Brenda, Trying to reply to your post over 6 times but when I hit submit it erases my message. Wanted you to know that we prayed for your husband last night. How did the proceedure go? We went to our local surgeon who is taking care of Richie's wound infection. Since stopping the 2 antibiotics last week the infection has gone back to discolored oozing, not good. So he is back on 10 days of the augmentin and bactrim. If the hole closes and infection is still present, they will have to open the entire incision. don't understand this and this surgeon just tells me, don't look at it and don't worry. I put in the strips and bandage, how should I not look at it. We are at their mercy. Hoping to hear good news from you.
Hi Joanie, Well I do not know if it is good news or not, Like you I am holding on to hope and faith. When they took him back to see if they could repair a leak the night before last, they saw that his whole connection had fell apart where the esphogus was attached to the stomach. So they had to reopen through the chest, repaired it, and also took a muscle from his side and wrapped around it. That will seal the leak if it occurs again. So it is like starting over I guess. Now he has two long incisons, poor guy. IT is so heartbreaking to see them going through this invasion of their bodies, isn't it? I went to Chicago on the train yesterday and he was back in ICU with a breathing tube. It was in 24 hours after surgery before they removed it last night. I came back late and will return when he gets out of ICU into a regular room. Thanks for the prayers, I know sometimes that is all that is bringing them through. Doc said he will have a better healing now and I have to trust his word. So that is the story on my husband. I hope they do not have to reopen yours but if it will get the pressure and infection cleared up it may be best Joanie, My husband has survived it and yours will too. I have to believe the doctors are doing everything they can, they love making their patients better and live for that. IT will work out when we believe God is the main one watching over us all.
So sorry to hear about last night's set back. I don't know what to say. I feel so bad. Know it is hard on you too. Just remember to smile and encourage the best you can when you are with him. Richie cried just before the infection burst through his incision. He was so depressed and in so much pain, and no doctor knew exactly what was wrong. The doctor gave him the lowest dose of Zoloft and Xanax. If Denny is getting depressed maybe you can suggest an anti depressant. I think it is helping Richie a bit. Went back to Oncologist today and of course, he can't give chemo. Infection is still raging. Back on antibiotics again. Will keep a positive thought and say a prayer for you and Denny.
Denny got out of ICU last night and on to a regular room so that is good news! Yes I think we are both due for some good news! I was just sitting here earlier thinking that a year ago we could not even imagine going through something like this and seeing the men we love have to endure the things they have. I do hope for the both of us that the worst is over and you are right, better days are ahead! Keep me posted and I hope the infection is better.
How is Denny today? Think of you two often and hope all is going better for both of you. Richie's wound infection is no better. Tomorrow is 12 weeks since stomach removal. Even the nurse today, couldn't help but make a face when she took the bandage off. Wish someone would just give us an answer as to when they will do something different to stop this infection. Our son wants us to go to a wound specialist, but we are hesitant since we went from the surgeon who operated to our local surgeon. Too many hands on and no one will want to help us when the next person fails. Meanwhile the oncologist is waiting in the wings to do preventative chemo/radiation. Know you are in our thoughts and prayers.
Joanie so sad to hear about Hubbys infection. I think the idea of the wound specialist is a good one. You know seems like these days Doctors are more specific with their specialitys. The specialists in their areas are your best bet because they see more wounds while treating them so they know more about what is a better course of treatment. Seems like doctors are just best in whatever they do the most of and they study it much more and will be better informed about new treatments. I know your regular doctor means well but he should be treated by a wound specialist to get the best results. And the oncoligist can not move foreward until his wound is healed. I will pray for you both. As far as Denny he is getting better slowly. Hopefully the juice test will be today and he can get the chest tubes and nose tube taken out. I think that is holding him back too, he can not be to mobile with all those tubes taped in, they are thinking of sending to a rehab in patient for a while but it will be closer to home. The Nato summitt is closing Chicago trains down all weekend they will be so much security with the protests and the threat of terroism. SAD, isnt it? Take care of yourself now as well, your hubby needs you at your best right now. I know it is a tough time for you both.
Glad to hear Denny is doing a little better. It will take him quite a while to get over all he has been through. He will feel a lot better once they take out the tube that goes from the nose into the stomach. Richie was crazy with this tube in. Tomorrow back to the surgeon again. But I know the infection is still oozing. I change the packing and dressing myself when we can't get to the nurse. Now our medical doctor is concerned about a pie shape shadow on his lung. He had it right after surgery and they thought it was a blood clot. Now they don't know what it is. This nightmare just never ends. Keep in touch.
