Hi juz registered this health boards and need advise and hope bear with me.
my husband only turning 32 yrs this coming apr 08. we hv 2 wonderful kids at age 7yrs boy and 16mths daughter.
he had thyroid fm his family history which turned out to be cancer and spread to his lungs. the lump at his neck too huge affected his voice box which hv to remove in order to treat his lungs cancer which took place last mar'08. hv been follow up monitor every 2-3mths visit to hospital.
he been gone thru this without his voice and felt sad for him as unable to communicate with the children.
doc suggest for RAI to treat his lung so schedule on 24 mar. but my husband complained last week that his whole left body went numbness so we called up to hospital and ask for whole body check up.
worst news happened! doc told us that the tumor (4cm!) had spread to his right brain which caused his half body numb! and had schedule early operation on his brain.
i broke dwn cried cried cried... why this happen to my husband. he still so young! hw abt our kids if he really gone?
i wonder whats the life span for him after his brain operation? doc said his half body numb wont back to his normal or even worst after his operation.
really hurts me very deep... i felt so helpless.... what shud i do without him? really hope there's miracle.... felt so sad unable to share his pain.... what will happen to me and children if he gone?
I'm so so sorry about your husband and the pain you are all going through. What kind of thyroid cancer is it that he had???
I don't know your situation, in terms of where you live, and your options and financial situation, but are there places you can go---ie, europe, us (sloan kettering), or special places for cancer in asia where you can get other opinions? I know that might not be a possibility, and hopefully, he is in great hands.
I know in the US, after surgeries, they try other things such as external radiation.
My thoughts are with you and your husband and your little boy and your baby girl......
Did he have rai after surgery? That's usually what they do in the US, especially with such a large tumor. They would have done RAI several weeks after the surgery---done a scan to see anywhere it spread, and treated with an RAI dosage accordingly.
I had pappillary thyroid cancer 3 years ago, which is treated like follicular, and I had RAI, and then a follow up scan a year later, and I have ultrasounds as well.
If the cancer is stubborn, we in the US would probably go to a hospital that specializes in cancer to find alternatives. There are other things they can use if RAI doesn't work---there is regular radiation---"external beam" I think it's called. There are also some medications that are in clinical trial/being tested as well.
Try to get the surgeon to explain as much as possible---let us know what happens, I hope your husband does well.
Yes. He did the RAI after surgery cuz he had multi cancer cells in both lungs and blood test done in Sept'7 where result showed the level had reduced from 4000 to 2000 which is good news according to the doctor. Hence, recently had blood test again in March and result out yesterday were told that the blood level had shot up to 8000 and believed due to the cancer spread to brain.
I was ****** off because why allow this to happen cuz we have been follow up closely visit to hospital every 2-3 mths undergo neccessary test.
Doctor also claim that if he didnt undergo the brain operation, only less than a year to live. Wonder what's the life span after the operation?
Btw, External Beam same as Radiotherapy?
I was very sad as he sms me that this Saturday going to have family photo in studio..... i know he very depressed and forsee worst after his operation....
"External beam" would be more like regular radiation---from the outside, that's used for the usual cancers, as opposed to the RAI pill---the internal radiotherapy. Sometimes they try that for more stubborn thyroid cancers. Perhaps that is something they will explore after the surgery.
You are a great wife, and you are there for your husband, and that's the best you can do. He may be scared now, but I'm sure he is grateful to have you there at his side.
It sounds as if your husbands thyroid cancer has been there a long time and this is why it has spread to the brain.
The good news is that most thyroid cancers are not very aggressive. Your husband's issue is that it went undiscovered for far too long. I am betting that a lump of his size and with the spread that this thing started about 10 years ago. I hate to say this but men are notorious for ignoring bodily symptoms and the one reason men don't do so well with thyroid cancer is because they ignore it for so long. My doctor told me that most men he treats don't come to him until they have HUGE tumors in their neck.
Now that your husband's cancer has been discovered, and he gets it removed, this should GREATLY slow it's progress. Thyroid cancer to the brain is rare, but not so rare to the lungs. You husband may need several RAI treatments to clear out his lungs. I know of someone who had at least 4 treatments to clear the lungs out.
As for the brain, I am not sure if RAI crosses the blood/brain barrier and can treat the brain portion of the tumor. Hopefully the surgery will do the trick.
I am so sorry your husband has to go through this. There are contacts in the U.S. where thyroid specialists will consult with your husbands physicians to tell them of the best treatment. This site does not permit me to give out that type of info so I can't help you with that. But if you do a little looking around on thyroid cancer, you may stumble across a support group that can provide you with that info.
Did ask the doctor during the last visit and said most probably affected by brain tumor. Had this thought because saw an article here someone mouth / nose numbness due to lack calcium so i hope that my husband also due to lack calcium......