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Old 05-23-2012, 06:07 PM   #1
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Feraheme MRI and F-18 Bone Scan

I will be heading for Sand Lake Imaging for testing requested by Dr Myers in a couple of weeks. Jim has posted on his experience already. I was reading an article in PCRI (Prostate Cancer Research Institute) 's Feb 2012 publication that gives some history and explanation of what Drs Myers, Dattoli and Bravo are doing. It is titled Oligometastatic Prostate Cancer. i think you can find it by googling "Oligometastatic Prostate Cancer Dattoli". It is an easy read and may help some to understand what the discussions around this are based on.


The process is about $7400 if you don't have insurance. Even with insurance some may balk at parts. Ferhaeme will not be covered for sure I understand. I am currently arguing with my insurer who is balking at the MRI because it is tied to Feraheme. The rest has been approved. I am hoping to win the MRI battle which would leave me with my copays and 1500 for Feraheme, otherwise 4200 plus copay.

John

John

 
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Old 05-23-2012, 07:41 PM   #2
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Re: Feraheme MRI and F-18 Bone Scan

John,

Feraheme is an FDA-approved drug for iron-deficiency anemia in people with chronic kidney disease. My doctor said he would write me a scrip for it and do the MRI locally too if I needed it. Fortunately I don't, but this is a way around restrictive insurance companies if you want to pursue this avenue. On the other hand, I'm glad that you and Jim are participating in a clinical trial that may turn out to have benefit for many of us. I hope it is oligometastatic and curable in your case, and that this technique reliably detects the cancer.

- Allen

 
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Old 05-24-2012, 02:32 AM   #3
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Re: Feraheme MRI and F-18 Bone Scan

Thank you Allan. I have a much higher confidence level my ins will cover the costs today after talking with one of the directors of the ins company. I am hoping that the results will lead to some other options for me. I am not sure what will come of it but seven and a half years after Gleason 9 diagnosis, RP and salvage radiation I am just happy that things are going well for me. Well meaning I am getting to the end of my second vactaion period on triple blockade, I think I will pass the PSA 4 range that Dr Myers likes to restart men at on the heavier drugs. I was able to get to <.01 last time and I figure I will top 4 in about 3 to six months so somewhere around 27-30 months off.

If nothing comes of this I may talk to him about some of the other things Jim has done to prolong his vacation. One of the best things I did was leave behind my UCLA team and go to Myers. He is a positive guy and takes time to really talk you.

UCLA talked in terms of 5 yrs and were pretty negative when talking to us. Some would say they were making sure they gave us a realistic picture for someone with a Gleason 9 stageT3C whose PSA was still double digit (I think 12) 5 mos after RP. It really didn't help anything though except to drive me to find someone else in the states to work with. Today I feel great and positive. Every day on the green side of the sod is a good day.

Thanks again for you comments

John

 
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Old 05-24-2012, 03:09 AM   #4
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Re: Feraheme MRI and F-18 Bone Scan

John

I wish the best for you. I hope you strike gold with the test and that you find a way to “zap” the bandit for good.
Please let us know on your follow ups.

I pray for your and Jim’s successes.

Baptista

 
Old 05-24-2012, 03:11 AM   #5
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Re: Feraheme MRI and F-18 Bone Scan

Above
Baptista

Last edited by Baptista; 05-24-2012 at 03:12 AM. Reason: repeated

 
Old 06-11-2012, 02:09 PM   #6
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Re: Feraheme MRI and F-18 Bone Scan

Hi John,

I too want to join in wishing you well with the Feraheme scan.

I was also amused by your comment about UCLA. Their prognosis for you was most unfortunate of course, but some of their docs and researchers have done wonderful research and treatment for prostate cancer patients. I'm thinking that androgen deprivation therapy (ADT) may not be a strong point at UCLA, though I am not at all sure. UCLA may look poor in ADT in comparison as there are some doctors highly expert in ADT in the Los Angeles area, and I'm aware of some unfriendly back-and-forth with UCLA. One expert, whom I'll refer to as Dr. B, was once asked by a patient about the dire prognosis he had had from a prominent Dr. at UCLA. Dr. B's response was more or less that "That's a really grim prognosis; fortunately the doctor does not know what he is doing." (Dr. B would not make it in the diplomatic corps , but he has done wonders for patients.)

Take care and good luck,

Jim

 
Old 07-04-2012, 02:04 PM   #7
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Re: Feraheme MRI and F-18 Bone Scan

Like understand anyone who has experience with being treated for suspicious lymph nodes with therapy other than ADT? Therapy, side effects & outcome?

 
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