Originally Posted by landcrab47
The intention is to stop HT early next year when I have completed 15 months of HT. The decision to do this is is purely mine, based mainly on QOL.
From your reply do you think I should continue indefinitely on HT.
I recall the problems you had with your initial team of care givers in Norway. I think that the urologist taking care of you was totally erroneous in his PSA threshold used in your care.
Probably you are now the solo commandant of your case and have decided to go along following a treatment you feel comfortable with. However, I would recommend you to find a doctor you trust because you may come into a situation where you need professional advice, even if that doctor lives overseas.
Regarding your question, I think that you should try as much as possible of staying away from the drugs. In any case, without a treatment the cancer will strive and progress. The control on the on/off drugs therefore needs constant vigilance not just in regards to cancer but to the risks they may cause. Testing at 3-month intervals is proper.
Quality of living is important and you should find a protocol that is suitable in keeping the cancer at bay while permitting you the lesser side effects. Still I think that instead of following my lay opinions you should try to find a proper physician (oncologist) that would answer better your questions.
I have noticed that your references to PSA and Testosterone tests relate to assays of one decimal place (0.X ng/ml). In your case without benign prostatic cells (no prostate gland in place) to produce PSA, the values are exclusivelly related to cancerous cells so that small variations/amounts are important. I would recommend you of having blood tested in sensitive assays with two decimal place lower limits (0.XX ng/ml).
Yours PSA=0.1 could mean 0.05 which is the limit of a threshold remission considered by many out standing oncologist. If such level is kept during 12 months then you would be recommended to stop taking the drugs. This is what I have done in my intermittent modality of treatment.
I take your indication of the testosterone result of 0.2 with the units of T=0.2 ng/ml (Spainís Laboratory units). This confirms castration level (lower than 0.3 ng/ml) indicating that Lupron is effective in the treatment.
I wonder if you are on ADT 1, 2 or 3, as you commented in your thread of 2011. What is your protocol? What are the mg of the drugs?
Can you share more info about the treatment?
What about the results from previous image studies, Gleason score and bone density scans (osteoporosis), is there any data you can share?
I just posted about my last results which you may be interested in reading. Please remmenber that we may be similar but not equal in matters of responses to treatments. Here is the link;
Wishing you luck in your journey.