A year ago I had a growth removed from my vagina that ended up having rectal cancer cells. It has been a confusing case for my doctors. I had major exploratory surgery and nothing was found. They removed my ovaries and a benign growth on the transverse colon. My incision became infected so I had a sponge vac for about 3 months and during that time had radiation treatments and Breaky(sp) treatment. In addition I had a port with constant 5FU Chemo. They were able to get rid of the vaginal/rectal cancer. However, after 2 weeks of 5FU, I had a severe reaction and they stopped the chemo.
From the start I had a couple of swollen groin lymph nodes.
They recently biopsies them and were found to have cancer cells.
This is the problem, 5FU is the chemo they use to treat the lymph nodes. However my oncologist is concerned because I had such a severe reaction last time and the dosage was much lower than what they need to give me now.
Can anyone tell me about any clinical trials that have approached this with something else. He mentioned something about a chemo that directly attacks the tumor.
I am afraid I can't make it through this 5FU again - as is he.
Does anyone know anything about finding out about alternatives?
PS - I have a vaginal rectal fistula I have to have repaired first from the radiation. I am just afraid and hoping for something else.
I am sorry that no one answered your post. And I am sorry that I don't have an answer for you. I know that it can be scary. I hope that you are ok and that things are working out. Let us know how you are. All the best!
Hypothyroidism, Chronic Allergies, Acid reflux, Arthritis in jaw, Perimenopause,Panic and Anxiety disorder
I am sorry to hear of your illness....I was diagnosised with rectal squamous cell carcinoma in March of 2010....I started chemo treatment in april of 2010...chemo treatments were 5fu and mitomycin plus radiation.....i had side effects of the chemo which resulted in to a rare blood disease called TTP..i had to go thru plasma fresis...which failed to work..so i had to take 8 treatments of Rituxan (chemo)....all of the above caused my kidneys to fail and also damaged my heart..causing congestive heart failure...i went from 173 lbs down to 98 lbs....and being five foot nine....was not good....it's been two years now and i still can do very little...i've lost my health....then my husband decides to walk out on me....the good lord kept me here for some reason cause i have already been to hell and back....i wish you luck with your illness......gods speed