After 11 years of advanced prostate cancer my options are Chemotherapy with Taxotere and Predisone(standard of care). My local Dr. administers this protocol.
Or traveling to Bethesda Md to The NCI for a Phase 2 clinical Trial of Taxotere Avastin and Revlimed.
Or traveling to LA for Dr. Bob Leibowitz's 3 pronged approach to Chemo Taxotere emyct Carboplatin and his angiogenesis cocktail.
At the NCI or in LA I would have to travel out of state every 3 weeks.
Originally I was scheduled for Provenge but that was taken off the table due to my psa doubling time of 2 weeks. Psa has gone from <0.05 to 22 at last reading 2 weeks ago in under 5 months. I am asymptomatic and feel pretty good. I exercise daily and eat healthy.
I travel out of State to the leading expert in the world who was diagnosed with PC in the same year I was(1999). He does not favor Chemo nor do I. However he had me contact Dr. William Dahut at the National Cancer Institute who picked up the phone when I called and said I may be very pleased with the results I obtain from his protocol.
So, I travel from Charleston SC this Sunday to meet and be evaluated by Dr. Dahut on Monday. I'm to receive blood work, chest x-ray and EKG etc.
Has anyone gone through this trial or the previous one they had using Thalidomide?
Any advice would be appreciated as the hotels in Bethesda are like $300 a night and you know I 'm not retired as I work to support my wife who has terrible Fibromyalgia and my 2 boys 13 and 11. I cannot afford serious side effects yer I know I need a HOWITZER to push this BEAst BACK! yES MY LAST 2 BONE SCANS SHOWED INCREASED METASTASIS TO BONE. i'm alarmed as I've had monthly infusions of Zometa for well over a year and it didn't seem to do much of anything.
Thanks for any advice as this is my first post to this forum.
The following user gives a hug of support to DonD:
I am sorry to read about your advanced case. Though I am not aware of those trials, I think that their results would not differ much in the way of your course. You need now “something” to handle your problem. Take the one that better fits your way of life and think in possibilities of changing protocols later when findings are out.