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Old 11-19-2011, 06:40 AM   #16
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Re: Thoughts on new FDA Propecia Warning?

Hi Allen,

Thanks for your response, post #13, on "Vitamin D and Prostate Cancer", and thanks for the research you did on this topic for your support group. It provides food for thought, to say the least.

In contrast with the research you have mentioned, I have been comfortable with a substantial dose of vitamin D3 in my program, but now I'm going to review the evidence, its soundness, and how vitamin D fits my circumstances. Part of this will be a review of what Dr. Myers has said in his books, presentations, and newsletters over the years, including cited studies. He is convinced he is seeing favorable effects in his practice when patients bring their vitamin D up to levels in the 50 to 80 range for 25-hydroxy vitamin D. This is not a minor topic for Dr. Myers; it's one of the key issues he emphasizes, and he has maintained that heavy emphasis for a number of years.

For now I'm going to continue with vitamin D3 supplementation as before, but I'm going to try to look into this soon. Unfortunately, this is a busy time of year, and I'm going to be especially engaged in dealing with my own case as it appears the thalidomide I've been taking is no longer controlling the cancer - not unexpected, but a couple of months earlier than I had hoped. Your list of studies gives me a good place to start.

Take care,

Jim

 
Old 11-19-2011, 10:00 AM   #17
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Re: Thoughts on new FDA Propecia Warning?

I'm so sorry to hear about the thalidomide. Is it possible that Revlimid (lenalidomide) might still work, or is that whole class no longer an option? MDV 3100 has been looking very good in clinical trials, maybe better even than Zytiga (abiraterone) for suppressing testosterone production. I'm sure whatever you decide to do next, it will be the most well-informed decision possible, knowing you.

- Allen

 
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Old 11-20-2011, 10:25 AM   #18
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Re: Thoughts on new FDA Propecia Warning?

Jim, I too, am so sorry to hear that the thalidomide is no longer effective in controlling your cancer. If I remember correctly, you were taking this drug to try and prolong your vacation period off of hormone therapy. At this point, I know you were considering going to Sandlake to see if you can find that nasty ol' beast and radiate it. Either that, or I think you mentioned going back on IADT3. Would you consider ketoconazole or abiraterone at this point? I suppose there are several options for you at this point, Jim. We're all on your side and know, without a doubt, that you will choose the best one.

Thinking about you and your fight always,
Rhonda

 
Old 11-23-2011, 02:47 PM   #19
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Re: Thoughts on new FDA Propecia Warning?

Thanks, harpman, for your post below:

Quote:
Originally Posted by harpman View Post
Tall Allen,
Check out a Donald Miller article titled, "Vitamin D in a New Light". Dr. Miller is a cardiac surgeon and Professor of Surgery at the University of Washington.
Bob
I learned several new things from Dr. Miller's article. What he wrote was consistent with my understanding, though I wish he would stress the need for monitoring when he suggests doses up to 10,000 IU as safe for many people. He also speculated, based on a paper in an Australian medical journal, that a one-time dose of 600,000 IU would be more effective in preventing flu than the flu shots. Based on what we know now, that strikes me as risky. He did call for more research.

He did a nice job of highlighting the geographic incidence of some diseases and relating that to vitamin D levels, though of course that is far from proof. I have seen atlases of prostate cancer, and it is striking how the incidence increases in the US as you get further north. (The reverse is true for skin cancer.)

He wrote his article in 2007. It will be interesting to sort out the negative and positive views of vitamin D supplementation.

Take care,

Jim

 
Old 11-23-2011, 02:58 PM   #20
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Re: Thoughts on new FDA Propecia Warning?

Hi Rhonda and Allen,

Thanks for your sympathy about the apparent failure of thalidomide for me. I've just posted about that, and I'm glad to be able to say that the situation is better than it looked a week ago. If there were an icon for wiping the sweat from your forehead and saying "Whew!", I would use it here.

I have looked at Revlimid, and I believe it's likely it would work better than thalidomide. However, it is so extremely expensive that I don't want to stick my insurer with the cost for my purpose - extending the off-therapy period, especially when thalidomide (also expensive but cheap compared to Revlimid) does a fairly good job.

I'm keeping my eyes open for options, but there's something to be said for using what has worked well before. That said, I expect I'll be following some fresh trails during the next year.

Take care,

Jim

 
Old 11-23-2011, 04:58 PM   #21
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Re: Thoughts on new FDA Propecia Warning?

I looked at his website -- he's one of those quacks who think HIV doesn't cause AIDS. I thought Harpman posted that to alert us to all the quackery and misinformation on the net. But maybe, he takes the man seriously. It's better to stick to sources in peer-reviewed journals, imho.

 
Old 11-23-2011, 05:04 PM   #22
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Re: Thoughts on new FDA Propecia Warning?

Jim, yesterday Celgene canceled their clinical trial of Revlimid+docetaxel vs placebo+docetaxel, because it didn't confer a survival benefit. It doesn't prove that Revlimid won't work as part of a different cocktail, though. But with this new information, it would be hard to justify the increased cost, as you say.

- Allen

 
Old 02-13-2012, 05:26 PM   #23
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Lightbulb Re: Thoughts on new FDA Propecia Warning?

To all out there: Please read information available at, drcatalona.com. He shares his thoughts on propecia, as well as other medications & types of treatment. Will also answer questions if can do so. He is a world authority on Prostate Cancer research. He's now located at Northwestern University in Chicago, Illinois, but has people, including other doctors, from all over the country & world that come to him for treatment. He has been operating & researching PC for over 35years & is the person that developed the PSA test & has pushed it as a viable tool, even when others question it's use. He's developed many other tests, as well as treatments used in PC, some of which only available by he & his staff.

My father was treated by him in '94 @ stage 3, & is still cancer free. By the way, he is also studing the connection between PC & breast & ovarian cancer in families. Worth looking into this subject. When I was DX'd w/Breast Cancer in '07, he is who I contacted for help & direction. My being in the St. Louis area, he could only offer limited help, but was enough to get me past that "deer in the headlight" period. Yes, am still cancer free!!!

Best wishes to all on your journey!!!

P.S. If at all possible, make sure you go to a NCI designated treatment center for any type of cancer.

 
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