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Old 09-18-2011, 07:42 AM   #1
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clhill2 HB User
Colonoscopy discovered rectal mass

I have just had my first colonoscopy (I am 61) and my doctor says that he discovered a large tumor (no size mentioned) he says that it has to be removed surgically. I have to have blood work and a CT scan. I am awaiting the biopsy results and his review before surgery can be scheduled. I am presuming it is a rectal mass because that is what it says on the CT order. What can I expect? I am worried only because I have had stomach problems since my early 20's and in spite of telling doctors about these problems no one seemed concerned so I just assumed it was normal. Problems were and are periodical diarrhea (mostly just mucus & blood) and terrific stomach cramps. Sometimes after I eat I immediately must go to the bathroom, stomach cramps really bad. Now this has gone on for almost 40 years. It became just an everyday thing for me. A year and a half ago I lost 14 pounds very quickly and when I went to my doctor he didn't seem to think that there was a problem. Now, well about 6 months or so ago I started to put on weight and started having problems with discomfort in my abdomen; always feeling as if I were full, lots of gas, constipation intermittent with diarrhea (mostly mucus, blood bright red) when I did have a bowel movement it was pencil thin pieces or big blobs that floated; but I always felt as if I was full.
When I say full you know that feeling you get when you overeat and around your stomach it feels tight, well thats how I feel most of the time, very uncomfortable. I was finally able to go for a colonoscopy (my insurance company now fully paid for it, 2 years ago I was going to have to pay for it because I hadn't met my deductible). So that's where I am at and wondering if anyone can tell me anything. I am presuming it is cancer and don't have any idea as to what to expect.

 
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Old 09-30-2011, 10:44 PM   #2
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Re: Colonoscopy discovered rectal mass

HI, my hubby had a mass back in 03 the size of a softball. His symptoms were, diarrhea, pain behind the belly button, had to go potty after eating and blood in the stool. He didnt tell me about it for a while (couple months).

Finally got him to the Dr. and they couldn't even do the colonscopy it was so big. Once path. came back positive for cancer went to see colorectal oncologist and he had the ct scan (bariam enema, pretty painful) so they could take pictures prior to the surgery.

It had gone thru the wall of the colon but had not matastasized to other areas. (very lucky), he was stage 3/4. Been cancer free since. He went thru 6 weeks of radiation and 6 months of chemo (1 months IV and 5 months pills). No bag.

Everyone is different. This is his expreriance. He was in the hospital 9 days btw.

Last edited by noevr; 09-30-2011 at 10:45 PM.

 
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Old 11-08-2011, 02:51 AM   #3
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Re: Colonoscopy discovered rectal mass

Hey there - My sympathies for your situation. I was diagnosed with rectal cancer 6 weeks ago and have just started my neo-adjuvunctal radio/chemo treatment and although I am otherwise symptom free, I understand the mental anguish that this stuff causes.

No-one can really tell you what you have until the pathology comes back, but the symptoms sound like you probably do have a tumor. The good news may be that if youve had that level of symptoms (all of which are classic colorectal cancer symptoms) for that length of time, it cant be that agressive. The important piece of extra information will be whether it has metastasized, which only further tests will be able to tell.

Dont pay attention to that post about a CT causing pain - Ive had X-rays, mutltiple CTs, multiple sonograms and an MRI with three different contrast dyes - None of them hurt beyond having a IV line laid for the dye and in some cases some mild discomfort (warming) as a result of the dye. With my first CT I had a liter of barium drink and then had to have an enema too (because the drink hadnt found its way far enough down) and although it was uncomfortable, there was no pain involved.

If you do have a tumor and need some support, there are some great forums out there specifically for colorectal cancers - The people over at www.mycrcconnections.ning.com are particularly welcoming and supportive.

A tip that Ive heard from everyone and also concluded through my own experience - Dont spend too much time obsessing over data on the internet, particularly survival rates. Anyone who tries giving you a specific percentage survival rate is a quack - Every person is different, every cancer is different, every treatment is different. Yes its a nasty, potentially fatal disease, but increasingly its also very treatable and even curable, even at advanced stages.

One final tip - A major factor in surviving colorectal cancer, if you have it, is having doctors who know what they are doing, particularly with regards to surgery (which this cancer almost always involves). As far as humanly possible, get yourself to a cancer center which specialises in colorectal cancer, at least for a second opinion. Dont let yourself be treated by a local doc whose most exciting case in the last 19 years was an ingrown toenail.

 
Old 11-08-2011, 03:49 AM   #4
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Re: Colonoscopy discovered rectal mass

Quote:
Originally Posted by clhill2 View Post
So that's where I am at and wondering if anyone can tell me anything. I am presuming it is cancer and don't have any idea as to what to expect.
Hey there - My sympathies for your situation. I was diagnosed with rectal cancer 6 weeks ago and have just started my radio/chemo treatment and although I am otherwise symptom free, I understand the mental anguish that this stuff causes.

