Vocal cord/trach question
Hello all - I am new to this site and feeling a bit down about my situation enough to try and research things for myself.
I am a 42 year old female who had my first surgery in a local hospital for a left side/possible complete thyroidectomy on December 7, 2010. It was supposed to be pretty simple but my surgeon got in there and saw a big fat mess. Did the best he could and closed me up. I woke with a raspy voice and was assured that although he may have stretched and sressed the vocal cord, it was not cut. We decided to go to Sloan Memorial so the mess could properly be cleaned up. My ENT scoped me and to his surprise, saw that my right cord was paralyzed. The left side was what we were thinking and unfortunately, it appeared that the cancer (Papillary/Tall Cell Varient) was encased around my left vocal cord meaning that if he had to cut it out, I would wake with a trach tube. I was in shock and when I woke from my 2nd surgery on 2/18 with a trach tube....my heart fell.
It has now been 4 months since my original surgery and still have a raspy voice that squeaks by the end of the day. The trach tube causes a constant tickle in my throat and suctioning really "sucks" and I don't do it nearly as comfortably as the people I saw in the learning videos. It causes such spasms...I wonder if I'm doing something wrong. Having this trach is not something I am dealing with well and feel so inadequate as a usually active mom. I am exhausted and have no motivation. I am starting radioactive iodine next week so the diet really doesn't help. I'm sure my body is still trying to regulate the Synthroid and future adjustments may need to be made.
Does anyone have any words of wisdom or a similar story to share?
Is it really possible that the right cord, which we really aren't sure wasn't cut, will come back?
Is there a way I can get rid of the trach tube and perhaps my ENT is being overly cautious and waiting until after treatment due to possible side effects?
Right now, my cords are in a semi open position so I believe my airway is ok.
I'm just so frustrated and wish to swim with the kids again this summer!
Thanks for listening and for any information you can provide.