It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Cancer: Prostate Message Board
Post New Thread   Reply Reply
LinkBack Thread Tools
Old 12-08-2012, 05:02 PM   #1
Senior Veteran
(male)
 
Join Date: Nov 2007
Location: Annandale, VA, USA
Posts: 1,730
Blog Entries: 3
IADT3since2000 HB UserIADT3since2000 HB UserIADT3since2000 HB UserIADT3since2000 HB UserIADT3since2000 HB UserIADT3since2000 HB UserIADT3since2000 HB UserIADT3since2000 HB UserIADT3since2000 HB UserIADT3since2000 HB UserIADT3since2000 HB User
Smile 13th year anniversary - doing well

Hi all,

It's been some time since I last posted, and I hope I will again soon be posting regularly. I have been doing well, but I find time is in very short supply these days.

December 7, yesterday, was the anniversary of my first ever and fateful PSA test in 1999: 113.6. My DRE followed the next morning with a urologist, who said my prostate was somewhat enlarged and "rock hard." Within days he had performed a biopsy that was determined to be Gleason 4+3=7 cancer with perineural invasion, and all cores positive, most 100%. Within weeks two highly respected doctors had responded to my request for a prognosis that I probably could expect three good years and two declining years. I'm thankful their crystal balls were cloudy.

I am now doing very well except for fairly minor side effects of my fourth round of triple ADT (androgen deprivation therapy, aka hormonal therapy or hormonal blockade). The regimen is somewhat different this time, but my PSA dropped about 75% during the first month, dropping at about the same rate as the previous three times. (Instead of Casodex/bicalutamide as the second element, I'm now taking flutamide; instead of a bisphosphonate to protect against loss of bone density, I'm now on Vivelle Dot transdermal estradiol patches.)

If all continues to go as expected, after three months I will have about 78 to 80 Gy of radiation delivered by Tomotherapy. I have selected that therapy for a combination of technical and personal reasons, but have good confidence in my shot at a cure based on the sophisticated imaging and workups I had last year.

One of the time consumers that has kept me from the Board was working to reduce weight, especially around my abdomen. I have been quite successful, and have been pleased and a little surprised that I've been able to maintain a fairly low weight despite resuming ADT.

I hope to post more details.

Take care,

Jim

 
Reply With Quote
The following user gives a hug of support to IADT3since2000:
Hacamila (02-03-2013)
Sponsors Lightbulb
   
Old 12-08-2012, 07:42 PM   #2
Inactive
(male)
 
Join Date: Aug 2010
Posts: 689
Tall Allen HB UserTall Allen HB UserTall Allen HB UserTall Allen HB UserTall Allen HB UserTall Allen HB UserTall Allen HB UserTall Allen HB UserTall Allen HB UserTall Allen HB UserTall Allen HB User
Re: 13th year anniversary - doing well

Congratulations on the anniversary and welcome back. Your story continues to inspire. Good luck with the Tomotherapy -- I hope it will provide that thus far elusive cure or slow it down at the very least. That's too funny that you put on weight from being a "board potato." Seriously, it must take a lot of discipline to stay in shape while on ADT, yet it has so many benefits. I know that that exercise regimen will work synergistically with the radiation.

- Allen

 
Reply With Quote
Old 12-09-2012, 01:26 AM   #3
Veteran
(male)
 
Baptista's Avatar
 
Join Date: Aug 2010
Location: Albufeira, Portugal
Posts: 464
Baptista HB UserBaptista HB UserBaptista HB UserBaptista HB UserBaptista HB UserBaptista HB UserBaptista HB UserBaptista HB UserBaptista HB UserBaptista HB UserBaptista HB User
Re: 13th year anniversary - doing well

Good news on your plans to try a cure. I am glad to read that you are continuing ADT with success and most of all that you will be back posting and sharing opinions.

Congratulations on your 13th anniversairy.

