It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Cancer: Skin Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 02-24-2012, 08:58 PM   #1
Newbie
(female)
 
Join Date: Feb 2012
Location: Tucson, Arizona
Posts: 6
lua447 HB User
Amelanotic Melanoma

Anyone have any experience with amelanotic melanoma? I had an area on my arm/elbow that resembled actinic keratosis. I'd had it for about a year. I had shown it to one dermatologist who told me I needed my face (where I also have AK) and arms lasered and sent me on my way. Lucky for me I didn't like his bedside manner and went to a new derm who IMMEDIATELY saw that something was wrong. He did a biopsy (shave) and it was melanoma in situ. An excision surgery has shown clean borders and no sentinel node biopsy needed. I know this type of skin cancer is rare, about 5% of cases by my research and survival rate for metastatic amelanotic melanoma is about 5% as it's normally found too late. I will see my derm every 3 months for the next 3 years now and I've scheduled an appointment with my GP to check my lymph nodes. I am so grateful to my new derm for saving my life. As he was doing the excision surgery he told me that if this had gone through to my dermis I would be dead because no one survives this kind of cancer. Yikes. Now I'm so scared that it will come back and wonder is there anything else I should be doing? anyone have a similar experience? I just read about someone that had "melanoma in situ" that showed up years later elsewhere, is that common? Any answers would be appreciated.
PS. He biopsied the AK on my face too to confirm the diagnosis and no melanoma there.

 
The following user gives a hug of support to lua447:
n2hlth (02-25-2012)
Old 02-25-2012, 02:14 PM   #2
Junior Member
(female)
 
Join Date: Feb 2012
Location: yucaipa, calif, usa
Posts: 19
n2hlth HB Usern2hlth HB User
Re: Amelanotic Melanoma

Hello... Good to hear, you no longer have cancer...I am a skin cancer survivor too.
I had surgery in June 2011 to remove the cancer on my thigh. I also had 2 lymph nodes
removed to be tested for the spreading of the cancer. I am happy to say that they came back negitive...I must get follow up for next 5 years...and have chest xrays and blood work every 6 months...they told me most cancers return to the chest area. I found the cancerous mole and told my doctor about it...thank goodness I do self checks of my skin.

 
Sponsors Lightbulb
   
Old 02-27-2012, 10:49 AM   #3
Veteran
(female)
 
Join Date: Dec 2008
Location: California
Posts: 428
Chele60 HB UserChele60 HB UserChele60 HB UserChele60 HB UserChele60 HB UserChele60 HB User
Re: Amelanotic Melanoma

I'm happy to hear it sounds as if your cancer was caught in time. I had a melanoma in 2007 - just past 5 years a few days ago! - and I was staged at IB. Melanoma in situ is a very good diagnosis - it means there really wasn't any spread/growth at all.

Your aftercare is very typical. I had to see my derm every 3 months for 3 years, and then every 6 months for the next 2 years. Now it will be once a year for the rest of my life.

As far as melanoma returning? Well, the unfortunate news is that there have been many individuals who have had melanoma in situ or melanoma that was staged at IA or IB who discovered it returned 5, 10, or 15 years later after having no evidence of the disease during that time. What determines that? I've no idea, and neither do research scientists. For some reason, in some individuals, melanoma can lie dormant in certain individuals for years, and then suddenly strike. I've known individuals who had melanoma, stage IA, had a wide excision, did all the aftercare, and thought all was fine. Then, 7 - 10 years after their diagnosis, melanomas rears its ugly head, and they are suddenly stage III or stage IV melanoma. Others have melanoma, have it removed, do the aftercare, and are fine the rest of their lives. It's the nature of this beast. It's also one of the reasons why the Red Cross doesn't accept melanoma survivors for blood donations.

What can you do? Do what your doctors tell you do. Do your own monthly skin checks. Use sun screen and practice sun safety. Get to know your body - you are your own best advocate! And most important of all? Live your life!! Don't allow cancer to make a victim of you! Trust me, you can find yourself sitting for hours or days worrying about this crap and thinking, "What if...?" Don't - it will drive you crazy. Take hold of your life and live it every single day in every single way!

 
The Following 2 Users Say Thank You to Chele60 For This Useful Post:
lua447 (02-27-2012), n2hlth (02-27-2012)
Closed Thread




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Acyclovir
Aldara
Aspirin
Hydrocortisone
Prednisone
  Retin-a
Temovate
Triamcinolone
Tylenol
Valium




TOP THANKED CONTRIBUTORS



Chele60 (13), JJ (5), bubblegirl (4), pupcake (4), moondine (4), Fizzickle (3), mcr285 (3), vworried (3), solofelix (3), gardenandcats (2)

Site Wide Totals

teteri66 (1180), MSJayhawk (1005), Apollo123 (906), Titchou (850), janewhite1 (823), Gabriel (759), ladybud (755), midwest1 (669), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 10:23 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!