Noone can really tell you what you have until the pathology comes back, but it sounds like you prabably do have a tumor. The good news is probably that if youve had that level of symptoms (all of which are classic colorectal cancer symptoms) for that length of time, it cant be that agressive. The important piece of extra information will be whether it has metastasized, which only further tests will be able to tell.

Dont pay attention to that post about a CT causing pain - Ive had X-rays, mutltiple CTs, multiple sonograms and an MRI with three different contrast dyes - None of them hurt beyond having a IV line laid for the dye and in some cases some mild discomfort (warming) as a result of the dye. With my first CT I had a liter of barium drink and then had to have an enema too (because the drink hadnt found its way far enough down) and although it was uncomfortable, there was no pain involved.

A tip that Ive heard from everyone and also concluded through my own experience - Dont spend too much time obsessing over data on the internet, particularly survival rates. Anyone who tries giving you a specific percentage survival rate is a quack - Every person is different, every cancer is different, every treatment is different. Yes its a nasty, potentially fatal disease, but increasingly its also very treatable and even curable, even at advanced stages.

One final tip - A major factor in surviving this is having doctors who know what they are doing, aprticularly with regards to surgery (which this cancer almost always involves). As far as humanly possible, get yourself to a cancer center which specialises in colorectal cancer, at least for a second opinion. Dont let yourself be treated by a local doc whose most exciting case in the last 19 years was an ingrown toenail.

Last edited by moderator2; 11-08-2011 at 06:56 AM. Reason: posted disallowed website - please review the forum rules

 
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Old 11-08-2011, 04:16 PM   #5
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Re: Colonoscopy discovered rectal mass

Thank you for taking the time to tell me about your experience thus far. I did have surgery on Oct. 10, 2011 and was in hospital for 6 days. It was a T3 Tumor and Stage 2; 19 lymph nodes taken no sign of spreading. I have since come home and have continued to improve each day as far as moving around goes and level of energy and so on. Today is November 8th and I had a meeting with the Chemo Dr. Yesterday and the Radiology Team today. We have decided to do Chemo (with port and pump) and Radiation at the same time everyone assures me that this is the best way to go. I will start radiation sometime next week and the chemo depends on when the surgeon can get the port put in. I am so not looking forward to this because I so hate being sick and all but of course I am happy that they seem to have caught it before it got really bad. All of my Drs and Nurses have been so helpful. I will continue to post as it goes along so maybe someone else can get some helpful info from what I am experiencing.

Last edited by clhill2; 11-08-2011 at 04:18 PM.

 
Old 04-27-2012, 08:52 AM   #6
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profmia HB User
Re: Colonoscopy discovered rectal mass

Quote:
Originally Posted by clhill2 View Post
I have just had my first colonoscopy (I am 61) and my doctor says that he discovered a large tumor (no size mentioned) he says that it has to be removed surgically. I have to have blood work and a CT scan. I am awaiting the biopsy results and his review before surgery can be scheduled. I am presuming it is a rectal mass because that is what it says on the CT order. What can I expect? I am worried only because I have had stomach problems since my early 20's and in spite of telling doctors about these problems no one seemed concerned so I just assumed it was normal. Problems were and are periodical diarrhea (mostly just mucus & blood) and terrific stomach cramps. Sometimes after I eat I immediately must go to the bathroom, stomach cramps really bad. Now this has gone on for almost 40 years. It became just an everyday thing for me. A year and a half ago I lost 14 pounds very quickly and when I went to my doctor he didn't seem to think that there was a problem. Now, well about 6 months or so ago I started to put on weight and started having problems with discomfort in my abdomen; always feeling as if I were full, lots of gas, constipation intermittent with diarrhea (mostly mucus, blood bright red) when I did have a bowel movement it was pencil thin pieces or big blobs that floated; but I always felt as if I was full.
When I say full you know that feeling you get when you overeat and around your stomach it feels tight, well thats how I feel most of the time, very uncomfortable. I was finally able to go for a colonoscopy (my insurance company now fully paid for it, 2 years ago I was going to have to pay for it because I hadn't met my deductible). So that's where I am at and wondering if anyone can tell me anything. I am presuming it is cancer and don't have any idea as to what to expect.
Dear ClHll2:
While your post is almost 5 months old, I hope that you are doing well. I had my second colonoscopy recently and my results were good. I had lots of anxiety around the time that the 5year check was due because I was having some bowel obstructions. Most importantly we must encourage each other to have the procedure because early detection saves lives. Be positive, stay on good diet and exercise.
Profmia

 
Old 04-27-2012, 08:57 AM   #7
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profmia HB User
Wink Re: Colonoscopy

The prep solution was not so bad this time. Drank cold and used the lime flavored. It was the anxiety of waiting for pathology report and follow-up. Had a female doctor which was very important to me.
Profmia

 
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