Denny failed his barium swallow test today. He was so mad because he coughed and that was the end of the test. They did take out the nose tube and yes that was a great thing. He had a big BM and that is good for him, but he gets so upset about not getting to the restroom and having to clean up with a nurse. I think he is doing allright but it seems like babysteps! I know this is so hard, especially for a man. Be sure and let me know about Richie. Hopefully that spot is something else, Denny has a cloudiness on his lung from COPD. Did you see a wound specialist? I hope that his incision stops oozing and heals better. Keep me posted.
Good Morning Brenda, Hope this will be a better day for Denny. Yes, their recouperation is baby steps and sometimes you will take a baby step forward and a giant step backwards. We have learned to take one day at a time. Not an easy thing to do. Denny will have a good day and then a bad one. Learning what agrees with him to eat is a chore. Sometimes he will get very nauseaus if he eats too much. Just remember nibble, nibble, nibble and sip, sip, sip all day long. Don't eat and drink together. When Richie has eaten a little to much or something that did not agree with him he goes and lays down on his left side until the sick feeling goes away. And sometimes that takes an hour. Be careful what they give him as his first meal. The fools gave Richie chocolate pudding and as fast as it went down, it came back up, and they thought some connection was wrong inside and did a cat scan. Luckily nothing was wrong. Going to surgeon with this wound. Hoping for some good news. Have a good day.
Just wanted to say that we are thinking of you both. Richie's wound was opened more by the surgeon on Wednesday. Now we are back to a big hole again,but hopefully this will help to heal this incision. Keeping a positive thought for us all.
Hi Joanie, how are you and Richie? I am hoping that opening the wound up will be good for him, he might get better air and circulation in it, heres hoping for you both! Denny has been sent to a physical Rehab unit here in Indiana, much closer for me to visit. IT is around 10 miles from here. He seems like he has got a way to go though. His throat is sore and irritated, he can barely speak above a whisper. I do not know if it is from the breathing tube being in three times for a few days each, for surgery and recovery, from the anthesia. He is also very weak. So they will work with him three times a day to get that back. Hopefully he will just be there around a few weeks and them come home. He is having a hard time eating. They went from soft diet back to puree diet so he would not choke and could keep it down. So again baby steps it seems. Let me know how Richie gets along, he is at home with you right? Take care of yourself too, please.
The men have been through so much and will continue to have challenges each day. Sore throat can be from tubes being in. Hopefully each day will get better. Richie had a problem eating too. They gave him TwoCal HN prescription drinks. It is full of vitamins and things that will help the body recover. I also pureed some foods for him. The shake made him so full, but he was losing weight so rapidly. Lucily once the infection came to a head, he became more able to eat. He was so weak that he couldn't even brush his teeth or walk. Denny had a much more extensive surgery than Richie and it will take time to heal all that was done to him. We spoke with people who have had stomach by pass because of obesity. They gave us some hints about eating and drinking. Funny the shake went down easier when he took it from a spoon??? Now if we can just cure this infection. Then on to chemo and radiation. Another hurdle. Keep in touch. We are here for you both.
Back to the surgeon again today. After seven weeks of this wound infection, I can finally say, I see a significant improvement. Hope the surgeon sees it too. We are thinking of Denny and you every day. How is his therapy going? It is a long hard road. don't get discouraged. Please let us know what he can do and what he can't . Going through this together and giving each other tips and strenght helps.
Hello, I have wondered about you both as well. So glad to hear about the improvement for Richie. Not so good for Denny I am afraid. He is back in the hospital. He is having some infection with the last incision. The worst is his breathing. He is so weak and his throat is so sore from the ventilator that he can only whisper. He is on IV anti biotics and steroids for the COPD. The chemo and the two surgeries have really taken a toll on him. I am so afraid he is not gonna pull out of this. He was just not ready for the rehab place they sent him and over that long week end he almost got no care. He was rushed to the hospital Sunday morning in respiratory trouble and dehydrated. Now he is getting some help but it is such a long process. I hope he can start eating some, he is losing weight too. I will keep in touch and let you know and you do the same. Brenda