I'm a 49 year old diagnosed in July of 2012. I am 2 weeks post-op RALP. My original gleason was 3+3=6, PSA 9.3. After my surgery the pathology was changed to 3+4=7, T3 stage as the cancer had gone to the bladder neck. My pathology report shows all negative margins so my surgeon thinks he got it all.
My biggest problem has been the foley cath. I had the cath removed 11 days post op. I had to go back yesterday because I could not urinate. Meatal stenosis over the pee hole so had to be re-cathed. Now the 1st cath I had was done during my RALP so I was completely out. The one I got yesterday was done with me wide awake. It was the most excruciating experience of my life.
Anyone else this bothered with these caths? My Dr. seems to feel that it should not be that big of a problem. I am on otc tylenol for discomfort as they would not prescribe me anything stronger. Is this normal?
Re: Hello Guys
Sorry to hear you are having this problem - it was my biggest worry before I started the journey (due to similar reports as yours from my Dad years ago) my doctors and nurses were very sympathetic and supplied me with thin prelubricated do it yourself (self administered) catheters which are simple and painless to insert and withdraw and completely effective.
SeedyCath by Coloplast of Denmark
Re: Hello Guys
Sorry to hear of your issues. My biggest concern after surgery was the cath and then not being able to urinate and having it doen again. My surgeon normally leaves a cath in 15 days as he said this allowed for a longer healing time with the uretha and that normally prevented scar tissue from closing off the flow. Hope things get better soon. I have had a number of kidney stones over the years and have been cathed many times, but it was always while I was out, so can't imagine it being done while awake.
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