 
Reply With Quote
Old 12-09-2012, 08:11 AM   #4
Junior Member
(male)
 
Join Date: Dec 2011
Location: Oslo Norway/Malaga Spain
Posts: 14
landcrab47 HB User
Re: 13th year anniversary - doing well

Congratulations on your milestone, I hope your new regime brings you many years more.

 
Reply With Quote
The Following User Says Thank You to landcrab47 For This Useful Post:
flyfisher37 (01-28-2013)
Old 12-10-2012, 07:01 PM   #5
Junior Member
(female)
 
Join Date: Dec 2011
Location: Canada
Posts: 12
livingatlake HB User
Re: 13th year anniversary - doing well

Hi Jim
We sat together at the conference where I has the opportunity to thank you personally for all your helpful posts. I, too, look forward to your future posts about this new journey. My very best wishes for you.

Livingatlake

 
Reply With Quote
Old 12-11-2012, 02:27 AM   #6
Junior Member
(male)
 
Join Date: Nov 2007
Location: ormond beach, fl
Posts: 23
mrpk HB User
Re: 13th year anniversary - doing well

Congratulations Jim ....we are very happy for you ...transdermal patches you mentioned for bone density ...do they work the same way or any major sideeffects...

i just had my psa ultra and has now changed after 5 years from less then .001 to .015 ... iam getting next one done in march ....little worried ..testasterone still almost not existent after rp in 2006

 
Reply With Quote
Old 12-18-2012, 02:34 PM   #7
Veteran
(female)
 
Join Date: Aug 2010
Location: Toronto, Ontario Canada
Posts: 332
honda50 HB Userhonda50 HB Userhonda50 HB Userhonda50 HB Userhonda50 HB Userhonda50 HB User
Re: 13th year anniversary - doing well

Congrats, Jim, on your continued success in fighting this disease. I, too, haven't been on this board for quite some time. Irv is coasting along and it seemed to be a good time to take a little break. Up to this point, we had been dealing with his disease quite intensively and it can become quite daunting after awhile.

Nevertheless, we both feel so fortunate for those we've met along the way who've been and continue to be nothing less than a total inspiration for us.

Irv just got back another PSA and testosterone result and we're waiting on the DHT result as well. His PSA remains undetectable at <.02 and his testosterone is still showing an increase and is currently in the normal range. I never feel complacent and I encourage Irv to do the same so he doesn't slip back into old bad habits and continues to stay away from certain foods. Irv has a really positive outlook and figures he has another good year or two to be free from the injections. I hope he's right. He's been off Zoladex and Bicalutamide since February of this year. That's 10 months! His urologic oncologist told him that he'd likely have to go back on the injections after 6 months...I'm glad his crystal ball was also foggy. That being the case, hopefully his prognosis of "15 years with a little luck" (before seeing the post op pathology report which revealed before undetected seminal vesicle invasion, positive margins and extracapsular extension) could also be a little pessimistic. The psychologist, who deals with patients like Irv, told him, in so many words, that he shouldn't expect to live through his 60s. I hope we can prove him wrong too! He's only 53 now and we've got a lot of life to live yet.

Last edited by honda50; 12-18-2012 at 02:35 PM.

 
Reply With Quote
Old 01-15-2013, 02:00 PM   #8
Senior Member
(male)
 
Join Date: Feb 2009
Location: near Chicago
Posts: 249
kcon HB Userkcon HB User
Re: 13th year anniversary - doing well

Congratulations, Jim, and very best wishes...

 
Reply With Quote
Old 01-27-2013, 01:56 AM   #9
Senior Member
(male)
 
Join Date: Sep 2007
Location: Continental Europe (EU)
Posts: 172
tumbleweed HB Usertumbleweed HB Usertumbleweed HB User
Re: 13th year anniversary - doing well

Jim,

Glad to hear from you and that you are progressing. You were here so often when I needed you that I worry on my (now) occasional visits when there is nothing new from you!

peter
__________________
Peter, Brachytherapy in Guildford, England March 2008

Last edited by tumbleweed; 01-27-2013 at 01:57 AM.

