Did you have to cath post-op, and if so, for how long? Also, what about ED issues-- if you don't mind sharing. As you read, I'm 8 months post-op and not better-- I mean not at all. Not to mention, I still have great (yeah right!!) chronic pain which I am being treated for. Colorectal guy says this is normal too-- lots of scar tissue, nerve damage, etc. Lots of different factors at play. |
I know your story is a little different in that you have the bag... I had a temp ileostomy bag, which I have to say was a lot easier than having to retrain the old bowel-- very painful, lots of fun LOL. Did you have an APR-- rectum taken too?
I don't mind, after all the web is anon.
Yes there were some ED symptoms. I had trouble getting as hard as I could before the surgery and staying that way. Also ejaculation was weaker, I still felt the orgasm as much but instead of an explosion it was more of a dribble. Of these problems the erections are almost as before and the ejaculations are better but not as before. Again the urologist blames nerve damage. I have found one oddity that may help others. If my weight goes over 200 lbs this gets worse but when I keep it at or below 195 I am much better. This , I personally believe, is due to pressure on the nerves that happens when I am heavier.
Yes I had a urinary catheter for several days post-op until they took me off morphine. The cath bothered me alot!!!!!
. I would see other patients walking about with their pee bags and without a care about it. I winced at every movement of the cath and walking was very uncomfortable(not exactly painful but uncomfortable to the extreme) It was painful when it was removed, felt like someone had lit a match down there but the pain was short lived. The first post cath pee was difficult. I had to mentally and physically relax and block out all other concerns and concentrate and I could not seem to bear down, just let it drain.
I have a sigmoid colostomy.
I had a total rectal resection which means my entire colon was removed. Along with it went the anal sphincter and a small amount of butt muscle. The tumour was only a few inches inside. The surgeon said that even if they cut with very small margins he did not think that I would have control of the anus afterward. However in order to effect good margins the anus had to be removed anyway. Rectal stumps simply cause problems with pain and bleeding so the entire rectum also came out. The loss of butt muscle means that sitting on a hrad surface is painful after a few minutes or , depending on the position, even a few seconds. Driving for hours, which I do reularly for work, I have to shift my weight often although I recently got a new company vehicle and that isn't as much of a prob anymore.
I am sewed up in back but the local surgeon was deeply impressed with what the city colo-rectal surgeon did and my wife says that it really doesn't look that different unless one really looks at my butt(I am not in the habit of having anyone other than my wife or medical proffessionals look at me butt anyway)
The C-R surgeon who did me has a few decades of experience and although it is a teaching hospital he does not let residents close unless they show sufficient skill in suturing to equal his(thus the good job in back of me) He also ensures himself of the skill of residents before letting them perform any other part of the operation.
Removal of the drain was painful but quick. A resident did that but he was good at it.
I was in a lot of pain post-op but it lessened and I went back to work in 3 months. I noticed scar tissue under the stoma but that has now disappeared. The scar in front runs from just above the pubis to about 2 inches below the lowest ribs with a semicircular excursion around to the right of my navel. ( It was two days before I peeked under the sheets and my blood ran cold to see how low the cut went
) This was held together with staples that were removed on day 8 post-op. One small part was not quite solid and I had to tape and bandage this for another week to 10 days. I was released from hospital 10 days post-op.
Frankly I think another 3 days in hospital would have been good but these days they get you out the door asap.
Fun you say
probably about the same type of fun relearning potty training with a colostomy I'll wager. There were a few 'accidents'.
I have seen your posts about your continuing pain and although I thank God I don't have it like that I feel great sympathy/empathy for you and truly hope each time that when I see you posting I will read that it is getting better. cancer sucks
verbose bugger ain't I? Hope I answered your questions somewhere in this ramble.