change in the scar tissue, so at that point I knew I was getting to the end of self cathing".


3. I assume you had to drink lots of water during that time...do you still?

" Actually I never drank as much water as I should have. I just don't like drinking water straight. Even now I don't drink nearly as much water as I'm supposed to. We're supposed to have about 8 glasses a day, and I would be lucky if I had 1 glass. I keep telling myself that I have to start drinking more water. But when it comes to red wine, I don't have any problem with that!".


4. Initially after both operations I had debris coming out but now seems to have stopper...did you as well?

" I had some debris come out when I first started but not that much, maybe just a few particles. Nothing after a few weeks.".

How how I appreciate your encouragement.

Sincerely
Greg...retired but still working...cheers
I hopes this helps you Greg and having to make an emergency trip to the hospital because you can't urinate is certainly something I never want to go through again!!! As you said, the pain can't be appreciated until you experience it.

Have a great day...Lionel

 
Old 01-08-2011, 08:51 AM   #5
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Re: Self intermittent catherisation

Did you ever reuse the same catherter?
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Old 01-09-2011, 06:45 AM   #6
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Re: Self intermittent catherisation

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Originally Posted by LacLemay View Post
Did you ever reuse the same catherter?
Hi Greg,

Yes it is possible to use the same catheter. When I was using the red rubber catheters ( which are fairly stiff ), you can wash them off after use and place them inside a plastic bag and then put them in the microwave oven to sterilize them. I don't actually remember how long I put them in the oven for, but it wasn't too long, maybe a few minutes.
If you put them in the microwave too long, the funnel end of the catheter will start to melt. Obviously that's too long. I would imagine a lot would have to do with the brand of catheter and the power of your microwave. You'll have to experiment.

I don't remember the brand name of the red rubber catheters I used but the clear plastic ones were made by Mentor. I didn't try to reuse the clear plastic ones because at that time I wasn't doing the self cathing every day, maybe once a week. I disgarded them after one use.

Hope this helps. Good luck. Lionel

 
Old 01-12-2011, 09:33 AM   #7
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Re: Self intermittent catherisation

Lionel

I have self cath for 7 days...on 3 days I passed a bit of blood...which as i understand it is part of the process....to make sure the scar tissues, etc...stay out of way of Uretha....I was wondering did you ever pass blood?

Cheers
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Old 01-13-2011, 09:00 AM   #8
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Re: Self intermittent catherisation

Quote:
Originally Posted by LacLemay View Post
Lionel

I have self cath for 7 days...on 3 days I passed a bit of blood...which as i understand it is part of the process....to make sure the scar tissues, etc...stay out of way of Uretha....I was wondering did you ever pass blood?

Cheers
Hi Greg, I don't ever recall passing any blood, but that whole thing was more than 5 years ago and there's probably some things I have forgotten. Possibly the type of scar tissue could have something to do with it. Mine was bladder neck scar tissue and yours apparently is scar tissue of the urethra. Could that make a difference? Sounds like passing some blood could be a reasonable expectation from self cathing, but like I said, I don't recall whether or not I passed any blood.

Also when I mentioned that you can reuse catheters, I should have mentioned that I never used one catheter more than 3 times, and then I discarded it. The big thing to avoid is giving yourself any kind of infection. When I was self cathing, I sterilized the whole bathroom sink area with bleach and washed my hands with anti-bacterial soap and then rubbed my hands with sanitizing gel. I also made sure that the catheter never touched anything that wasn't sterilized. In the year that I was doing it, I never had any kind of infection.

Keep up the good work and I sure hope the self-cathing works out well for you.

Lionel

 
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