 
Reply With Quote
Old 01-28-2013, 08:44 AM   #10
Senior Member
(male)
 
Join Date: Oct 2008
Location: Welland, Ontario, Canada
Posts: 114
flyfisher37 HB Userflyfisher37 HB Userflyfisher37 HB User
Re: 13th year anniversary - doing well

Hi Jim, way to go!!

I wish all the best for you in your upcoming endeavors and I hope all goes well for you.

I remember when I first came on this board in 2005, you gave me lots of very usful information about my prostate cancer situation, and I appreciated that very much. Thank you.

Take care and all the best,

Lionel

 
Reply With Quote
Old 03-05-2013, 01:24 PM   #11
Junior Member
(male)
 
Join Date: Sep 2009
Location: Chicago
Posts: 47
mrmike2009 HB User
Re: 13th year anniversary - doing well

Congratulations, Jim, and very best wishes...

 
Reply With Quote
Old 03-11-2013, 05:09 PM   #12
Junior Member
(female)
 
Join Date: Apr 2010
Posts: 35
Chadhas HB User
Re: 13th year anniversary - doing well

Congrats Jim Best Wishes

Regards
B

 
Reply With Quote
Old 09-30-2013, 07:10 AM   #13
Junior Member
(female)
 
Join Date: Oct 2009
Location: New Delhi, India
Posts: 37
Goelf HB User
Re: 13th year anniversary - doing well

Hi Jim, Chaddha Family and everyone else on board.

Its been quite long since i posted. My dad was diagnosed with PCa in October 2009 with PSA 1780 and bony mets. He underwent orchidectomy and was since then on HRT. [casodex, finasteride]

His last PSA reading [1 week ago] was 15.2.

Recently following pain in his legs he underwent bone scan which revealed some new hotspots in his femur bone [thigh area].
His doctor has asked him to stop Casodex and has started Honvan tid.
His lifestyle is otherwise very active and for the first time since diagnosis he is complaining about pain and is getting worried about the disease.

Anyone else in similar situation?

He is a diabetic and has had cardiac issues in past and i read somewhere that Honvan should be used with precaution in diabetic and cardiac patients? What are the views regarding use of Honvan in cardiac patients?

What other treatment options do we have?

Thanks
Goel family
India

 
Reply With Quote
Reply Reply

Similar Threads
Thread Thread Starter Board Replies Last Post
Twelfth year anniversary - not too late for a shot at a cure! IADT3since2000 Cancer: Prostate 19 01-08-2012 03:32 AM
Projection of 15-year Prostate cancer Specific survival Baptista Cancer: Prostate 11 02-02-2011 09:33 AM
Once again, still so far so good - 15th month , third round, eleventh year, IADT3 IADT3since2000 Cancer: Prostate 10 01-15-2010 05:57 AM
Again, still so far so good - 14th month , third round, tenth year, IADT3 IADT3since2000 Cancer: Prostate 3 11-23-2009 02:51 PM
Still so far so good: 3rd PSA (6 months), third round, tenth year IADT3 IADT3since2000 Cancer: Prostate 5 05-18-2009 02:23 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Casodex
Cialis
Cipro
Flomax
Levaquin
  Levitra
Morphine
Proscar
Tylenol
Viagra




TOP THANKED CONTRIBUTORS



Tall Allen (174), IADT3since2000 (148), Baptista (97), Gleason9 (28), harpman (27), Johnt1 (22), honda50 (9), tumbleweed (6), flyfisher37 (6), GUAMJOHN (5)

Site Wide Totals

teteri66 (1165), MSJayhawk (1000), Apollo123 (898), Titchou (833), janewhite1 (823), Gabriel (758), ladybud (747), sammy64 (668), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 07:39 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!