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Cancer: Thyroid Message Board
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Old 04-21-2011, 07:15 PM   #1
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papillary thyroid cancer

Hi, I had my thyroid removed in November 2010, and RAI in December at Christmastime for Papillary Cancer. My Endo. kept dismissing my symptoms. I had muscle weakness, constipation foggy brain unable to focus, lethargy and pain in the back of my head and neck area. I was also experiencing night sweats since post RAI. I ended up at the primary care Dr. Because I thought I must have and infection in my body and my ear/head felt strange. I figured i can always take a laxative for the ongoing constipation if necesssary, but I couldn't get antibiotics over the counter if in fact I was sufffering from and ear infection. It tuns out I had a Vitamin D deficiency which 50,000 UI of Replesta seemed to help. The foggy brain and lack of focus and constipation was cleared up but I continued with Hyperthyroid symptoms to the point of shaking hands and leg cramps. I changed Endos. had blood test and my TSH numbers were .037. I was put on synthroid 100mg and Cytomel 5mg twice a day. But I continued with severe pain. I called my Endo. and now they are changing to Synthroid 112 mg. and Cytomel stays the same. I am scheduled for a blood test in June. Meanwhile I wonder will I ever feel better again? Is there any normalcy for us cancer survivors? Can anyone give me hope? Are we destined to be racked with a myraid of autoimune diseases?

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Last edited by still searchin; 04-21-2011 at 07:24 PM. Reason: checking for readability and punctuation

 
Old 04-22-2011, 07:42 AM   #2
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Re: papillary thyroid cancer

Your situation is really unusual. Most people feel fine, with a TSH of .037. Some do need to be on cytomel, so you are lucky your endo prescribes it. Many don't believe in it. If your TSH gets too low, you may need to get on a beta blocker if you get heart palpitations. It takes about 2 months to feel better, after a dose change. Maybe you are still feeling the stress of going through all of this!

 
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Old 04-22-2011, 10:33 AM   #3
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Re: papillary thyroid cancer

Hi, My Endo. kept insisting I was good to go. But The Vitamin D deficiency was the cause of the problem to some degree. The symptoms seemed the same as when you are hypo. foggy brain, costipation, bone pain. She missed it because she never got the follow up blood work from the LabCorp. I think she was just afraid to admit she was wrong. I did ask for Cytomel. Boy all this joint pain/muscle pain is not fun. I have to admit I am feeling less pain since I started Synthroid 112 and Cytomel. I guess it just takes time to get the numbers and levels right. I just wonder how much damage to my bones I may have as my spine cracks and my joints. Do you think it will ever go away?

 
Old 04-22-2011, 11:31 AM   #4
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Re: papillary thyroid cancer

I think it will go away. How old are you? Maybe some of this is age related. Your spine and joints will be fine. If you are really concerned, keep an eye on your free T4. If that is maintained above 1.8, you might want to take a lot of calcium.

 
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