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Old 12-21-2010, 12:10 PM   #1
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Join Date: Dec 2010
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yedmans HB User
Total colon removal

About 9 months ago I had cancerous tissue successfully removed from my colon/rectum. This left my bowel detatchedand I had a 'temporary' ileostomy.
After completing my chemotherapy I had a post-chemo CT scan which showed all-clear and a CEA blood test which came back normal at 4. As a precaution my consultant arranged for me to have a full colonoscopy just to be sure. I had the procedure yesterday and a small lump was found in the transverse colon which was apparently too small for the CT scan to pick up! Biopsies were taken and have been sent for testing. This has taken me by complete surprise and I was worried enough to phone my surgeon to discuss possible options I may have. To cut a long story short he said that if the test came back as cancerous he would have no option but to remove the ENTIRE COLON !! I was so gob-smacked I was lost for words. How could a small cancerous lump result in removal of the entire colon ? Why not perform a resection as I'd had done previously to a much larger cancer ?? It seems more than a bit drastic to even suggest this. I pray that the tests come back as benign. Any comments that would enlighten me would be greatly appreciated.

 
Old 12-25-2010, 02:51 PM   #2
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LESLIETOO HB UserLESLIETOO HB User
Re: Total colon removal

If this is a separate cancer, not a regrowth of the original it may indicate that you have a condition called Lynch Syndrome. Having two colon/rectal cancers within 9 months is a strong indicator for further testing to see if it is due to a genetic mutation. A sample of the tumor tissue should be tested for microsatellite instability and if microsatellite intability high, further genetic testing is needed.

The reason for removing the entire colon is due to the fact that if any colon remains, a third colon cancer will likely develop and this will avoid the need for repeat major surgeries. People who have Lynch Syndrome or FAP are strongly urged to and often have the entire colon removed to prevent recurrent tumors. Over time, they learn to adjust and live with their new (colonless) normal.

Leslie

 
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